Zobrazeno 1 - 10
of 15
pro vyhledávání: '"Sima Zadeh Bedoya"'
Autor:
Lori Wiener, Sima Zadeh Bedoya, Archita Goyal, Mallorie Gordon, Natalie Deuitch, Brigitte Widemann
Publikováno v:
Children, Vol 10, Iss 3, p 448 (2023)
Neurofibromatosis type 1 (NF1) is a genetic condition affecting 1 in 3000 individuals. Having a child with a chronic illness can introduce both practical and emotional challenges to a parental relationship. This cross-sectional study was administered
Externí odkaz:
https://doaj.org/article/91c29e57f662462e82ecb491c6e33b7d
Autor:
Taryn Allen, Stephanie Reda, Staci Martin, Phoebe Long, Alexis Franklin, Sima Zadeh Bedoya, Lori Wiener, Pamela L. Wolters
Publikováno v:
Children, Vol 9, Iss 4, p 500 (2022)
Adolescent and young adults (AYAs) with chronic illnesses cope with complex issues that require unique psychological support and healthcare services to reduce psychosocial difficulties, improve disease management, and facilitate positive transitions
Externí odkaz:
https://doaj.org/article/73c3a9870abd409c8896088381aa95f5
Autor:
Sima Zadeh Bedoya, Cynthia A. Gerhardt, Julia Tager, Lori Wiener, Haven Battles, Tammi Young-Saleme
Publikováno v:
Journal of Pediatric Oncology Nursing. 36:170-177
It is important for the health care community to understand the impact of a child’s death on parent functioning. Yet involving bereaved parents in research that enquires about such a stressful time in their life can potentially bring harm to them.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2792d90678ba1b5d4b42257397ea63e6
https://doi.org/10.1177/1043454219836963
https://doi.org/10.1177/1043454219836963
Publikováno v:
Palliat Support Care
ObjectivesClinicians and parents are encouraged to have open and honest communication about end of life with children with cancer, yet there remains limited research in this area. We examined family communication and preferred forms of support among
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::163e07450b8e1e4a3b2a2b936e2dba33
https://europepmc.org/articles/PMC8408277/
https://europepmc.org/articles/PMC8408277/
Autor:
Mary V. Tipton, Lori Wiener, Marina Noronha Ferraz de Arruda-Colli, Maryland Pao, Sima Zadeh Bedoya
Publikováno v:
J Psychosoc Oncol
OBJECTIVE: Psychosocial providers in medical settings are increasingly being asked to identify suicide risk in youth with medical illnesses. This pilot study aimed to determine the acceptability of suicide risk screening among youth with cancer and o
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8c12ab3646ce9bc2753510dda3bf7e61
https://pubmed.ncbi.nlm.nih.gov/33306002
https://pubmed.ncbi.nlm.nih.gov/33306002
Autor:
Lori Wiener, Brigitte C. Widemann, Sima Zadeh Bedoya, Haven Battles, Maryland Pao, Andrea Baldwin
Publikováno v:
Journal of Genetic Counseling. 27:115-123
Children and adolescents with Neurofibromatosis type 1 (NF1) are at increased risk for wide-ranging behavioral, developmental, and cognitive impairments and decreased quality of life. To date, no psychosocial screening tool has been developed to quic
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cdbb57447adadf917849e75875bff4ec
https://doi.org/10.1007/s10897-017-0128-1
https://doi.org/10.1007/s10897-017-0128-1
Publikováno v:
Journal of Psychosocial Oncology. 35:483-493
Children and adolescents who require limb amputation as part of cancer treatment face many physical and emotional challenges. Preparatory interventions may serve to facilitate positive coping and improve long-term adjustment during pediatric cancer t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3eae2bef030ac13d4dc67ee4d17a2b54
https://doi.org/10.1080/07347332.2017.1307894
https://doi.org/10.1080/07347332.2017.1307894
Autor:
Jennifer W. Mack, Sima Zadeh Bedoya, Lori Wiener, Cynthia A. Gerhardt, Julia Tager, Haven Battles
Publikováno v:
Pediatr Blood Cancer
BACKGROUND: Most parents vividly recall the weeks, days, and moments preceding their child’s death for years to come. Dissatisfaction with communication about their child’s condition and lack of guidance can contribute to stress prior to a child
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::afc58f8b261736ab3c01e44def49a673
https://doi.org/10.1002/pbc.27993
https://doi.org/10.1002/pbc.27993
Autor:
Sima Zadeh Bedoya, Sun J. Kang, Mary V. Tipton, Lisa M. Horowitz, Lindsey M. Shain, Lori Wiener, Maryland Pao
Publikováno v:
J Clin Psychol Med Settings
Anxiety symptoms in children and adolescents with a chronic health condition have been estimated as high as 40% lifetime prevalence. Clinicians often rely on parent/caregiver information to supplement or substitute child self-report related to pediat
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb22709ccdce233e1405f9cb9e9ce67c
https://pubmed.ncbi.nlm.nih.gov/31127422
https://pubmed.ncbi.nlm.nih.gov/31127422
Autor:
Lori Wiener, Marina Noronha Ferraz de Arruda-Colli, Anna C. Muriel, Wendy Pelletier, Sima Zadeh Bedoya
Publikováno v:
Journal of psychosocial oncology. 36(5)
OBJECTIVES: To identify events during a child’s cancer trajectory when parents perceived their marriage/partnership to be most strengthened and/or challenged. RESEARCH APPROACH: Using a cross sectional qualitative design, participants completed a s
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::af7dd6490f7966139d88207494d8e3ff
https://pubmed.ncbi.nlm.nih.gov/30862312
https://pubmed.ncbi.nlm.nih.gov/30862312