Equitable Access to Disease-Modifying Therapies for Canadian Children with SMA and Four SMN2 Copies.

Autor: McMillan HJ; Children's Hospital of Eastern Ontario Research Institute, Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada., Gonorazky H; The Hospital for Sick Children, Department of Pediatrics, University of Toronto, Toronto, ON, Canada., Campbell C; Department of Pediatrics, Epidemiology and Clinical Neurological Sciences, Schulich School of Medicine, Children's Hospital Western Ontario, University of Western, London, ON, Canada., Chrestian N; Département de pédiatrie de l'Université Laval, Centre hospitalier Mère-Enfant-Soleil, Quebec, QC, Canada., Crone M; Cumming School of Medicine, Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada., Dowling JJ; The Hospital for Sick Children, Department of Pediatrics, University of Toronto, Toronto, ON, Canada., Joyal K; Department of Pediatrics, Health Sciences Centre, Winnipeg, MB, Canada.; Department of Pediatrics, Jim Pattison Children's Hospital, Saskatoon, SK, Canada., Kolski H; Department of Pediatrics, Stollery Children's Hospital and Glenrose Rehabilitation Hospital, University of Alberta, Edmonton, AB, Canada., Leung E; Department of Pediatrics, Health Sciences Centre, Winnipeg, MB, Canada., Mackenzie A; Children's Hospital of Eastern Ontario Research Institute, Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada., Mah JK; Cumming School of Medicine, Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada., McAdam L; Division of Developmental Pediatrics, Department of Pediatrics, Holland Bloorview Kids Rehabilitation Hospital, University of Toronto, Toronto, ON, Canada., Nigro E; The Hospital for Sick Children, Department of Pediatrics, University of Toronto, Toronto, ON, Canada., Nguyen CT; Département de pédiatrie de l'Université de Montréal, Centre hospitalier Universitaire Sainte-Justine, Montréal, QC, Canada., Oskoui M; Departments of Pediatrics and Department of Neurology and Neurosurgery, McGill University, Montréal, QC, Canada.; Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montréal, QC, Canada., Poulin C; Departments of Pediatrics and Department of Neurology and Neurosurgery, McGill University, Montréal, QC, Canada., Sheriko J; IWK Health, Department of Pediatrics and Medicine, Dalhousie University, Halifax, NS, Canada., Tarnopolsky M; McMaster Children's Hospital, McMaster University Medical Center, Hamilton, ON, Canada., Vajsar J; The Hospital for Sick Children, Department of Pediatrics, University of Toronto, Toronto, ON, Canada., Yaworski A; Children's Hospital of Eastern Ontario Research Institute, Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada., Selby K; Division of Neurology, Department of Pediatrics, BC Children's Hospital, University of British Columbia, Vancouver, BC, Canada.

Publikováno v: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques [Can J Neurol Sci] 2024 Nov 13, pp. 1-3. Date of Electronic Publication: 2024 Nov 13.

Uncovering the wider impact of COVID-19 measures on the lives of children with complex care needs and their families: A mixed-methods study protocol.

Autor: Curran JA; IWK Health Centre, Halifax, NS, Canada.; Department of Health, Dalhousie University, Halifax, NS, Canada., Lane J; IWK Health Centre, Halifax, NS, Canada.; Department of Health, Dalhousie University, Halifax, NS, Canada., McCulloch H; IWK Health Centre, Halifax, NS, Canada., Keeping-Burke L; Department of Nursing & Health Sciences, University of New Brunswick, Fredericton, NB, Canada., Johnson C; IWK Health Centre, Halifax, NS, Canada., Wong H; Department of Health, Dalhousie University, Halifax, NS, Canada., Cassidy C; Department of Health, Dalhousie University, Halifax, NS, Canada., McIsaac JL; Department of Child and Youth Study, Mount Saint Vincent University, Halifax, NS, Canada., Lamptey DL; Department of Child and Youth Study, Mount Saint Vincent University, Halifax, NS, Canada., Clegg J; IWK Health Centre, Halifax, NS, Canada., Forbes N; Department of Nursing & Health Sciences, University of New Brunswick, Fredericton, NB, Canada., Breneol S; Department of Health, Dalhousie University, Halifax, NS, Canada., Sheriko J; IWK Health Centre, Halifax, NS, Canada., Best S; IWK Health Centre, Halifax, NS, Canada., Burgess S; IWK Health Centre, Halifax, NS, Canada., Sinclair D; IWK Health Centre, Halifax, NS, Canada., Elliot Rose A; IWK Health Centre, Halifax, NS, Canada., Standing MA; Centre for Health and Community Research, University of Prince Edward Island, Charlottetown, PEI, Canada., Somerville M; IWK Health Centre, Halifax, NS, Canada., King S; IWK Health Centre, Halifax, NS, Canada., Doucet S; Department of Nursing & Health Sciences, University of New Brunswick, Fredericton, NB, Canada., Flieger H; Queen Elizabeth Hospital, Charlottetown, PEI, Canada., Lamb M; Nova Scotia Health Authority, Halifax, NS, Canada., Parsons Leigh J; Department of Health, Dalhousie University, Halifax, NS, Canada., Stewart D; Parent Partner, Canada.

Publikováno v: PloS one [PLoS One] 2024 Jul 08; Vol. 19 (7), pp. e0305543. Date of Electronic Publication: 2024 Jul 08 (Print Publication: 2024).

Subcutaneous Intrathecal Catheter and Port for Repetitive Nusinersen Administration.

Autor: Bokeris AA; Neurosurgery, Dalhousie University, Halifax, NS, Canada., Restrepo CE; Neurosurgery, Dalhousie University, Halifax, NS, Canada., Sheriko J; Pediatrics, Dalhousie University, Halifax, NS, Canada., McNeely PD; Division of Neurosurgery, IWK Health Centre, 5850 University Avenue, P.O. Box 9700, Halifax, NS, Canada.

Publikováno v: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques [Can J Neurol Sci] 2024 May; Vol. 51 (3), pp. 447-448. Date of Electronic Publication: 2023 Mar 27.

P195 The Canadian neuromuscular disease registry: a national Duchenne muscular dystrophy registry for post-marketing surveillance

Autor: Sheriko, J., Bourcier, D., Hodgkinson, V., Dyck, A., Worsfold, N., Osman, H., Bohne, L., Korngut, L.

Publikováno v: In Neuromuscular Disorders October 2023 33 Supplement 1:S143-S143

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