Hemophilia and sexual health: results from the HERO and B-HERO-S studies

Autor: Sue Geraghty, Greig Blamey, David L. Cooper, Hossam Saad, Susan Cutter, Cathy Buranahirun, Andrea Buzzi, Renchi Yang

Publikováno v: Patient Related Outcome Measures. 10:243-255

Background Sexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia. Methods T

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::678ea322df5a70f81e05dc4f771477e2
https://doi.org/10.2147/prom.s211339

Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: a report from The Centers for Disease Control and Prevention’s (CDC) Universal Data Collection (UDC) project

Autor: Prasad Mathew, Rodney J Presley, J. M. Soucie, Donna DiMichele, Thomas C. Abshire, Marilyn J. Manco-Johnson, Sue Geraghty, Rohit N. Kulkarni, Diane J. Nugent, Bruce L. Evatt, Joan Cox Gill, Marion A. Koerper, Jeanne M. Lusher, A. Shapiro, Keith Hoots, Robert L. Janco

Publikováno v: Haemophilia. 15:1281-1290

Lack of detailed natural history and outcomes data for neonates and toddlers with haemophilia hampers the provision of optimal management of the disorder. We report an analysis of prospective data collected from 580 neonates and toddlers aged 0-2 yea

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f363cbacc9243f574fa792635de5b72c
https://doi.org/10.1111/j.1365-2516.2009.02074.x

Bleeding symptoms and laboratory correlation in patients with severe von Willebrand disease

Autor: Angela Lambing, Mary G. Hudson, Deanna Mitchell, Angela Tackney, Michael Recht, Erica Johnson, Ray L. Watts, Adam Cuker, JeanMarie M. Zoland, Karen Gutting, Cherys Zimmerman, Ellen White, Glenda Eckert, Gita Massey, Elizabeth Sandon-Kleiboer, Steve Hopewell, Trish Underland, Leslie Witkoff, Angie Riedel, Susan Karp, Cheryl Brower, Kathy McGinty, Charles Sexauer, Glenn Heggie, Joanne Porter, Mark T. Reding, Susumu Inoue, Vivek R. Sharma, Ashley T. Brummel, Marion Koerper, Sarah May, Jonathan M. Ducore, John S. Rogers, Claudia Lupia, C. Wang, Sue Geraghty, Eric H. Kraut, Neiha Dhar, Eric J. Werner, Bertil Glader, Margaret Bosch, Bryce A. Kerlin, Jodi Haar, Roberto Torres, Hassan M. Yaish, Mia Frank, Jay Charles, Jeanne M. Lusher, Dominique Joseph, Philip Kuriakose, Paula L. Bockenstedt, JoAnn A. Ruff, Mary Catherine Noa, Amy E. Lovejoy, Anaadriana Zakarija, Ilene Goldberg, Donna DiMichele, Anne T. Neff, Miriam Granat, Edwin N. Forman, Robin Schwartz, Alice Cohen, Margaret V. Ragni, Brian M. Wicklund, Michael F. Guerrera, Joan Cox Gill, Nadia P. Ewing, Ulrike M. Reiss, Kimo C. Stine, Sue Kovats-Bell, Robin Grant, Tom Coyle, Felicia Kiplinger, Thomas C. Abshire, Desiree Medeiros, Franklin Desposito, Katie Kralovetz, William D. Haire, Paulette Drozdowicz, Michael D. Tarantino, Rosemary P. Holmberg, Angela Stewart, Peter A. Kouides, Jennifer Green, Amy D. Shapiro, Karen Panckeri, Jim Casella, Guy Young, Sylvia Webber, Lee Meadows, Sandy Hibner, Katherine Farrow, Ara Metjian, Cecilia V. Schmidt, Laura Schulz, Robert Mignacca, S. M. Peterson, Sandy Harris, Parvin Saidi, W. Keith Hoots, Hernan Sabio, Diana Mathis, Kenneth D. Herbst, Cathy Glass, Jorge DiPaola, Patricia Fleming, Lisa Palumbo, Richard Lipton, Kristen Jaworski, Valerie Gonzalez, Valerie Crenshaw, Kim Stewart, Craig M. Kessler, Dee Ann Omatsu, Wahid Hanna, Patricia Amerson, Alexis A. Thompson, Afshin Ameri, Helena M. Jacobs, James French, Anne Chambers, Marjorie A. Boyd, George R. Buchanan, Steven W. Pipe, Anita Smith, Jubelirer Sj, Karen Granger, K. A. Schmidt, Suman L. Sood, Becki Berkowitz, Cindy A. Leissinger, Rajiv K. Pruthi, Patricia Ashby, Susan Curoe, Brenda Nielsen, Amy L. Dunn, Mike Lammer, Donna Arden, Carol Diamond, Chris Guelcher, Frances Patterson, Arthur R. Thompson, M. E. Nolte, G. Allen, Alan C. Homans, Marilyn J. Manco-Johnson, Ralph A. Gruppo, Glen Roy, Vlad C. Radulescu, Elizabeth Hanlon, Lynn Menza, Sarah Alexander, J. M. Soucie, Nigel S. Key, Debbie Nelson, Lisa Pullens, Jennifer La Franco, Barbara A. Konkle, Jean Marandola, Jonathan Bernstein, Muriel Herr, Corinthian Bryant

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia. 15(4)

Type 3 von Willebrand disease (VWD) is a rare bleeding disorder with markedly decreased or absent von Willebrand factor (VWF) protein, accompanied by a parallel decrease in VWF function and factor VIII (FVIII) activity. The goal of this study was to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0d7d6196d97546354e8ca71b85a22080
https://pubmed.ncbi.nlm.nih.gov/19473418

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors

Autor: Heather Huszti, Ann D. Forsberg, Julie Hambleton, Thomas C. Abshire, Angela Forsyth, J. Michael Soucie, Keith Hoots, Sue Geraghty, Robert L. Janco, Bruce L. Evatt, Gilbert C. White, Christy Cianfrini, Margaret Wagner, Randall Curtis, Roshni Kulkarni

Publikováno v: Blood. 103(7)

Chronic joint disease from repeated bleeding into joints is a serious complication of hemophilia. To measure the extent of and to identify risk factors for deviations from normal in joint range of motion (ROM), we used cross-sectional data collected

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e4d47c7108eba2fbd424d5738dac757a
https://pubmed.ncbi.nlm.nih.gov/14615381