Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Sophie Aycaguer"'
Autor:
Agnès Morier, David Adams, Catherine Bourges, Teresa Antonini, Vincent Algalarrondo, Géraldine Nonnez, Amandine Darras, Marie Théaudin, Sophie Aycaguer, Laurence Mouzat, Cécile Cauquil, Marie Kubezyk, Céline Labeyrie, Mireille Clément
Publikováno v:
Amyloid. 21:225-230
Transthyretin-related amyloidosis (ATTR) is an autosomal dominant disease affecting the peripheral and autonomic nervous system, heart, eyes and kidneys. It is the most disabling hereditary polyneuropathy in adults. The French National Reference cent
Publikováno v:
Revue Neurologique. 174:S171
Introduction L’evaluation individuelle presentielle en education therapeutique du patient (ETP) pose des problemes de temps et d’accessibilite auxquels les outils numeriques peuvent repondre. L’objectif de ce travail etait de creer et valider u
Autor:
Marie Théaudin, Mireille Clément, Vincent Algalarrondo, Nadia Kouchi, Marie Kubezyk, Amandine Darras, Cécile Cauquil, Céline Labeyrie, Teresa Antonini, Agnès Morier, Sophie Aycaguer, Géraldine Nonnez, David H. Adams, Colombe Lemoine, Nathalie Coste
Publikováno v:
Orphanet Journal of Rare Diseases
Background The French National Reference centre for Transthyretinrelated amyloidosis (ATTR) was accredited in 2005. One of its 10 lines of action is to inform and educate patients about their disease to improve their care and reduce morbidities. We t