Zobrazeno 1 - 10 of 26 pro vyhledávání: '"Sharon Funk"'
1
Akademický článek
The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study
Autor: Jean St‐Louis, Audrey Abad, Sharon Funk, Merlyn Tilak, Stephen Classey, Nichan Zourikian, Paul McLaughlin, Sébastien Lobet, Grace Hernandez, Stacie Akins, Anna J. Wells, Marilyn Manco‐Johnson, Judy John, Steve Austin, Pratima Chowdary, Cedric Hermans, Diane Nugent, Nihal Bakeer, Sarah Mangles, Pamela Hilliard, Victor S. Blanchette, Brian M. Feldman
Publikováno v: Research and Practice in Thrombosis and Haemostasis, Vol 6, Iss 2, Pp n/a-n/a (2022)
Abstract Background The Hemophilia Joint Health Score (HJHS) was developed and validated to detect arthropathy in children. Additional evidence is required to show validity in adults. We studied the convergent and discriminant construct validity of t
Externí odkaz: https://doaj.org/article/f4479ec8bd0a4441be53af59cbaa01de
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2
Akademický článek
Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting
Autor: Nihal Bakeer, Saunya Dover, Paul Babyn, Brian M. Feldman, Annette vonDrygalski, Andrea S. Doria, Danial M. Ignas, Audrey Abad, Cindy Bailey, Ian Beggs, Eric Y. Chang, Amy Dunn, Sharon Funk, Sridhar Gibikote, Nicholas Goddard, Pamela Hilliard, Shyamkumar N. Keshava, Rebecca Kruse‐Jarres, Yingjia Li, Sébastien Lobet, Marilyn Manco‐Johnson, Carlo Martinoli, James S. O’Donnell, Olympia Papakonstantinou, Helen Pergantou, Pradeep Poonnoose, Felipe Querol, Alok Srivastava, Bruno Steiner, Karen Strike, Merel Timmer, Pascal N. Tyrrell, Logi Vidarsson, Victor S. Blanchette
Publikováno v: Research and Practice in Thrombosis and Haemostasis, Vol 5, Iss 5, Pp n/a-n/a (2021)
Abstract Introduction For persons with hemophilia, optimization of joint outcomes is an important unmet need. The aim of this initiative was to determine use of ultrasound in evaluating arthropathy in persons with hemophilia, and to move toward conse
Externí odkaz: https://doaj.org/article/aac29a5b584c48edaacdc074325faf1a
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4
Outcome measures in Haemophilia: Beyond ABR (Annualized Bleeding Rate)
Autor: Beth Boulden Warren, Tyler W. Buckner, Marilyn J. Manco-Johnson, Sharon Funk, Michael Wang
Publikováno v: Haemophilia. 27:87-95
Options for management of haemophilia are increasing rapidly with completely novel therapeutic approaches that cannot be compared using traditional factor assays. In addition, as prophylaxis regimens have improved, bleeding rates have decreased, and
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c205a11603744f0cf4ded08735618c07
https://doi.org/10.1111/hae.14099
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5
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion
Autor: Ruth Elise D Matlary, Jean St-Louis, Pradeep M. Poonnoose, P. Hilliard, Piet de Kleijn, Leo A. van Vlimmeren, Isolde A R Kuijlaars, Sylvia Thomas, Janjaap van der Net, Christine L. Kempton, Krista Fischer, Judy Ann John, Sharon Funk, Pia Petrini, Wypke de Boer, Marilyn J. Manco-Johnson, Magnus Aspdahl, Brian M. Feldman, Sonata Saulyte Trakymiene, Rubén Cuesta-Barriuso, Merel A. Timmer, Melanie Bladen
Publikováno v: ABACUS. Repositorio de Producción Científica
Universidad Europea (UEM)
Haemophilia, Hoboken : Wiley, 2020, vol. 26, iss. 6, p. 1072-1080
Haemophilia, 26, 1072-1080
Haemophilia, 26, 6, pp. 1072-1080
Haemophilia
Haemophilia, 26(6), 1072-1080. Wiley-Blackwell
Introduction: The Hemophilia Joint Health Score (HJHS) was developed to detect early changes in joint health in children and adolescents with haemophilia. The HJHS is considered by some to be too time consuming for clinical use and this may limit bro
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::07275c8125778bf6a5b9c37da1edeba7
http://www.scopus.com/inward/record.url?scp=85092482524&partnerID=8YFLogxK
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6
Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study
Autor: Heidi Lane, Kristi L. Norton, Amy L. Dunn, Beth Boulden Warren, Carolyn M. Bennett, Michael Fadell, Sharon Funk, Marilyn J. Manco-Johnson, J. David Ingram, Dianne Thornhill, Amy D. Shapiro, Michael Recht, Jill Stein
Publikováno v: Blood Adv
The Joint Outcome Study (JOS), a randomized controlled trial, demonstrated that children with severe hemophilia A (HA) initiating prophylactic factor VIII (FVIII) prior to age 2.5 years had reduced joint damage at age 6 years compared with those trea
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::55a65db6e88ff8f3367f78ac13a937e1
https://doi.org/10.1182/bloodadvances.2019001311
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7
Validity and reliability of the Colorado Adult Joint Assessment Scale in adults with moderate‐severe hemophilia A
Autor: Olga Moshkovich, Dianne Thornhill, Brittany Gentile, Nikki Church, Sharon Funk, Marilyn J. Manco-Johnson, Sylvia Engelen, Katy Benjamin, Walter Hong
Publikováno v: Journal of Thrombosis and Haemostasis
Background The Colorado Adult Joint Assessment Scale (CAJAS) is designed to assess joint health in adults with hemophilia. The CAJAS comprises nine items (swelling, muscle atrophy, axial deformity, crepitus, range of motion, contracture, instability,
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::31c1d2ad75266cd30f0d7cae83e778ac
https://doi.org/10.1111/jth.14651
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8
Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting
Autor: Pascal N. Tyrrell, Sébastien Lobet, Shyamkumar N. Keshava, James S. O’Donnell, Andrea S. Doria, Nicholas J. Goddard, Paul Babyn, Karen Strike, Pradeep M. Poonnoose, Annette von Drygalski, Ian Beggs, Helen Pergantou, Sridhar Gibikote, Felipe Querol, Ying-Jia Li, Eric Y. Chang, Marilyn J. Manco-Johnson, Brian M. Feldman, Logi Vidarsson, Alok Srivastava, P. Hilliard, Olympia Papakonstantinou, Nihal Bakeer, Victor S. Blanchette, Rebecca Kruse-Jarres, Cindy Bailey, Audrey Abad, Sharon Funk, Saunya Dover, Amy L. Dunn, Danial M Ignas, Bruno Steiner, Merel A. Timmer, Carlo Martinoli
Publikováno v: Research and Practice in Thrombosis and Haemostasis, Vol 5, Iss 5, Pp n/a-n/a (2021)
Research and practice in thrombosis and haemostasis, Vol. 5, no. 5, p. e12531 [1-11] (2021)
Research And Practice In Thrombosis And Haemostasis
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
instname
Research and Practice in Thrombosis and Haemostasis
Introduction For persons with hemophilia, optimization of joint outcomes is an important unmet need. The aim of this initiative was to determine use of ultrasound in evaluating arthropathy in persons with hemophilia, and to move toward consensus amon
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a8c3961bb75858fa89b9a99510c11578
https://doaj.org/article/aac29a5b584c48edaacdc074325faf1a
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9
Improvements in Communication and Coordination of Care in a Hemophilia Treatment Center
Autor: Michael Wang, Rick Shearer, Elizabeth Gibson, Tyler W. Buckner, Christine Mashburn, Genevieve Moyer, Christopher J. Ng, Amy Cowell, Nancy Spomer, Beth Boulden Warren, Brian R. Branchford, Audra Leblanc, Marilyn J. Manco-Johnson, Sharon Funk
Publikováno v: Acta haematologica. 144(6)
Introduction: In response to the increasing complexity of care for patients with bleeding disorders, we established new clinical teams for our hemophilia treatment center (HTC). Aims: We undertook a quality improvement project to improve the coordina
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9fb3624670179daab7dc0ac7837247e8
https://pubmed.ncbi.nlm.nih.gov/33915533
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