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Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods : A White Paper from the European Association of Palliative Care (EAPC)

Autor: Tuffrey-Wijne, I, McLaughlin, D, Curfs, L, Dusart, A, Hoenger, C, McEnhill, L, Read, S, Ryan, K, Satge, D, Strasser, B, Westergard, B, Oliver, D

This White Paper presents the first guidance for clinical practice, policy and research related to palliative care for people with intellectual disabilities based on evidence and European consensus, setting a benchmark for changes in policy and pract

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=core_ac_uk__::ac0336ae0a11efe0be118ae03b5537d9
https://eprints.kingston.ac.uk/id/eprint/32223/3/Tuffrey-Wijne-I-32223-VoR.pdf

A lack of neuroblastoma in Down syndrome: a study from 11 European countries

Autor: Satge, D., Sasco, Aj, Carlsen, Nlt, Stiller, Ca, Rubie, H., Hero, B., Bernardi, B., Kraker, J., Coze, C., Per Kogner, Langmark, F., Hakvoort-Cammel, Fgaj, Beck, D., Weid, N., Parkes, S., Hartmann, O., Lippens, Rjj, Kamps, Wa, Sommelet, D.

Publikováno v: Cancer research, 58(3), 448-452. American Association for Cancer Research Inc.
Cancer Research, 58, 448-452. American Association for Cancer Research Inc.
Cancer Research, 58, 448-452
Cancer Research, 58(3), 448-452. AMER ASSOC CANCER RESEARCH
Cancer Research, 58, pp. 448-452
Karolinska Institutet

An epidemiological investigation in 11 European countries comprising a total childhood population of 54.1 million children and using 8 separate data sources was conducted to evaluate the occurrence of neuroblastoma in Down syndrome (DS). No cases of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::f31dc6ae7e789afde4748ff26ca4c604
https://pure.amc.nl/en/publications/a-lack-of-neuroblastoma-in-down-syndrome-a-study-from-11-european-countries(03d7e579-79ef-4384-b5d5-d121d11ae834).html