Zobrazeno 1 - 10
of 135
pro vyhledávání: '"Susan D Mathias"'
Autor:
Susan D. Mathias, Laurie Burke, Hilary H. Colwell, George Mensing, Will Savage, Hetanshi Naik
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-5 (2023)
Abstract Background Erythropoietic protoporphyria is a rare, inherited disorder presenting in early childhood with severe, painful phototoxicity. EPP has significant impacts on health-related quality of life, though there is variable disease severity
Externí odkaz:
https://doaj.org/article/20f2b0c0d6104290bb583cef8097cc05
Autor:
Brian G. Feagan, William J. Sandborn, Bruce E. Sands, Yan Liu, Marion Vetter, Susan D. Mathias, Kuan-Hsiang Gary Huang, Jewel Johanns, Matthew Germinaro, Chenglong Han
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)
Abstract Background This study evaluated the content validity and psychometric properties of the Patient-Reported Outcomes Measurement Information System® (PROMIS)-Fatigue Short Form 7a (SF-7a) v1.0 scale to determine its suitability in clinical tri
Externí odkaz:
https://doaj.org/article/a744e3da26794e7494a9b5aa0e4fb834
Autor:
Stéphane Dalle, Laurent Mortier, Pippa Corrie, Michal Lotem, Ruth Board, Ana María Arance, Frank Meiss, Patrick Terheyden, Ralf Gutzmer, Brian Buysse, Kelly Oh, Jane Brokaw, T. Kim Le, Susan D. Mathias, Julie Scotto, Jennifer Lord-Bessen, Andriy Moshyk, Srividya Kotapati, Mark R. Middleton
Publikováno v:
BMC Cancer, Vol 21, Iss 1, Pp 1-12 (2021)
Abstract Background Ipilimumab has shown long-term overall survival (OS) in patients with advanced melanoma in clinical trials, but robust real-world evidence is lacking. We present long-term outcomes from the IMAGE study (NCT01511913) in patients re
Externí odkaz:
https://doaj.org/article/99594f7922fa4fff9fddfd1d9103f9ac
Autor:
Eliza B. Geer, Jill Sisco, Daphne T. Adelman, William H. Ludlam, Asi Haviv, Shuqian Liu, Susan D. Mathias, Dana Gelbaum, Lizheng Shi
Publikováno v:
BMC Endocrine Disorders, Vol 20, Iss 1, Pp 1-8 (2020)
Abstract Background Acromegaly patients managed on Somatostatin receptor ligands (SRLs), the most common first-line pharmacotherapy for acromegaly, may still experience acromegaly symptoms such as headache, sweating, fatigue, soft tissue swelling, an
Externí odkaz:
https://doaj.org/article/62aa9e604c8d4aadb861a8c07a576255
Autor:
Susan D. Mathias, Steven I. Blum, Vanja Sikirica, Kirsten L. Johansen, Hilary H. Colwell, Tony Okoro
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-10 (2020)
Abstract Background Anemia is a frequent complication of chronic kidney disease (CKD) that negatively affects patients’ health-related quality of life. Methods We conducted qualitative concept elicitation (CE) and cognitive debriefing (CD) intervie
Externí odkaz:
https://doaj.org/article/69988b7109314a80b3ca4f61a7c7433f
Autor:
Marcia K. Horn, JD, Kevin Liu, PharmD, Susan D. Mathias, MPH, Hilary H. Colwell, MPH, Tracy Li, PhD, Parthiv Mahadevia, MD, Renee F. Pierson, MBA
Publikováno v:
JTO Clinical and Research Reports, Vol 2, Iss 8, Pp 100198- (2021)
Introduction: NSCLCs account for most lung cancers; approximately 30% involve a mutation in the EGFR gene. This study sought to identify one or more patient-reported outcome (PRO) measures relevant for use in clinical trials to assess symptoms and he
Externí odkaz:
https://doaj.org/article/007f08dcb59b4e358b3f323f0d033ab7
Autor:
Maria Fleseriu, Mark Molitch, Alexander Dreval, Nienke R. Biermasz, Murray B. Gordon, Ross D. Crosby, William H. Ludlam, Asi Haviv, Yossi Gilgun-Sherki, Susan D. Mathias
Publikováno v:
Frontiers in Endocrinology, Vol 12 (2021)
Medical treatment for acromegaly commonly involves receiving intramuscular or deep subcutaneous injections of somatostatin receptor ligands (SRLs) in most patients. In addition to side effects of treatment, acromegaly patients often still experience
Externí odkaz:
https://doaj.org/article/345eef4e06e5413793db0d9ad794e047
Autor:
Ruben A. Mesa, Erin M. Sullivan, David Dubinski, Brittany Carroll, Valerie M. Slee, Susan V. Jennings, Celeste C. Finnerty, Linda S. Bohannon, Susan D. Mathias, Betsy J. Lahue, Mariana C. Castells
Publikováno v:
Cancer. 128:3691-3699
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::cd0b402a8c9e44152ef9a7559e9d97ab
https://doi.org/10.1002/cncr.34420
https://doi.org/10.1002/cncr.34420
Autor:
Steven R. Feldman, Susan D. Mathias, Brad Schenkel, Hilary H. Colwell, Kelly McQuarrie, Bruce Randazzo, Chenglong Han
Publikováno v:
Journal of Dermatology and Dermatologic Surgery, Vol 20, Iss 1, Pp 19-26 (2016)
Background: Patients with psoriasis (PsO) suffer from a variety of symptoms. Tools are needed to assess PsO symptoms and signs from the patient’s perspective. Objective: To develop a patient-reported outcome (PRO) measure to assess symptoms and sig
Externí odkaz:
https://doaj.org/article/630efae5bd8f4e09afdc20c7b2f9638b
Publikováno v:
Sleep & Breathing = Schlaf & Atmung
Purpose This study estimated thresholds for clinically important responses and minimally important differences for two indicators of improvement for the 10-item version of the functional outcomes of sleep questionnaire (FOSQ-10). Methods Participants
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8232a02d66f8c3607a2b946c8c182869
https://doi.org/10.1007/s11325-020-02270-3
https://doi.org/10.1007/s11325-020-02270-3