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Hospital administrators as forgotten partners in rare disease care: a call to action by the international hospital federation's global rare pediatric disease network.

Autor: Stoesz A; Gillette Children's Specialty Healthcare, 200 University Avenue E., St. Paul, MN, 55101, USA. andreaestoesz@gillettechildrens.com., Joers B; Gillette Children's Specialty Healthcare, 200 University Avenue E., St. Paul, MN, 55101, USA., Gaviglio A; Connetics Consulting, 5737 Standish Avenue, Minneapolis, MN, 55417, USA.

Publikováno v: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2024 Dec 04; Vol. 19 (1), pp. 456. Date of Electronic Publication: 2024 Dec 04.