Cross-sectional survey of parental barriers to participation in pediatric participant research registries.

Autor: Rebecca A Slotkowski, Shirley F Delair, Kari A Neemann

Publikováno v: PLoS ONE, Vol 17, Iss 5, p e0268553 (2022)

Research registries are a powerful tool for boosting recruitment into clinical trials. However, little is known about how parents approach the decision to enroll their child in a pediatric participant research registry (PPRR). We conducted in-person,

Externí odkaz: https://doaj.org/article/a22b090d0301430c9daeae688f310ccb

Contributors

Autor: Krishnendu Adhikary, Brenda Affinati, Amany M. Ahmed, Mahmoud Al Saadi, Alisar Alkutbi, Nizar A. Al-Shar’i, Waliza Ansar, Prachi Arora, Debasis Bagchi, Manashi Bagchi, Akshay M. Baheti, Vineet Baliga, Vishnu Bhat Ballambattu, Pradipta Banerjee, Priyanka Banerjee, Samudra Prosad Banik, Tejaswini Baral, Sanaa K. Bardaweel, Nicolas Barros, Pijush Basak, Bradford A. Becken, III, M. Bhagyalakshmi, Joyeeta Bhattacharya, Mohini Bhattacharya, Jhimli Bhattacharyya, Maitree Bhattacharyya, Ashmita Bhattacherjee, Karanam Sai Bhavya, Rinchen Doma Bhutia, Geetha Birudala, Ramadevi Birudala, Ayan Biswas, Nabendu Biswas, Sanchita Biswas, Shaoli Biswas, Pobitra Borah, Sayantan Bose, Fernando J. Bula Rudas, Subhendu Chakrabarty, Modhurima Chakraborti, Atreyee Chakraborty, Sanjoy Chakraborty, Shrabastee Chakraborty, Sudipta Chakraborty, S.B. Chandrasekar, Archana Chatterjee, Aritra Chatterjee, Gourab Chatterjee, Rituparna Chatterjee, Tanima Chatterjee, Rameshwar Nath Chaurasia, Bo-Kai Chen, Ashna Chettri, Hui-Fang Chiu, Antara Choudhury, Sailee Chowdhury, Sougata Roy Chowdhury, Courtney Collins, Elaine Colomb, M. Emilio Cuevas-Galindo, Amitava Das, Amlan Das, Arpita Das, Dibya Das, Mousumi Das, Pran Kishore Deb, Sujoy Deb, Anirban Debnath, Satyendra Deka, Shirley F. Delair, Alyssa Delia, Karishma Desai, S. Devaraja, Priyankar Dey, Karma Gurmey Dolma, Bernard William Downs, Jaclyn M. Downs, Lourdes Eguiguren, Mohamed S. El Masry, Elizabeth Estevez-Fregoso, Eunice D. Farfán-García, Zannatul Ferdous, Ramakrishnan Ganesan, Itzel H. García-Coronel, Jazmín García-Machorro, Roseline George, Nandini Ghosh, Rituparna Ghosh, Santanu Ghosh, Arunava Goswami, Karthik Gourishetti, Tanner Guith, Krishna Rao Gurugubelli, Dania Hassan, Sangeeta Hazarika, Vijay Hegde, Ashfaque Hossain, Sheikh Shah Hossain, Amanda L. Hurst, Anahita Jalilvand, Sasmita Jana, Junaid Jibran Jawed, Miguel Jorge, Sedat Kacar, Vikash Kansal, Nabanita Kar, Muhammad Manjurul Karim, Bidita Khandelwal, Ahmet Kilic, Prakash Koirala, Chandrashekhar Kubal, Abhai Kumar, Umesh Kumar, V. Kumar, Leena Kumari, Steve Kushner, Santiago M.C. Lopez, Maxima Madhu, Puja Maitra, Himangshu Sekhar Maji, Sushomasri Maji, Rajib Majumder, Labonya Mandal, Supriya Mandal, Bradford S. McGwire, Odete R. Mendes, Nagendra Babu Mennuru, Sonal Sekhar Miraj, Sutanuka Mitra, Jalal Moludi, Sandipan Mukherjee, Murali Munisamy, Krishna Murti, Monali NandyMazumdar, Masoud Nateqi, Kari A. Neemann, Andrew Nguyen, Aben Ovung, Kunal Pal, Anil T. Pawar, Prakash Narayanan Vasudevan Potty, Megha Rana, Mahadev Rao, Sayantan Ray, Jayati Ray Dutta, Zachary P. Rokop, Sashwati Roy, Brenda A. Rubio-Velazquez, Abinit Saha, Rudra P. Saha, Tiyas Saha, Saptadip Samanta, Saptarshi Sanyal, Dipayan Sarkar, Dipika Sarkar, Riya Sarkar, Alice I. Sato, Abhay R. Satoskar, Abhishek Kumar Sen, Chandan K. Sen, Pracheta Sengupta, Aditi Shah, Dikshya Sharma, Pottathil Shinu, H.N. Shivaprasad, B. Shrikar Reddy, Moumita Sil, Abhilasha Singh, Kanhaiya Singh, Manoj Kumar Singh, Smita Singh, Varun Kumar Singh, N.V.L. Sirisha Mulukuri, Jessica Smith, Marvin A. Soriano-Ursúa, Shruthi Srinivas, Shahnaz Sultana, Arindam Talukdar, Pranathi Tata, Levin Thomas, Jose G. Trujillo-Ferrara, Md. Hafiz Uddin, Muralidhar Varma, Meera Varman, Katharigatta N. Venugopala, Priyanka Verma, Shashidhar Vishwanath, Navya Vyas, Chin-Kun Wang, Jon Wisler, Nilesh Yadav

Publikováno v: Viral, Parasitic, Bacterial, and Fungal Infections ISBN: 9780323857307

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::ecd8c73fad05b244a5e78c37f99fe856
https://doi.org/10.1016/b978-0-323-85730-7.09993-8

Breastfeeding practices in Masaya, Nicaragua: a facility based cross-sectional study

Autor: Francisco J. Rodriguez, Aleisha M. Nabower, Elizabeth Lyden, Shirley F. Delair

Publikováno v: International Breastfeeding Journal, Vol 15, Iss 1, Pp 1-10 (2020)
International Breastfeeding Journal

Background The World Health Organization recommends exclusive breastfeeding for 6 months and total breastfeeding for at least 2 years. Despite this and multiple interventions promoting breastfeeding, early breastfeeding cessation remains high with li

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0e085b3e8fc50909136ca7e926b6460e
https://doi.org/10.1186/s13006-020-00273-0

Neonatal group B streptococcus disease in developing countries: are we ready to deploy a vaccine?

Autor: Pui Ying Iroh Tam, Stephen K. Obaro, Shirley F. Delair

Publikováno v: Expert review of vaccines. 14(11)

Group B streptococcus (GBS) disease is the leading cause of neonatal sepsis in developed countries and has high case fatality rates. In developing countries, however, the burden of GBS is less clear; this is due to a lack of studies using optimal dia

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f556ead0712b86fdb39903ec31797ce6
https://pubmed.ncbi.nlm.nih.gov/26289974

Cross-sectional survey of parental barriers to participation in pediatric participant research registries.

Autor: Slotkowski, Rebecca A.¹ (AUTHOR), Delair, Shirley F.² (AUTHOR), Neemann, Kari A.² (AUTHOR) kneemann@unmc.edu

Publikováno v: PLoS ONE. 5/18/2022, Vol. 17 Issue 5, p1-13. 13p.