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pro vyhledávání: '"Sue Read"'
Autor:
Sue Read
This authoritative edited text looks at how diverse and complicated experiences of loss can be for people with Intellectual Disabilities (ID). It discusses current theory, practice issues in health and care settings, and specific considerations for c
Publikováno v:
Nurse Researcher. 29:8-14
BACKGROUND: Developing and working through a PhD research study requires tenacity, continuous development and application of knowledge. It is paramount when researching sensitive topics to consider carefully the construction of tools for collecting d
Autor:
Roger J. Stancliffe, Josephine M. Clayton, Michele Wiese, Rebecca Barton, Gail Jeltes, Sue Read
Publikováno v:
Journal of Applied Research in Intellectual Disabilities. 34:659-669
Background Caregivers often avoid involving people with intellectual disability in end-of-life discussions and activities. One reason is fear that the person may become upset or psychologically harmed. Methods Pre and post a 6-month intervention abou
Publikováno v:
Safeguarding Across the Life Span ISBN: 9781473944459
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::209f5b2c49216807df23f519af47151e
https://doi.org/10.4135/9781529740004.n12
https://doi.org/10.4135/9781529740004.n12
Autor:
Rhian Worth, Mary McCarron, Sue Read, Phil Madden, Jane Bernal, Owen Barr, Stuart Todd, Thilo Kroll, Paul Jarvis, Julia Shearn, Kathy Lowe, Rachel Forrester-Jones, Kate Hunt, Edwin Jones
Publikováno v:
Hunt, K, Bernal, J, Worth, R, Shearn, J, Jarvis, P, Jones, E, Lowe, K, Madden, P, Barr, O, Forrester-Jones, R, Kroll, T, McCarron, M, Read, S & Todd, S 2020, ' End-of-life care in intellectual disability : A retrospective cross-sectional study ', BMJ Supportive and Palliative Care, vol. 10, no. 4, pp. 469-477 . https://doi.org/10.1136/bmjspcare-2019-001985
BackgroundAdults with intellectual disability (ID) experience inequality in access to healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at the end of life and how these compare with the general population ar
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::541c186df681467815098b07a9a4e433
https://purehost.bath.ac.uk/ws/files/205295583/revisedEnd_of_life_care_for_people_with_intellectual_disabilityversion2.pdf
https://purehost.bath.ac.uk/ws/files/205295583/revisedEnd_of_life_care_for_people_with_intellectual_disabilityversion2.pdf
Autor:
Carole Anne Watkins, Sue Ashby, Val Bambrick, Steven Blackburn, Sarah Thirlwall, Sue Read, Alison M. Aries, Helen Clifford, C. Rhodes
Publikováno v:
Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
Background\ud Public involvement in the education of students enrolled on higher education programmes has gained impetus. For students enrolled on professional health‐care programmes and health‐related modules in the UK, there is also a requireme
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fb730afe0308084bb6617b35f4a999e7
https://eprints.keele.ac.uk/8488/1/hex.13097.pdf
https://eprints.keele.ac.uk/8488/1/hex.13097.pdf
Symptom experience in non-dialysis-dependent chronic kidney disease: A qualitative descriptive study
Publikováno v:
Journal of Renal Care. 43:197-208
SUMMARYBackground Studies indicate that symptoms attributable to impaired kidney function are important determinants of quality of life and functional status in patients with chronic kidney disease (CKD). Accordingly, symptom assessment and subsequen
Autor:
Alison Kate Lillie, Sue Read, Sotirios Santatzoglou, Andrew Moore, Sue Ashby, Anthony Wrigley
Publikováno v:
Santatzoglou, S, Lillie, AK, Wrigley, A, Ashby, S, Moore, A & Read, S 2017, ' Law, ethics and end-of-life care : the policy and practice interface in England ', International Journal of Palliative Nursing, vol. 23, no. 5, pp. 213-218 . https://doi.org/10.12968/ijpn.2017.23.5.213
Palliative care aims neither to hasten nor postpone death but instead offers support to people with advancing, incurable somatic illness (WHO, 2002). At the same time, individual nurses hold a wide range of views on euthanasia and end-of-life care, w
Publikováno v:
Journal of applied research in intellectual disabilities : JARIDREFERENCES. 33(6)
Background There is a need to better understand the experiences and support needs of paid and family carers of people with an intellectual disability and dementia, and the role of Intellectual Disability Dementia Care Pathways (IDDCPs). This study ex
Autor:
Sue Read, Kate Hunt, Jane Bernal, Julia Shearn, Rhian Worth, Mary McCarron, Rachel Forrester Jones, Thilo Kroll, Owen Barr, Stuart Todd, Kathy Lowe, Paul Jarvis, Phil Madden, Edwin Jones
Publikováno v:
Journal of applied research in intellectual disabilities : JARIDREFERENCES. 33(6)
Background: population‐based data are presented on the nature of dying in intellectual disability services.Methods: a retrospective survey was conducted over 18 months with a sample of UK‐based intellectual disability service providers that suppo