EoE CONNECT, the European Registry of Clinical, Environmental, and Genetic Determinants in Eosinophilic Esophagitis: rationale, design, and study protocol of a large-scale epidemiological study in Europe

Autor: Alfredo J. Lucendo, Cecilio Santander, Edoardo Savarino, Danila Guagnozzi, Isabel Pérez-Martínez, Antonia Perelló, Antonio Guardiola-Arévalo, Jesús Barrio, María Elena Betoré-Glaria, Carolina Gutiérrez-Junquera, Constanza Ciriza de los Ríos, Francesca Racca, Sonia Fernández-Fernández, Leonardo Blas-Jhon, Anne Lund Krarup, Susana de la Riva, Juan E. Naves, Silvia Carrión, Juan Armando Rodríguez Oballe, Natalia García-Morales, Sonsoles Tamarit-Sebastián, Pilar Navarro, Ángel Arias, Emilio J. Laserna-Mendieta

Publikováno v: Therapeutic Advances in Gastroenterology, Vol 15 (2022)

Background: The growing prevalence of eosinophilic esophagitis (EoE) represents a considerable burden to patients and health care systems. Optimizing cost-effective management and identifying mechanisms for disease onset and progression are required.

Externí odkaz: https://doaj.org/article/43db2724b56b4a728452b2fac2d7ffa2

Differences between childhood- and adulthood-onset eosinophilic esophagitis: An analysis from the EoE connect registry

Autor: Emilio José Laserna-Mendieta, Pilar Navarro, Sergio Casabona-Francés, Edoardo V Savarino, Isabel Pérez-Martínez, Danila Guagnozzi, Jesús Barrio, Antonia Perello, Antonio Guardiola-Arévalo, María Elena Betoré-Glaria, Leonardo Blas-Jhon, Francesca Racca, Anne Lund Krarup, Carolina Gutiérrez-Junquera, Sonia Fernández-Fernández, Susana De la Riva, Juan E Naves, Silvia Carrión, Natalia García-Morales, Valentín Roales, Juan Armando Rodríguez-Oballe, Raffaella Dainese, Alba Rodríguez-Sánchez, María Lluisa Masiques-Mas, Sara Feo-Ortega, Matteo Ghisa, Daria Maniero, Adolfo Suarez, Ronald Llerena-Castro, Paula Gil-Simón, Luisa de la Peña-Negro, Alicia Granja-Navacerrada, Javier Alcedo, Lonore Hurtado de Mendoza-Guena, Gaia Pellegatta, María Teresa Pérez-Fernández, Cecilio Santander, Sonsoles Tamarit-Sebastián, Ángel Arias, Alfredo J. Lucendo

Publikováno v: Laserna-Mendieta, E J, Navarro, P, Casabona-Francés, S, Savarino, E V, Pérez-Martínez, I, Guagnozzi, D, Barrio, J, Perello, A, Guardiola-Arévalo, A, Betoré-Glaria, M E, Blas-Jhon, L, Racca, F, Krarup, A L, Gutiérrez-Junquera, C, Fernández-Fernández, S, la Riva, S D, Naves, J E, Carrión, S, García-Morales, N, Roales, V, Rodríguez-Oballe, J A, Dainese, R, Rodríguez-Sánchez, A, Masiques-Mas, M L, Feo-Ortega, S, Ghisa, M, Maniero, D, Suarez, A, Llerena-Castro, R, Gil-Simón, P, Peña-Negro, L D L, Granja-Navacerrada, A, Alcedo, J, Hurtado de Mendoza-Guena, L, Pellegatta, G, Pérez-Fernández, M T, Santander, C, Tamarit-Sebastián, S, Arias, Á, Lucendo, A J & EUREOS EoE CONNECT Research group 2023, ' Differences between childhood-and adulthood-onset eosinophilic esophagitis : An analysis from the EoE connect registry ', Digestive and Liver Disease, vol. 55, no. 3, pp. 350-359 . https://doi.org/10.1016/j.dld.2022.09.020

BackgroundDirect comparisons of childhood- and adulthood-onset eosinophilic esophagitis (EoE) are scarce.AimTo compare disease characteristics, endoscopic and histological features, allergic concomitances and therapeutic choices across ages.MethodsCr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::350213417b3546e90dc18a5bbe21433b
https://pubmed.ncbi.nlm.nih.gov/36280437

Management and Long-term Outcomes of Crohn's Disease Complicated with Enterocutaneous Fistula: ECUFIT Study from GETECCU

Autor: Manuel Barreiro-de Acosta, Sabino Riestra, Margalida Calafat, María Pilar Soto, Marta Calvo, Eugenia Sánchez Rodríguez, Berta Caballol, Milagros Vela, Montserrat Rivero, Fernando Muñoz, Luisa de Castro, Xavier Calvet, Francisco Javier García-Alonso, Alejandra Utrilla Fornals, Rocío Ferreiro-Iglesias, Carlos González-Muñoza, María Chaparro, Luis Bujanda, Beatriz Sicilia, Erika Alfambra, Andrés Rodríguez, Rubén Pérez Fernández, Cristina Rodríguez, Pedro Almela, Federico Argüelles, David Busquets, Sonsoles Tamarit-Sebastián, Cristina Reygosa Castro, Laura Jiménez, Ignacio Marín-Jiménez, Noelia Alcaide, Estela Fernández-Salgado, Águeda Iglesias, Ángel Ponferrada, Ramón Pajares, Óscar Roncero, Víctor Jair Morales-Alvarado, Nahia Ispízua-Madariaga, Empar Sáinz, Olga Merino, Lucía Márquez-Mosquera, Mariana García-Sepulcre, Ainara Elorza, Sandra Estrecha, Gerard Surís, Manuel Van Domselaar, Alicia Brotons, Ruth de Francisco, Fiorella Cañete, Eva Iglesias, María Isabel Vera, Francisco Mesonero, Rufo Lorente, Yamile Zabana, José Luis Cabriada, Eugeni Domènech, Iago Rodríguez-Lago

Publikováno v: JOURNAL OF CROHNS & COLITIS
r-FISABIO. Repositorio Institucional de Producción Científica
instname
r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
Journal of Crohns & Colitis
r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau

Background and aims Crohn’s disease [CD] can develop penetrating complications at any time during the disease course. Enterocutaneous fistulae [ECF] are disease-related complications with an important impact on quality of life. Our aim was to descr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::971774b8b4f1d3ba0fe5623eb89136ec
https://fundanet.fisabio.san.gva.es/publicaciones/ProdCientif/PublicacionFrw.aspx?id=13339

Accurate and timely diagnosis of eosinophilic esophagitis improves over time in Europe: an analysis of the EoE CONNECT Registry

Autor: Pilar Navarro, Emilio J Laserna‐Mendieta, Sergio Casabona, Edoardo Savarino, María Teresa Pérez‐Fernández, Matteo Ghisa, Isabel Pérez‐Martínez, Danila Guagnozzi, Antonia Perelló, Antonio Guardiola‐Arévalo, Francesca Racca, Elena Betoré, Leonardo Blas‐Jhon, Anne Lund Krarup, Verónica Martín‐Domínguez, Daria Maniero, Adolfo Suárez, Ronald Llerena‐Castro, Luisa de la Peña‐Negro, Alicia Granja Navacerrada, Gaia Pellegatta, Javier Alcedo, Lonore de Hurtado Mendoza‐Guena, Sara Feo‐Ortega, Jesús Barrio, Carolina Gutiérrez‐Junquera, Sonia Fernández‐Fernández, Susana De la Riva, Juan E Navés, Silvia Carrión, Constanza Ciriza de los Ríos, Natalia García‐Morales, Juan Armando Rodríguez‐Oballe, Raffaela Dainese, Alba Rodríguez‐Sánchez, María Lluisa Masiques‐Mas, María Teresa Palomeque, Cecilio Santander, Sonsoles Tamarit‐Sebastián, Ángel Arias, Alfredo J Lucendo

Publikováno v: Navarro, P, Laserna-Mendieta, E J, Casabona, S, Savarino, E, Pérez-Fernández, M T, Ghisa, M, Pérez-Martínez, I, Guagnozzi, D, Perelló, A, Guardiola-Arévalo, A, Racca, F, Betoré, E, Blas-Jhon, L, Krarup, A L, Martín-Domínguez, V, Maniero, D, Suárez, A, Llerena-Castro, R, de la Peña-Negro, L, Navacerrada, A G, Pellegatta, G, Alcedo, J, de Hurtado Mendoza-Guena, L, Feo-Ortega, S, Barrio, J, Gutiérrez-Junquera, C, Fernández-Fernández, S, De la Riva, S, E Navés, J, Carrión, S, Ciriza de Los Ríos, C, García-Morales, N, Rodríguez-Oballe, J A, Dainese, R, Rodríguez-Sánchez, A, Masiques-Mas, M L, Palomeque, M T, Santander, C, Tamarit-Sebastián, S, Arias, Á & Lucendo, A J 2022, ' Accurate and timely diagnosis of Eosinophilic Esophagitis improves over time in Europe. An analysis of the EoE CONNECT Registry ', United European Gastroenterology Journal, vol. 10, no. 5, pp. 507-517 . https://doi.org/10.1002/ueg2.12240
Scientia

Diagnostic delay; Endoscopy; Eosinophilic esophagitis Retraso en el diagnóstico; Endoscopia; Esofagitis eosinofílica Retard diagnòstic; Endoscòpia; Esofagitis eosinofílica Background: Poor adherence to clinical practice guidelines for eosinophil

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ebe79509b4e6bdba96a448434daf757a
http://hdl.handle.net/10230/55234