Citizen Science in Biomedicine: Attitudes, Motivation, and Concerns of the General Public and Scientists in Latvia

Autor: Alise Svandere, Signe Mežinska, Jekaterina Kaleja, Normunds Kante, Raitis Peculis, Olesja Rogoza, Vita Rovite

Publikováno v: Social Sciences, Vol 12, Iss 11, p 620 (2023)

Citizen science is research carried out by citizens in cooperation with scientists based on scientifically developed methods. Citizen science makes science accessible to the public and promotes public trust. Since there is scarce evidence about attit

Externí odkaz: https://doaj.org/article/f3093446045e4e74b9b44eddf8564168

A practical checklist for return of results from genomic research in the European contex

Autor: Danya F. Vears, Nina Hallowell, Heidi Beate Bentzen, Bridget Ellul, Therese Haugdahl Nøst, Angeliki Kerasidou, Shona M. Kerr, Michaela Th. Mayrhofer, Signe Mežinska, Elizabeth Ormondroyd, Berge Solberg, Birgitte Wirum Sand, Isabelle Budin-Ljøsne

Publikováno v: European Journal of Human Genetics
Vears, D F, Hallowell, N, Bentzen, H B, Ellul, B, Nost, T H, Kerasidou, A, Kerr, S, Mayrhofer, M T, Mežinska, S, Ormondroyd, E, Solberg, B, Sand, B W & Budin-Ljøsne, I 2023, ' A practical checklist for return of results from genomic research in the European context ', European Journal of Human Genetics . https://doi.org/10.1038/s41431-023-01328-6

An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the General Data Protection Regulation (GDPR), and many legal

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9232ebb221b80efe1ce2ba9841493e4e
https://hdl.handle.net/11250/3065469

Health Humanities in Medicina: The Auxiliary Stance

Autor: Eugenijus Gefenas, Olaf Dammann, Signe Mežinska

Publikováno v: Medicina. 58:411

At the core of medicine is the idea to help fellow human beings by improving or even restoring their health [...]

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::23ddbd3e3e08111ddab1843b9656f645
https://doi.org/10.3390/medicina58030411

Citizen Science in Biomedicine: Attitudes, Motivation, and Concerns of the General Public and Scientists in Latvia.

Autor: Svandere, Alise¹ (AUTHOR) alise.svandere@gmail.com, Mežinska, Signe² (AUTHOR) signe.mezinska@lu.lv, Kaleja, Jekaterina¹ (AUTHOR) katrina.kaleja@gmail.com, Kante, Normunds¹ (AUTHOR) normunds.kante@biomed.lu.lv, Peculis, Raitis¹ (AUTHOR) raitis@biomed.lu.lv, Rogoza, Olesja¹ (AUTHOR) olesja.rogoza@biomed.lu.lv, Rovite, Vita¹ (AUTHOR) vita.rovite@biomed.lu.lv

Publikováno v: Social Sciences (2076-0760). Nov2023, Vol. 12 Issue 11, p620. 16p.

Post-identifiability in changing sociotechnological genomic data environments.

Autor: Akyüz, Kaya, Goisauf, Melanie, Chassang, Gauthier, Kozera, Łukasz, Mežinska, Signe, Tzortzatou-Nanopoulou, Olga, Mayrhofer, Michaela Th.

Publikováno v: BioSocieties; Jun2024, Vol. 19 Issue 2, p204-231, 28p