Zobrazeno 1 - 10
of 34
pro vyhledávání: '"Stephen G. Schilling"'
Autor:
Joshua R. Ehrlich, Charlie Frank, Josiah Smiley, Hong-Gam Le, Sanil Joseph, Stephen G. Schilling, Brian C. Stagg, Joshua D. Stein, R. D. Ravindran, Aravind Haripriya
Publikováno v:
Health and Quality of Life Outcomes, Vol 16, Iss 1, Pp 1-9 (2018)
Abstract Background For patient undergoing cataract surgery in India, existing patient-reported outcome (PRO) measures are either not culturally relevant, have not been adequately validated, or are too long to be used in a busy clinical setting. We s
Externí odkaz:
https://doaj.org/article/9e48d9c6a9f04f0bbbac811929e25cf6
Autor:
Chelsea L. Reighard, Joshua D. Stein, Stephen G. Schilling, George L Spaeth, Sheryl S. Wizov, Manju R Pillai, Joshua R. Ehrlich, Vidya Raja, Alan L. Robin, Sujani Shroff
Publikováno v:
Ophthalmol Glaucoma
Purpose Performance-based measures may provide an objective assessment of how glaucoma affects daily functioning. We sought to validate a clinically applicable performance-based measure of visual ability for patients with glaucoma in South India and
Autor:
Stephen G. Schilling, Rita Ayyangar, Claire Z. Kalpakjian, Margaret A. Fox, Heidi J. Haapala, Rebecca Parten
Publikováno v:
Developmental Medicine & Child Neurology. 61:69-74
Aim People with cerebral palsy (CP) are often unable to express pain owing to cognitive or speech impairments. Reports that rely on observation can be inaccurate, because behaviours such as grimacing, common in people with spastic CP, resemble pain e
Autor:
Nicholas R. Boileau, Rebecca E. Ready, Siera Goodnight, David Cella, Samuel Frank, Praveen Dayalu, Stephen G. Schilling, Noelle E. Carlozzi, Elizabeth A. Hahn
Publikováno v:
Movement Disorders. 32:1096-1102
Background: There is a need for patient-reported outcome measures that capture the impact that motor impairments have on health-related quality of life in individuals with Huntington's disease. Objectives: The objectives of this study were to establi
Autor:
Praveen Dayalu, Jane S. Paulsen, Julie C. Stout, Stephen G. Schilling, Noelle E. Carlozzi, Kelvin L. Chou, Samuel Frank, Jin Shei Lai, Michael K. McCormack, Nicholas R. Boileau, Joel S. Perlmutter
Publikováno v:
Mov Disord
Purpose This study examined the relationships between different aspects of motor dysfunction (chorea, dystonia, rigidity, incoordination, oculomotor dysfunction, dysarthria, and gait difficulties) and functional status in persons with Huntington's di
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4b19099e6cc8bdc129dea63d2c22f237
https://europepmc.org/articles/PMC7025393/
https://europepmc.org/articles/PMC7025393/
Autor:
Ira Shoulson, Rebecca E. Ready, Stacey K. Barton, Jane S. Paulsen, Stephen M. Rao, Julie C. Stout, Elizabeth A. Hahn, Stephen G. Schilling, Noelle E. Carlozzi, Michael D. Geschwind, Susan Perlman, Jennifer A. Miner, Martha Nance, Christopher A. Ross, Anna L. Kratz, Kimberly A. Quaid, Jin Shei Lai, Praveen Dayalu, H. Marin, Michael K. McCormack, Siera Goodnight, Nancy R. Downing, Joel S. Perlmutter, Samuel Frank, Richard Gershon, David Cella
Publikováno v:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, vol 25, iss 10
Carlozzi, NE; Schilling, SG; Lai, J-S; Paulsen, JS; Hahn, EA; Perlmutter, JS; et al.(2016). HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). QUALITY OF LIFE RESEARCH, 25(10), 2441-2455. doi: 10.1007/s11136-016-1386-3. UC San Francisco: Retrieved from: http://www.escholarship.org/uc/item/2nb8m503
Carlozzi, NE; Schilling, SG; Lai, J-S; Paulsen, JS; Hahn, EA; Perlmutter, JS; et al.(2016). HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). QUALITY OF LIFE RESEARCH, 25(10), 2441-2455. doi: 10.1007/s11136-016-1386-3. UC San Francisco: Retrieved from: http://www.escholarship.org/uc/item/2nb8m503
PurposeHuntington disease (HD) is a chronic, debilitating genetic disease that affects physical, emotional, cognitive, and social health. Existing patient-reported outcomes (PROs) of health-related quality of life (HRQOL) used in HD are neither compr
Autor:
Stephen G. Schilling, Noelle E. Carlozzi, Michael K. McCormack, Elizabeth A. Hahn, Jennifer A. Miner, Martha Nance, Jin Shei Lai, Samuel Frank, Siera Goodnight, Kimberly A. Quaid, Nancy R. Downing, Jane S. Paulsen, Joel S. Perlmutter, David Cella
Publikováno v:
Quality of Life Research. 25:2403-2415
Huntington disease (HD) is an incurable terminal disease. Thus, end of life (EOL) concerns are common in these individuals. A quantitative measure of EOL concerns in HD would enable a better understanding of how these concerns impact health-related q
Autor:
Jennifer A. Miner, Stephen G. Schilling, Noelle E. Carlozzi, Siera Goodnight, Steven A. Frank, Nancy R. Downing, Jin Shei Lai
Publikováno v:
Quality of Life Research. 25:2429-2439
Huntington’s disease (HD) is an autosomal dominant neurodegenerative disease associated with motor, behavioral, and cognitive deficits. The hallmark symptom of HD, chorea, is often the focus of HD clinical trials. Unfortunately, there are no self-r
Autor:
Anna L. Kratz, Stephen G. Schilling, Noelle E. Carlozzi, Jenna Freedman, Claire Z. Kalpakjian
PURPOSE: This study investigated the most efficient means of measuring pain intensity and pa interference comparing ecological momentary assessment (EMA) to end of day (EOD) data, with the highest level of measurement reliability as examined in indiv
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6d5e584dd707ca33ffde4078182c65eb
https://europepmc.org/articles/PMC6196118/
https://europepmc.org/articles/PMC6196118/
Autor:
Julie C. Stout, Anna L. Kratz, Jane S. Paulsen, Stephen G. Schilling, Noelle E. Carlozzi, Steven A. Frank
PURPOSE: Symptom progression in Huntington disease (HD) is associated with cognitive decline which may interfere with the self-report of symptoms. Unfortunately, data to support or refute the psychometric reliability of patient-reported outcomes (PRO
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fe60b4b41b2130803b65f08e6b7fb1d8
https://europepmc.org/articles/PMC6295362/
https://europepmc.org/articles/PMC6295362/