Defining key outcomes to evaluate performance of newborn screening programmes for cystic fibrosis

Autor: Jürg Barben, Nataliya Kashirskaya, Anne Munck, Kevin W Southern, Olaf Sommerburg, Barry Linnane, Dorota Sands, Silvia Gartner, Sarah Mayell, Marijke Proesmans, Carlo Castellani, Karin M. de Winter-de Groot

Publikováno v: Journal of Cystic Fibrosis. 20:820-823

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::be3744aa8038e94a0c71c0dd897a97a5
https://doi.org/10.1016/j.jcf.2021.02.006

Clinical features and management of human monkeypox: a retrospective observational study in the UK

Autor: Hugh Adler, Susan Gould, Paul Hine, Luke B Snell, Waison Wong, Catherine F Houlihan, Jane C Osborne, Tommy Rampling, Mike BJ Beadsworth, Christopher JA Duncan, Jake Dunning, Tom E Fletcher, Ewan R Hunter, Michael Jacobs, Saye H Khoo, William Newsholme, David Porter, Robert J Porter, Libuše Ratcliffe, Matthias L Schmid, Malcolm G Semple, Anne J Tunbridge, Tom Wingfield, Nicholas M Price, Mike Abouyannis, Asma Al-Balushi, Stephen Aston, Robert Ball, Nicholas J Beeching, Thomas J Blanchard, Ffion Carlin, Geraint Davies, Angela Gillespie, Scott R Hicks, Marie-Claire Hoyle, Chinenye Ilozue, Luke Mair, Suzanne Marshall, Anne Neary, Emmanuel Nsutebu, Samantha Parker, Hannah Ryan, Lance Turtle, Chris Smith, Jon van Aartsen, Naomi F Walker, Stephen Woolley, Anu Chawla, Ian Hart, Anna Smielewska, Elizabeth Joekes, Cathryn Benson, Cheryl Brindley, Urmi Das, Chin K Eyton-Chong, Claire Gnanalingham, Clare Halfhide, Beatriz Larru, Sarah Mayell, Joanna McBride, Claire Oliver, Princy Paul, Andrew Riordan, Lekha Sridhar, Megan Storey, Audrey Abdul, Jennifer Abrahamsen, Breda Athan, Sanjay Bhagani, Colin S Brown, Oliver Carpenter, Ian Cropley, Kerrie Frost, Susan Hopkins, Jessica Joyce, Lucy Lamb, Adrian Lyons, Tabitha Mahungu, Stephen Mepham, Edina Mukwaira, Alison Rodger, Caroline Taylor, Simon Warren, Alan Williams, Debbie Levitt, Denise Allen, Jill Dixon, Adam Evans, Pauline McNicholas, Brendan Payne, D Ashley Price, Uli Schwab, Allison Sykes, Yusri Taha, Margaret Ward, Marieke Emonts, Stephen Owens, Alina Botgros, Sam T Douthwaite, Anna Goodman, Akish Luintel, Eithne MacMahon, Gaia Nebbia, Geraldine O'Hara, Joseph Parsons, Ashwin Sen, Daniel Stevenson, Tadgh Sullivan, Usman Taj, Claire van Nipsen tot Pannerden, Helen Winslow, Ewa Zatyka, Ekene Alozie-Otuka, Csaba Beviz, Yusupha Ceesay, Latchmin Gargee, Morloh Kabia, Hannah Mitchell, Shona Perkins, Mingaile Sasson, Kamal Sehmbey, Federico Tabios, Neil Wigglesworth, Emma J Aarons, Tim Brooks, Matthew Dryden, Jenna Furneaux, Barry Gibney, Jennifer Small, Elizabeth Truelove, Clare E Warrell, Richard Firth, Gemma Hobson, Christopher Johnson, Alison Dewynter, Sebastian Nixon, Oliver Spence, Joachim J Bugert, Dennis E Hruby

Background Cases of human monkeypox are rarely seen outside of west and central Africa. There are few data regarding viral kinetics or the duration of viral shedding and no licensed treatments. Two oral drugs, brincidofovir and tecovirimat, have been

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d9e287fd12f14777099c17c4a2cd3957
https://ora.ox.ac.uk/objects/uuid:b4702035-0ad4-4de0-a058-16fc519f15ab

Structured surveillance of Achromobacter, Pandoraea and Ralstonia species from patients in England with cystic fibrosis

Autor: David J. Waine, Nick Withers, James Cargill, Cressida Auckland, Malcolm Armstrong, Andrew M. Jones, Heather Green, Ian C. J. W. Bowler, T. G. Winstanley, William George Flight, Amy Coward, Neil Woodford, Sarah Mayell, Natasha Tucker, Carolyne Horner, Graeme Jones, Jeorge Orendi, D. Kenna, Audrey Perry, Andrew Jones, Michelle Graver, Mary P. Carroll, Jane F. Turton, Phillipa Burns, A. Robb

Publikováno v: Journal of Cystic Fibrosis. 19:388-393

A structured survey of the cystic fibrosis pathogens Achromobacter, Pandoraea and Ralstonia species from thirteen sentinel hospitals throughout England was undertaken by Public Health England. One isolate per patient of these genera collected from CF

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3ec74b3c78ea6f0a4ef9f980bdeabec1
https://doi.org/10.1016/j.jcf.2019.11.005

Pulmonary lymphangiectasia

Autor: Andrew Bush, Sarah Mayell, Rishi Pabary

Publikováno v: Respiratory Diseases of the Newborn Infant ISBN: 9781849841368

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::a63cc13d610b9b3157a3843a537a9eb4
https://doi.org/10.1183/2312508x.10014420

Child poverty, food insecurity, and respiratory health during the COVID-19 pandemic

Autor: Marcus Auth, Davara Bennett, Rachel Harwood, Ian Sinha, Francis J Gilchrist, Louisa McGeehan, Justus Simba, Elissa M. Abrams, Alice R Lee, Sarah Mayell, Daniel B Hawcutt, David Taylor-Robinson

Publikováno v: The Lancet Respiratory Medicine
The Lancet. Respiratory Medicine
LANCET RESPIRATORY MEDICINE

The eradication of poverty and hunger are the top sustainable development goals, adopted by UN Member States in 2015. Yet the World Food Programme estimates that, in the wake of the COVID-19 pandemic, acute food insecurity could double from 135 to 26

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5e4300e73d8f60283b92bc69ec19191c