Preclinical Alzheimer Disease and the Electronic Health Record: Balancing Confidentiality and Care.

Autor: Gale SA; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center. sagale@bwh.harvard.edu., Heidebrink J; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Grill J; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Graff-Radford J; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Jicha GA; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Menard W; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Nowrangi M; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Sami S; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Sirivong S; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Walter S; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center., Karlawish J; From the Department of Neurology (S.A.G.), Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Neurology (J.H.), the University of Michigan, Ann Arbor, MI; Institute for Memory Impairments and Neurological Disorders (J.G., Shirley Sirivong), University of California Irvine; Department of Neurology (J.G.-R.), Mayo Clinic, Rochester, MN; Department of Neurology (G.A.J.), Sanders-Brown Center on Aging, University of Kentucky, Lexington; Memory and Aging Program (W.M.), Butler Hospital; Division of Geriatric Psychiatry and Neuropsychiatry (M.N.), Department of Psychiatry, Johns Hopkins University School of Medicine; Brain Health and Memory Center (Susie Sami), University Hospitals, Cleveland Medical Center; Alzheimer's Therapeutic Research Institute (S.W.), University of Southern California; and University of Pennsylvania (J.K.), Departments of Medicine, Medical Ethics and Health Policy, and Neurology, Penn Memory Center.

Publikováno v: Neurology [Neurology] 2022 Nov 29; Vol. 99 (22), pp. 987-994. Date of Electronic Publication: 2022 Sep 30.