Zobrazeno 1 - 10
of 68
pro vyhledávání: '"Susan D, Apkon"'
Publikováno v:
Journal of Pediatric Rehabilitation Medicine. 15:275-279
PURPOSE: Congenital myotonic dystrophy (CDM) results in hypotonia and acute respiratory distress at birth. Previous studies show that prolonged periods of intubation (>4 weeks) correlate with increased mortality rates. The objective is to describe th
Autor:
Henry Lane, James Signorovitch, Michael Somma, Jessica R. Marden, Susan D. Apkon, Claudio Santos, Julie Parsons, Jing Zhao, Richard Able, Brian Pfister
Publikováno v:
Journal of Comparative Effectiveness Research. 10:1065-1078
Aim: To describe reasons for switching from prednisone/prednisolone to deflazacort and associated clinical outcomes among patients with Duchenne and Becker muscular dystrophy (DMD and BMD, respectively) in the USA. Methods: A chart review of patients
Autor:
Brenda L. Wong, May Ling Mah, Joe N. Kornegay, Jamie L. Jackson, Dongsheng Duan, Kathi Kinnett, Linda H. Cripe, Susan D. Apkon, Mena Scavina, Vamshi Rao, Stanley F. Nelson, Kevin M. Flanigan
Publikováno v:
Journal of Neuromuscular Diseases. 8:315-322
Autor:
Ashley Thibodeau, Jeffrey Forris Beecham Chick, John J Weaver, Nassim Rad, Giridhar M. Shivaram, Eric J. Monroe, Kevin S. H. Koo, Danial K. Hallam, Susan D. Apkon, Joseph Reis, Niranjana Natarajan, David S. Shin, Sandeep Vaidya
Publikováno v:
Journal of NeuroInterventional Surgery. 13:75-78
BackgroundNusinersen is the only approved treatment for all spinal muscular atrophy (SMA) subtypes and is delivered intrathecally. Distorted spinal anatomy and instrumentation preclude standard approaches for intrathecal access, necessitating alterna
Autor:
Laura Dalle Pazze, Mindy G. Leffler, Marielle G Contesse, Amber T L Sapp, Susan D. Apkon, Linda Lowes
Publikováno v:
Muscle & Nerve
Introduction The Duchenne Video Assessment (DVA) assesses quality of movement as an indication of Duchenne muscular dystrophy (DMD) disease severity. Caregivers video record patients performing home‐based movement tasks using a mobile application,
Publikováno v:
PM&R. 11:1240-1243
Autor:
Molly Fuentes, Deborah Crawley, Alyssa Virtue, Susan D. Apkon, Edgar Lopez, Chuan Zhou, Frederick P. Rivara, Laura Alonso-Gonzalez, Brian Duncan Johnston, Nathalia Jimenez
Publikováno v:
J Head Trauma Rehabil
Objective To assess the feasibility and acceptability of a telephone-based education and navigation program for Hispanic parents of children hospitalized with traumatic brain injury (TBI). Setting Level I trauma hospital and pediatric inpatient rehab
Publikováno v:
JAMA pediatrics. 175(4)
Autor:
Oren Kupfer, Anne Troike Stratton, Terri Carry, Susan D. Apkon, Richard Ogden Roberts, Julie A. Parsons
Publikováno v:
Journal of pediatric rehabilitation medicine. 13(3)
COVID-19, the respiratory and frequently systemic disease caused by the novel SARS-COV-2 virus, was first recognized in December 2019 and quickly spread to become a pandemic and world-wide public health emergency over the subsequent 3–4 months. Whi
Autor:
Maurice G Sholas, Susan D. Apkon, Robert Rinaldi, Joline E. Brandenburg, Amy J. Houtrow, Lainie K Holman
Publikováno v:
Journal of pediatric rehabilitation medicine. 13(3)
Over 80% of the children in the world have had their education impacted by COVID-19. For children with disabilities who receive special education services, access to in-person education and other resources at school is particularly important. The Ame