Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Sarah Johaningsmeir"'
Publikováno v:
Pediatric Annals. 49
The role of patients and families has evolved over the years, from being viewed as entities who were told what to do, to consumers of health services, to being central to health system design and clinical decision-making. When designing health care p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f15e0ca099248aa8113945f292e6492e
https://doi.org/10.3928/19382359-20201012-01
https://doi.org/10.3928/19382359-20201012-01
Autor:
Paulina S. Lim, Julia Tager, Charles B. Rothschild, Matthew C. Scanlon, K. Jane Lee, Sarah Johaningsmeir, Jeffrey S. Karst, Kristin K. Magner, Kathryn A. Balistreri, Jessica Lander, Nina G. Linneman, Kathleen Murkowski, W. Hobart Davies
Publikováno v:
Pediatrics. 147:523-524
Background/Purpose. During hospitalization in the pediatric intensive care unit (PICU), approximately 25-60% of parents experience clinical levels of distress (i.e., traumatic stress, anxiety, and depressed mood), which likely impacts their decision-
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d3ec5ec16677b16ca42b1fec20dfc4f9
https://doi.org/10.1542/peds.147.3ma5.523
https://doi.org/10.1542/peds.147.3ma5.523
Autor:
Carmen Gomez Mandic, John B. Gordon, Alison Earle, Timothy E Corden, Sarah Johaningsmeir, Dolores Acevedo-Garcia
Publikováno v:
Community, Work & Family. 20:444-458
Objectives: This study examined parental care of children with medical complexity (CMC) in terms of time spent providing care and impacts on employment and career.Methods: We recruited caregivers of 153 CMC in a tertiary center complex care program t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2a4627a72eed3cb734fb0cff086b0b93
https://doi.org/10.1080/13668803.2016.1202195
https://doi.org/10.1080/13668803.2016.1202195
Autor:
John B. Gordon, Pippa Simpson, Mary L. Krauthoefer, Holly Colby, Sarah Johaningsmeir, Simone C. O. Conceição
Publikováno v:
Journal of Pediatric Rehabilitation Medicine. 8:75-82
Purpose This study examined the impact of caring for children with medical complexity (CMC) and high resource use on family quality of life (QoL). Methods Families of CMC enrolled in a complex care program completed the PedsQL Family Impact module (P
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7c435f187209d3fac100cb5ee3cc4df8
https://doi.org/10.3233/prm-150321
https://doi.org/10.3233/prm-150321
Publikováno v:
Pediatric cardiology. 38(5)
Congenital heart disease (CHD) is often associated with chronic extracardiac co-morbid conditions (ECC). The presence of ECC has been associated with greater resource utilization during the operative period; however, the impact beyond hospital discha
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b0afe332f2f0a5996a54167f01a2f10d
https://pubmed.ncbi.nlm.nih.gov/28456828
https://pubmed.ncbi.nlm.nih.gov/28456828
Publikováno v:
Adult Learning. 25:151-159
This article describes an initiative to train lay people, predominantly parents of children and youth with special health care needs (CYSHCN), to teach Bridge to Independence—a care coordination curriculum—to other family caregivers of CYSHCN. Us
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::04735409e2ede8eceefb349758df7035
https://doi.org/10.1177/1045159514546216
https://doi.org/10.1177/1045159514546216
Publikováno v:
New Directions for Adult and Continuing Education. 2011:17-27
This chapter describes a collaborative design model for developing curriculum for family caregivers of children with special health care needs. The curriculum focuses on access to information and seamless care for children, with the ultimate goal of
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::4ede56c45a7cd885af0082234696ed6f
https://doi.org/10.1002/ace.407
https://doi.org/10.1002/ace.407
Autor:
Dennis Z. Kuo, Jay G. Berry, Sarah Johaningsmeir, Laurie Glader, John B. Gordon, Melinda J. Morin
Publikováno v:
The Journal of pediatrics. 169
Objective To describe family-reported health service needs of children with medical complexity (CMC) and to assess which needs are more often addressed in a tertiary care center-based structured clinical program for CMC. Study design Mailed survey to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6072f539d5449483afbdd7e8bab23ca9
https://pubmed.ncbi.nlm.nih.gov/26681472
https://pubmed.ncbi.nlm.nih.gov/26681472