Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project

Autor: Victoria J Palmer, David A Copland, Kathryn Mainstone, Kent Druery, Julia Druery, Bruce Aisthorpe, Geoffrey Binge, Penelope Mainstone, Sarah J Wallace, Lisa N Anemaat, Bridget Burton

Publikováno v: BMJ Open, Vol 14, Iss 5 (2024)

Objective People with post-stroke aphasia (language/communication impairment) and their supporters report mixed satisfaction with stroke and aphasia care. To date, however, their journey of care and the key service interactions that shape their exper

Externí odkaz: https://doaj.org/article/c3ca227e518e49ac8c1f57f1ac3674d0

Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study

Autor: Monique F Kilkenny, Joosup Kim, Dominique A Cadilhac, Deborah Hersh, Erin Godecke, David A Copland, Kathryn Mainstone, Penelope Mainstone, Sarah J Wallace, Miranda L Rose, Sam Harvey, Marissa Stone, Sally Zingelman, Muideen T Olaiya, Caterina Breitenstein, Kirstine Shrubsole, Robyn O’Halloran, Annie J Hill, Carolyn A Unsworth, Emily Brogan, Kylie J Short, Clare L Burns, Caroline Baker

Publikováno v: BMJ Open, Vol 14, Iss 3 (2024)

Introduction People with aphasia following stroke experience disproportionally poor outcomes, yet there is no comprehensive approach to measuring the quality of aphasia services. The Meaningful Evaluation of Aphasia SeRvicES (MEASuRES) minimum datase

Externí odkaz: https://doaj.org/article/d6fb30a0eb2e4102ad5dbe78713b60d5

Using experience-based codesign to coproduce aphasia rehabilitation services: study protocol

Autor: Victoria J Palmer, Lisa Anemaat, David A Copland, Kathryn Mainstone, Kent Druery, Julia Druery, Bruce Aisthorpe, Geoffrey Binge, Penelope Mainstone, Sarah J Wallace

Publikováno v: BMJ Open, Vol 11, Iss 11 (2021)

Introduction Aphasia is an impairment of language that occurs in 30%–40% of stroke survivors. This often chronic condition results in poor outcomes for the individual with aphasia and their family. Long-term aphasia management is limited, with few

Externí odkaz: https://doaj.org/article/0baa8bd780744dae81016e2bcccb4d73

Establishing reporting standards for participant characteristics in post-stroke aphasia research: An international e-Delphi exercise and consensus meeting

Autor: Sarah J Wallace, Megan Isaacs, Myzoon Ali, Marian C Brady

Publikováno v: Clinical Rehabilitation. 37:199-214

Objective To establish international, multidisciplinary expert consensus on minimum participant characteristic reporting standards in aphasia research (DESCRIBE project). Methods An international, three-round e-Delphi exercise and consensus meeting,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c6477e6dc795f391984e90ec0a8cb1e
https://doi.org/10.1177/02692155221131241

Protocol for the development of the international population registry for aphasia after stroke (I-PRAISE)

Autor: Erin Godecke, R. Mc Menamin, M. Gil, Linda Williams, A. Lifshitz Ben Basat, Madeline Cruice, C. Mendez-Orellana, Karen Sage, Sarah J. Wallace, İlknur Maviş, K. Sprecht, Marialuisa Gandolfi, Per Östberg, Dominique A Cadilhac, L. Martinez Jiminez, H. Robson, Ann Charlotte Laska, M. Blom Johansson, R. Grima, M. van de Sandt-Koenderman, Luis M. T. Jesus, Evy Visch-Brink, Fofi Constantinidou, Marian C. Brady, Guadalupe Dávila, Tarja Kukkonen, H. Obrig, Caterina Breitenstein, Maria Kambanaros, Myzoon Ali, Marcelo L. Berthier, E. Wehling, S. Wielaert

Publikováno v: Aphasiology
Aphasiology, 36(4), 534-554. Taylor & Francis Ltd
Ali, M, Ben Basat, A L, Berthier, M, Blom Johansson, M, Breitenstein, C, Cadilhac, D A, Constantinidou, F, Cruice, M, Davila, G, Gandolfi, M, Gil, M, Grima, R, Godecke, E, Jesus, L, Jiminez, L M, Kambanaros, M, Kukkonen, T, Laska, A, Mavis, I, Mc Menamin, R, Mendez-orellana, C, Obrig, H, Ostberg, P, Robson, H, Sage, K, Van De Sandt-koenderman, M, Sprecht, K, Visch-brink, E, Wehling, E, Wielaert, S, Wallace, S J, Williams, L J & Brady, M C 2021, ' Protocol for the development of the international population registry for aphasia after stroke (I-PRAISE) ', Aphasiology, pp. 1-21 . https://doi.org/10.1080/02687038.2021.1914813

Background We require high-quality information on the current burden, the types of therapy and resources available, methods of delivery, care pathways and long-term outcomes for people with aphasia. Aim To document and inform international delivery o

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::aee867c72e0ba6d6549ff9f2f0237fa8
https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=eur_pure&SrcAuth=WosAPI&KeyUT=WOS:000667093200001&DestLinkType=FullRecord&DestApp=WOS