Comparing three approaches for involving patients in research prioritization: a qualitative study of participant experiences

Autor: Danielle C. Lavallee, Sarah O. Lawrence, Andrew L. Avins, David R. Nerenz, Todd C. Edwards, Donald L. Patrick, Zoya Bauer, Anjali R. Truitt, Sarah E. Monsell, Mary R. Scott, Jeffrey G. Jarvik

Publikováno v: Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-16 (2020)

Abstract Background By participating in priority-setting activities in research, patients and members of the public help ensure that important questions are incorporated into future research agendas. Surveys, focus groups, and online crowdsourcing ar

Externí odkaz: https://doaj.org/article/e6e5a4402bfc4c5cad54a9a7ed024728

Aortic dissection in pregnancy and the postpartum period

Autor: Melissa Russo, Mattie Boehler-Tatman, Catherine Albright, Carmen David, L'Oreal Kennedy, Aaron W. Roberts, Sherene Shalhub, Rana Afifi, Melanie Case, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Jake Howitt, Timo T. Söderlund, Debra Trotter, Asaf Rabin, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Maisoon D. Yousif, Tabea Hoffstaetter, Ella Taubenfeld, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Robert C.F. Pena, Firas F. Mussa, Gretchen MacCarrick, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Xiaoyi Teng, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Mario D'Oria, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, JeniannA. Yi, Kim A. Eagle, Marion A. Hofmann Bowman, Eva Kline-Rogers MS, Hyein Kim, Claudine Henoud, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Myra Ahmad, Catherine M. Albright, Christopher R. Burke, Peter H. Byers, Sarah O. Lawrence, Jenney R. Lee, Jonathan Medina, Thamanna Nishath, Julie Pham, Courtney Segal, Michael Soto, Linell Catalan, Megan Patterson, Nicole Ilonzo

Publikováno v: Seminars in Vascular Surgery. 35:60-68

Pregnancy-associated aortic dissection (AD) is a rare event, with an incidence of 0.0004% per pregnancy. The work of the Aortic Dissection Collaborative identified pregnancy-associated AD as a high-priority topic, despite its rarity. The Pregnancy Wo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::70e3a5d8ff0a0d7f6db16fa03328aaae
https://doi.org/10.1053/j.semvascsurg.2022.02.010

The mental health impact of aortic dissection

Autor: Nicole Ilonzo, Ella Taubenfeld, Maisoon D. Yousif, Claudine Henoud, Jake Howitt, Max Wohlauer, Mario D'Oria, Gretchen MacCarrick, Melanie Case, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Timo T. Söderlund, Debra Trotter, Asaf Rabin, Mattie Boehler-Tatman, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Tabea Hoffstaetter, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Robert C.F. Pena, Firas F. Mussa, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Xiaoyi Teng, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, JeniannA. Yi, Kim A. Eagle, Marion A. Hofmann Bowman, Eva Kline-Rogers MS, Hyein Kim, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Aaron W. Roberts, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Myra Ahmad, Catherine M. Albright, Christopher R. Burke, Peter H. Byers, L'Oreal Kennedy, Sarah O. Lawrence, Jenney R. Lee, Jonathan Medina, Thamanna Nishath, Julie Pham, Courtney Segal, Sherene Shalhub, Michael Soto, Linell Catalan, Megan Patterson

Publikováno v: Seminars in Vascular Surgery. 35:88-99

Although the topics of surgical techniques and medical therapies have been widely studied in aortic dissection (AD), studies examining the short- and long-term impact of this event on mental health are largely lacking. Many of the studies have used t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f5bad9580733d66053e994c3b3169bd1
https://doi.org/10.1053/j.semvascsurg.2022.02.005

The Aortic Dissection Collaborative: Methods for building capacity for patient-centered outcomes research in the aortic dissection community

Autor: Jenney R. Lee, Sarah O. Lawrence, Michael Soto, Melanie Case, Novelett Cotter, Jake Howitt, Timo Soderlund, Debra Trotter, Peter H. Byers, Sherene Shalhub, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Timo T. Söderlund, Asaf Rabin, Mattie Boehler-Tatman, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Maisoon D. Yousif, Tabea Hoffstaetter, Ella Taubenfeld, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Robert C.F. Pena, Firas F. Mussa, Gretchen MacCarrick, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Xiaoyi Teng, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Mario D'Oria, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, Jeniann A. Yi, Kim A. Eagle, Marion A. Hofmann Bowman, Eva Kline-Rogers, Hyein Kim, Claudine Henoud, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Aaron W. Roberts, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Myra Ahmad, Catherine M. Albright, Christopher R. Burke, L'Oreal Kennedy, Jonathan Medina, Thamanna Nishath, Julie Pham, Courtney Segal, Linell Catalan, Megan Patterson, Nicole Ilonzo

Publikováno v: Seminars in Vascular Surgery. 35:9-15

Understanding what matters most to patients can help guide research in a direction that is best situated to provide evidence that is responsive to their core concerns. This can better inform the treatment decision-making process for patients and thei

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e144d69027a7cfd5979bea998d1436f7
https://doi.org/10.1053/j.semvascsurg.2022.02.004

Perception of Treatment Success and Impact on Function with Antibiotics or Appendectomy for Appendicitis: A Randomized Clinical Trial with an Observational Cohort

Autor: Callie M, Thompson, Emily C, Voldal, Giana H, Davidson, Sabrina E, Sanchez, Patricia, Ayoung-Chee, Jesse, Victory, Mary, Guiden, Bonnie, Bizzell, Jacob, Glaser, Christopher, Hults, Thea P, Price, Nicole, Siparsky, Kristin, Ohe, Katherine A, Mandell, Daniel A, DeUgarte, Amy H, Kaji, Lisandra, Uribe, Lillian S, Kao, Krislynn M, Mueck, Farhood, Farjah, Wesley H, Self, Sunday, Clark, F Thurston, Drake, Katherine, Fischkoff, Elizaveta, Minko, Joseph, Cuschieri, Brett, Faine, Dionne A, Skeete, Naila, Dhanani, Mike K, Liang, Anusha, Krishnadasan, David A, Talan, Erin, Fannon, Larry G, Kessler, Bryan A, Comstock, Patrick J, Heagerty, Sarah E, Monsell, Sarah O, Lawrence, David R, Flum, Danielle C, Lavallee

Publikováno v: Annals of surgery.

To compare secondary patient reported outcomes of perceptions of treatment success and function for patients treated for appendicitis with appendectomy vs. antibiotics at 30 days.The Comparison of Outcomes of antibiotic Drugs and Appendectomy trial f

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::7e5a6dda5c895de6dc15ca6033e554ed
https://pubmed.ncbi.nlm.nih.gov/35815898