Zobrazeno 1 - 10
of 13
pro vyhledávání: '"Stephanie O M, Dyke"'
Autor:
Stephanie O. M. Dyke, Katie M. Saulnier, Charles Dupras, Amy P. Webster, Karen Maschke, Mark Rothstein, Reiner Siebert, Jörn Walter, Stephan Beck, Tomi Pastinen, Yann Joly
Publikováno v:
Genome Medicine, Vol 11, Iss 1, Pp 1-9 (2019)
Abstract As epigenetic studies become more common and lead to new insights into health and disease, the return of individual epigenetic results to research participants, in particular in large-scale epigenomic studies, will be of growing importance.
Externí odkaz:
https://doaj.org/article/3fcc58747b254ada85d411965fa7bf4e
Autor:
Danya F. Vears, Joel T. Minion, Stephanie J. Roberts, James Cummings, Mavis Machirori, Mwenza Blell, Isabelle Budin-Ljøsne, Lorraine Cowley, Stephanie O. M. Dyke, Clara Gaff, Robert Green, Alison Hall, Amber L. Johns, Bartha M. Knoppers, Stephanie Mulrine, Christine Patch, Eva Winkler, Madeleine J. Murtagh
Publikováno v:
PLoS ONE, Vol 16, Iss 11 (2021)
Despite the plethora of empirical studies conducted to date, debate continues about whether and to what extent results should be returned to participants of genomic research. We aimed to systematically review the empirical literature exploring stakeh
Externí odkaz:
https://doaj.org/article/08013997ec0e494496b417420b999001
Autor:
Melissa S Cline, Rachel G Liao, Michael T Parsons, Benedict Paten, Faisal Alquaddoomi, Antonis Antoniou, Samantha Baxter, Larry Brody, Robert Cook-Deegan, Amy Coffin, Fergus J Couch, Brian Craft, Robert Currie, Chloe C Dlott, Lena Dolman, Johan T den Dunnen, Stephanie O M Dyke, Susan M Domchek, Douglas Easton, Zachary Fischmann, William D Foulkes, Judy Garber, David Goldgar, Mary J Goldman, Peter Goodhand, Steven Harrison, David Haussler, Kazuto Kato, Bartha Knoppers, Charles Markello, Robert Nussbaum, Kenneth Offit, Sharon E Plon, Jem Rashbass, Heidi L Rehm, Mark Robson, Wendy S Rubinstein, Dominique Stoppa-Lyonnet, Sean Tavtigian, Adrian Thorogood, Can Zhang, Marc Zimmermann, BRCA Challenge Authors, John Burn, Stephen Chanock, Gunnar Rätsch, Amanda B Spurdle
Publikováno v:
PLoS Genetics, Vol 14, Iss 12, p e1007752 (2018)
The BRCA Challenge is a long-term data-sharing project initiated within the Global Alliance for Genomics and Health (GA4GH) to aggregate BRCA1 and BRCA2 data to support highly collaborative research activities. Its goal is to generate an informed and
Externí odkaz:
https://doaj.org/article/3d040669de2049168c109d5c746eac9a
Autor:
Stephanie O M Dyke, Anthony A Philippakis, Jordi Rambla De Argila, Dina N Paltoo, Erin S Luetkemeier, Bartha M Knoppers, Anthony J Brookes, J Dylan Spalding, Mark Thompson, Marco Roos, Kym M Boycott, Michael Brudno, Matthew Hurles, Heidi L Rehm, Andreas Matern, Marc Fiume, Stephen T Sherry
Publikováno v:
PLoS Genetics, Vol 12, Iss 1, p e1005772 (2016)
A systematic way of recording data use conditions that are based on consent permissions as found in the datasets of the main public genome archives (NCBI dbGaP and EMBL-EBI/CRG EGA).
Externí odkaz:
https://doaj.org/article/dba8b7865e8c40ae9da832cc978bc9f9
Autor:
Stephanie O. M. Dyke, Kathleen Connor, Victoria Nembaware, Nchangwi S. Munung, Kathy Reinold, Giselle Kerry, Mamana Mbiyavanga, Lyndon Zass, Mauricio Moldes, Samir Das, John M. Davis, Jordi Rambla De Argila, J. Dylan Spalding, Alan C. Evans, Nicola Mulder, Jason Karamchandani
Publikováno v:
Neuroinformatics.
We previously proposed a structure for recording consent-based data use 'categories' and 'requirements' - Consent Codes - with a view to supporting maximum use and integration of genomic research datasets, and reducing uncertainty about permissible r
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::948eb25189fbbf2ff76c1c67761dee3e
https://pubmed.ncbi.nlm.nih.gov/36520344
https://pubmed.ncbi.nlm.nih.gov/36520344
Autor:
Mavis Machirori, James Cummings, Alison Hall, Eva C. Winkler, Joel T. Minion, Lorraine Cowley, Christine Patch, Stephanie O. M. Dyke, Stephanie J. Roberts, Isabelle Budin-Ljøsne, Mwenza Blell, Stephanie Mulrine, Robert C. Green, Madeleine J. Murtagh, Danya F. Vears, Bartha Maria Knoppers, Clara Gaff, Amber L. Johns
Publikováno v:
PLoS ONE
PLoS ONE, Vol 16, Iss 11 (2021)
PLoS ONE, Vol 16, Iss 11, p e0258646 (2021)
PLOS ONE
PLoS ONE, Vol 16, Iss 11 (2021)
PLoS ONE, Vol 16, Iss 11, p e0258646 (2021)
PLOS ONE
Despite the plethora of empirical studies conducted to date, debate continues about whether and to what extent results should be returned to participants of genomic research. We aimed to systematically review the empirical literature exploring stakeh
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e65b2235622883e7ddc6741bfdc77270
https://eprints.gla.ac.uk/258636/1/258636.pdf
https://eprints.gla.ac.uk/258636/1/258636.pdf
Publikováno v:
PLoS Biology, Vol 13, Iss 12, p e1002339 (2015)
In parallel with massive genomic data production, data sharing practices have rapidly expanded over the last decade. To ensure authorized access to data, access review by data access committees (DACs) has been utilized as one potential solution. Here
Externí odkaz:
https://doaj.org/article/eea8b5c2f6754f60aea06f2300185238
Autor:
Samir, Das, Rida, Abou-Haidar, Henri, Rabalais, Sonia Denise Lai Wing, Sun, Zaliqa, Rosli, Krishna, Chatpar, Marie-Noëlle, Boivin, Mahdieh, Tabatabaei, Christine, Rogers, Melanie, Legault, Derek, Lo, Clotilde, Degroot, Alain, Dagher, Stephanie O M, Dyke, Thomas M, Durcan, Annabel, Seyller, Julien, Doyon, Viviane, Poupon, Edward A, Fon, Angela, Genge, Guy A, Rouleau, Jason, Karamchandani, Alan C, Evans
Publikováno v:
Neuroinformatics. 20(1)
In January 2016, the Montreal Neurological Institute-Hospital (The Neuro) declared itself an Open Science organization. This vision extends beyond efforts by individual scientists seeking to release individual datasets, software tools, or building pl
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::b9baaeee40b099c96001d58190be0cc4
https://pubmed.ncbi.nlm.nih.gov/34003431
https://pubmed.ncbi.nlm.nih.gov/34003431
Autor:
Heidi J. Sofia, Kathy Reinold, Petr Holub, Gregory A. Rushton, Sarion R. Bowers, Melissa A. Konopko, Anthony J. Brookes, Chihiro Hata, Jaime M. Guidry Auvil, Giselle Kerry, Stephanie O. M. Dyke, Rebecca R. Boyles, Tony Burdett, Mallory A. Freeberg, Fabian Prasser, Soichi Ogishima, Jordi Rambla, Aina Jene, Matthew Brush, Mélanie Courtot, Ilia Tulchinsky, Esther van Enckevort, Minae Kawashima, Moran N. Cabili, Jonathan Lawson, Laura A.D. Paglione, Helen Parkinson, Tommi Nyrönen, Adrian Thorogood, Satoshi Nagaie, Craig Voisin, Anthony A. Philippakis, Pinar Alper, Haoyuan Li, Susheel Varma, John Dylan Spalding, Hayley L. Clissold, Gary I. Saunders, Natsuko Yamamoto, Nicola Mulder, Morris A. Swertz, Ravi N. Pandya, Melissa Haendel, Mikael Linden, Mizuki Morita, Vivian Ota Wang, Jean Muller, Chisato Yamasaki, Lyndon Zass, Francis Jeanson, Irene Kyomugisha, Stacey Donnelly, Tiffany Boughtwood, Laura Lyman Rodriguez, Jamal Nasir, Andrea Saltzman, Shuichi Kawashima
Publikováno v:
Cell Genomics
Summary Human biomedical datasets that are critical for research and clinical studies to benefit human health also often contain sensitive or potentially identifying information of individual participants. Thus, care must be taken when they are proce
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::df22314d877b3036a3aa912462062c75
Autor:
Stephanie O. M. Dyke
This chapter focuses on how shared genomic data are made available to researchers through different data access policy models that have evolved in response to developments in genomics research and data-sharing policy. Data access policy plays a criti
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::61d71f8c3767a939eb9f82f2441581d0
https://doi.org/10.1016/b978-0-12-816197-5.00002-4
https://doi.org/10.1016/b978-0-12-816197-5.00002-4