Zobrazeno 1 - 10 of 12 pro vyhledávání: '"Sara Strzok"'
1
Akademický článek
Sleep-loss related to itch in atopic dermatitis: assessing content validity and psychometric properties of a patient-reported sleep-loss rating scale
Autor: Alissa Rams, Jessica Baldasaro, Laurine Bunod, Laure Delbecque, Sara Strzok, Juliette Meunier, Hany ElMaraghy, Luna Sun, Evangeline Pierce
Publikováno v: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-11 (2024)
Abstract Background Sleep loss is a key factor contributing to disease burden in people with atopic dermatitis (AD). Mitigating itch to improve sleep is an important outcome of AD treatment. This study explored the content validity and measurement pr
Externí odkaz: https://doaj.org/article/6776ce0bdd19458fb87ee32528f4a432
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2
Akademický článek
Development and psychometric evaluation of the assessment of self-injection questionnaire: an adaptation of the self-injection assessment questionnaire
Autor: Farrah Pompilus, Anna Ciesluk, Sara Strzok, Valerie Ciaravino, Kristina Harris, Boglarka Szegvari, Irina Mountian, Sophie Cleanthous, Juliette Meunier
Publikováno v: Health and Quality of Life Outcomes, Vol 18, Iss 1, Pp 1-11 (2020)
Abstract Background Patient-reported outcome (PRO) instruments provide robust and effective means of evaluating patients’ treatment experience; however, none adequately cover experience using self-injection devices with enhanced features, such as a
Externí odkaz: https://doaj.org/article/4b1d2eaa35a441098b454c67b6c91f88
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3
Akademický článek
A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia
Autor: Jill A. Bell, Aaron Galaznik, Farrah Pompilus, Sara Strzok, Rafael Bejar, Fatima Scipione, Robert J. Fram, Douglas V. Faller, Stefan Cano, Patrick Marquis
Publikováno v: Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-12 (2019)
Abstract Background Novel, pragmatic, patient-centered strategies are needed to ensure fit-for-purpose patient-reported outcomes (PRO) instruments in clinical trial research for rare diseases such as myelodysplastic syndromes (MDS), acute myeloid leu
Externí odkaz: https://doaj.org/article/5c00d5c9314c4874932bf05918b400b6
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4
The Patient Experience of Fatigue in Systemic Lupus Erythematosus: A Conceptual Model
Autor: Sara Strzok, Stefan J. Cano, Birgit Haier, Thomas Morel, Sophie Cleanthous
Publikováno v: Rheumatology and therapy. 9(1)
INTRODUCTION: Fatigue is frequently experienced in systemic lupus erythematosus (SLE) and is a key outcome in clinical research trials. However, SLE fatigue is complex and poorly understood, and challenging to measure. We aimed to characterise fatigu
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ac49c19bb7940cdb8f9bdc2632b7e68f
https://pubmed.ncbi.nlm.nih.gov/34757534
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5
A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia
Autor: Patrick Marquis, Aaron Galaznik, Jill A Bell, Fatima Scipione, Farrah Pompilus, Robert J. Fram, Douglas V. Faller, Sara Strzok, Stefan J. Cano, Rafael Bejar
Publikováno v: Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-12 (2019)
Journal of patient-reported outcomes, vol 3, iss 1
Journal of Patient-Reported Outcomes
BackgroundNovel, pragmatic, patient-centered strategies are needed to ensure fit-for-purpose patient-reported outcomes (PRO) instruments in clinical trial research for rare diseases such as myelodysplastic syndromes (MDS), acute myeloid leukemia (AML
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6fe86c34726ed5eb001a4dce2e896ac9
http://link.springer.com/article/10.1186/s41687-019-0123-4
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6
Development and psychometric evaluation of the assessment of self-injection questionnaire: an adaptation of the self-injection assessment questionnaire
Autor: Boglarka Szegvari, Juliette Meunier, Sara Strzok, Irina Mountian, Anna Ciesluk, Sophie Cleanthous, Farrah Pompilus, Valerie Ciaravino, Kristina Harris
Publikováno v: Health and Quality of Life Outcomes
Health and Quality of Life Outcomes, Vol 18, Iss 1, Pp 1-11 (2020)
Background Patient-reported outcome (PRO) instruments provide robust and effective means of evaluating patients’ treatment experience; however, none adequately cover experience using self-injection devices with enhanced features, such as an electro
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::28ddeb1924bfdcf976ed7cdcb1097c90
https://pubmed.ncbi.nlm.nih.gov/33148261
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7
Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations
Autor: Jae B. Kim, William Querbes, Amy Simon, Patrick Marquis, Alex Wei, Sonalee Agarwal, Jessica R. Hungate, Desiree Lyon Howe, Farrah Pompilus, Sara Strzok, Craig Penz
Publikováno v: The Patient
Objective Acute intermittent porphyria is a rare metabolic disorder that affects heme synthesis. Patients with acute intermittent porphyria may experience acute debilitating neurovisceral attacks that require frequent hospitalizations and negatively
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::17839a5936ac428b0716f47f2aa1515c
https://doi.org/10.1007/s40271-018-0319-3
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9
Impacts of Type 1 Diabetes on Patients during the First Two Years—A Qualitative Research Study
Autor: Regan Fong, Jessica T. Markowitz, Patrick Marquis, Emmanuelle Senior, Anna Christian, Kristina Harris, Sara Strzok, Tim Schmidt
Publikováno v: Diabetes. 67
The impact of type 1 diabetes (T1D) on patient’s lives has been described in the literature, but little insight exists on the experience of newly diagnosed pediatric patients. This timeframe is unique for clinical reasons (honeymoon period) and psy
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::42169d369961c784507bab6b257a1734
https://doi.org/10.2337/db18-2338-pub
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10
Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study
Autor: Myla D. Goldman, Shih-Yin Chen, Patrick Marquis, Jennifer Petrillo, Farrah Pompilus, Stefan J. Cano, Kiren Kresa-Reahl, Carmen Castrillo-Viguera, Stanley Cohan, Diego Cadavid, Sara Strzok, Sophie Cleanthous
Publikováno v: Multiple Sclerosis Journal-Experimental, Translational and Clinical
Background and objective The 12-item Multiple Sclerosis Walking Scale (MSWS-12) is a patient-reported outcome instrument that quantifies the progressive loss of walking ability from the patient perspective. However, previous psychometric analyses ind
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::07a0f44f36de2bad4bf5c0ab089d8255
https://doi.org/10.1177/2055217318783766
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