A structured patient empowerment programme for primary immunodeficiency significantly improves general and health-related quality of life

Autor: Horst von Bernuth, Sigune Goldacker, Uwe Schauer, Henrike Ritterbusch, Norbert Gebert, I. Schulze, Renate Krueger, Ulrich Baumann, G Notheis, Petra Manzey, Steffi Widmann, Volker N. Umlauf, Gesine Schuermann, Maria Fasshauer

Publikováno v: Central-European Journal of Immunology
Central European Journal of Immunology, Vol 46, Iss 2, Pp 244-249 (2021)
Fasshauer, Maria; Schuermann, Gesine; Gebert, Norbert; von Bernuth, Horst; Goldacker, Sigune; Krueger, Renate; Manzey, Petra; Notheis, Gundula; Ritterbusch, Henrike; Schauer, Uwe; Schulze, Ilka; Umlauf, Volker; Widmann, Steffi; Baumann, Ulrich (2021). A structured patient empowerment programme for primary immunodeficiency significantly improves general and health-related quality of life. Central European journal of immunology, 46(2), pp. 244-249. Termedia Publishing House 10.5114/ceji.2021.107088

Introduction Primary immunodeficiencies (PIDs) are a heterogeneous group of rare diseases characterized by increased susceptibility to infections and a reduced quality of life (QoL). The influence of a patient empowerment programme for PID (PID-PEP)

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c5bde45b187f18a98dc15cddaf6ddade
http://europepmc.org/articles/PMC8568033