Zobrazeno 1 - 10
of 38
pro vyhledávání: '"Sarah A. Sobotka"'
Autor:
Zoe Maria Dominique Reyes, Emma Lynch, Julia Henry, Lenika Marina De Simone, Sarah A. Sobotka
Publikováno v:
BMC Medical Genomics, Vol 16, Iss 1, Pp 1-6 (2023)
Abstract Background Tyrosine hydroxylase deficiency (THD) is a rare movement disorder with broad phenotypic expression caused by bi-allelic mutations in the TH gene, which encode for tyrosine hydroxylase (TH) protein. Some patients with THD have impr
Externí odkaz:
https://doaj.org/article/764bac43ed6746b6b1524a0f2e73df9c
Autor:
Julia A. Heneghan, Sarah A. Sobotka, Madhura Hallman, Neethi Pinto, Elizabeth Y. Killien, Kathryn Palumbo, Sinead Murphy Salem, Kilby Mann, Barbara Smith, Rebecca Steuart, Manzilat Akande, Robert J. Graham
Publikováno v:
Frontiers in Pediatrics, Vol 9 (2021)
Children with disabilities compose a substantial portion of admissions and bed-days in the pediatric intensive care unit (PICU) and often experience readmissions over time. Impacts of a PICU admission on post-discharge health status may be difficult
Externí odkaz:
https://doaj.org/article/36542f5a55264c27a0c4da0875970bd6
Publikováno v:
Children, Vol 9, Iss 7, p 1041 (2022)
Our understanding of longitudinal outcomes of Pediatric Intensive Care Unit (PICU) survivors is limited by the heterogeneity of follow-up intervals, populations, and outcomes assessed. We sought to demonstrate (1) the feasibility of longitudinal mult
Externí odkaz:
https://doaj.org/article/0b15ff5fae394985a756f0669d305ac9
Autor:
Carolyn Foster, Soyang Kwon, Christy Blakely, Kristin Carter, Sarah A. Sobotka, Denise M. Goodman, Rishi Agrawal, Mark Brittan
Publikováno v:
The Journal of Pediatrics.
Publikováno v:
Pediatric pulmonologyREFERENCES.
Infants who survive prematurity and critical illnesses but require ongoing invasive mechanical ventilation (IMV) are at high risk for developmental disabilities. However, their detailed developmental profiles are largely unknown.To understand the dev
Publikováno v:
Pediatr Ann
Feeding disorders and gastrostomy use are highly prevalent in children with invasive mechanical ventilation (IMV) due to both common risk factors (eg, prematurity, neurological disorders) and resultant experiential deprivation (eg, long hospitalizati
Publikováno v:
Pediatr Ann
Significant disparities exist in early identification of autism spectrum disorder (ASD) for Hispanic and Latinx children. ASD prevalence estimates are approximately identical for White and Black children but lower for Hispanic and Latinx children. Re
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb385e795a97a34d95a12d29a746eef1
https://europepmc.org/articles/PMC9584143/
https://europepmc.org/articles/PMC9584143/
Parent education programs for children assisted by invasive mechanical ventilation: A scoping review
Publikováno v:
Journal of pediatric nursing. 66
The population of children assisted by invasive mechanical ventilation (IMV) and living at home is growing. Although parent education is essential for safe transitions from hospital-to-home, little is known about how this education is delivered. The
Publikováno v:
Pediatrics
BACKGROUND Although many children with medical complexity (CMC) use home health care (HHC), little is known about all pediatric HHC utilizers. Our objective was to assess characteristics of pediatric HHC recipients, providers, and payments. METHODS W
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f643e061d07111338b04b464152af833
https://europepmc.org/articles/PMC9003864/
https://europepmc.org/articles/PMC9003864/
Readmission drivers for children with medical complexity: Home nursing shortages cause health crises
Publikováno v:
Pediatr Pulmonol
Objective Children with medical technology dependence (MTD) are frequently readmitted to the hospital. However, due to their medical fragility, it is often difficult to untangle the root causes for readmissions to identify the most effective preventi