The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study

Autor: Hoefnagels JW, Kars MC, Fischer K, Schutgens REG, Schrijvers LH

Publikováno v: Patient Preference and Adherence, Vol Volume 14, Pp 163-171 (2020)

JW Hoefnagels,1 MC Kars,2 K Fischer,1 REG Schutgens,1 LH Schrijvers1,3 1Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands; 2Department of General Practice, Julius Center for Health Sciences and Primary Care, University M

Externí odkaz: https://doaj.org/article/de2ccae6fc0342878ae9b146c29866b1

Adherence to prophylaxis and its association with activation of self-management and treatment satisfaction.

Autor: Hoefnagels JW; Van Creveldkliniek, University Medical Center Utrecht, University Utrecht, Utrecht, the Netherlands., Schrijvers LH; Van Creveldkliniek, University Medical Center Utrecht, University Utrecht, Utrecht, the Netherlands.; Institute of Nursing Studies, Utrecht University of applied sciences, Utrecht, the Netherlands., Leebeek FWG; Department of Paediatric Haematology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands., Eikenboom J; Department of Internal Medicine, Division of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands., Schols SEM; Department of Haematology, Radboud University Medical Center, Nijmegen, the Netherlands.; Hemophilia Treatment Center Nijmegen, Eindhoven, the Netherlands., Smit C; Department of Internal Medicine, Division of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands., Schutgens REG; Van Creveldkliniek, University Medical Center Utrecht, University Utrecht, Utrecht, the Netherlands., Gouw SC; Department of Haematology, Erasmus MC, University Medical Center, Rotterdam, the Netherlands., Fischer K; Van Creveldkliniek, University Medical Center Utrecht, University Utrecht, Utrecht, the Netherlands.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Jul; Vol. 27 (4), pp. 581-590. Date of Electronic Publication: 2021 May 21.

Sports participation is not associated with adherence to prophylaxis in Dutch patients with haemophilia.

Autor: Hoefnagels JW; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands., Versloot O; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands., Schrijvers LH; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands.; Nursing Department, Utrecht University of Applied Sciences, Utrecht, The Netherlands., van der Net J; Center for Child Development, Exercise and Physical Literacy, University Children's Hospital, UMC Utrecht, Utrecht, The Netherlands., Leebeek FWG; Department of Hematology, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands., Gouw SC; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Fischer K; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 May; Vol. 27 (3), pp. e402-e405. Date of Electronic Publication: 2021 Feb 08.

Adherence to prophylaxis and bleeding in children: Significant drop during puberty but no correlation with bleeding.

Autor: Hoefnagels JW; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands., Schrijvers LH; Institute for Nursing Studies, University of Applied Science, Utrecht, The Netherlands., Fischer K; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, The Netherlands.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2020 Sep; Vol. 26 (5), pp. e240-e243. Date of Electronic Publication: 2020 Jun 01.

Promoting self-management and adherence during prophylaxis: evidence-based recommendations for haemophilia professionals.

Autor: Schrijvers LH; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands., Schuurmans MJ; Nursing Science, Faculty of Health Care, University of Applied Science, Utrecht, the Netherlands.; Nursing Science, University Medical Center Utrecht, Utrecht, the Netherlands., Fischer K; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands.; Julius Centre for Health Sciences and Primary Care, University Medical Center, Utrecht, The Netherlands.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2016 Jul; Vol. 22 (4), pp. 499-506. Date of Electronic Publication: 2016 Apr 14.