Informazione e malattie rare: l'esperienza del Telefono Verde Malattie Rare nel triennio 2019-2021. (Italian)

Autor: De Santis, Marta, Sanseverino, Antonella, Romeo, Rosa Immacolata, Polizzi, Agata

Publikováno v: Bollettino epidemiologico nazionale (BEN); 2022, Vol. 3 Issue 3, p20-31, 12p

Informazione e malattie rare

Autor: Polizzi, Agata, Santis, Marta De, Gentile, Amalia Egle, Sanseverino, Antonella, Aioub, Nadia, Pirchio, Rosilde Di, Gnessi, Fabiola, Ferrari, Gianluca, Taruscio, Domenica

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3686::3189690ecbf24b7b2e60325336d46079
http://hdl.handle.net/11573/874185

The Italian National Centre for Rare Diseases: where research and public health translate into action.

Autor: Taruscio D; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Agresta L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Amato A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Bernardo G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Bernardo L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Braguti F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Carbone P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Carta C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Ceccarini M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Censi F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Coppola S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Crialese P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., De Santis M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Diemoz S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Donati C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Gainotti S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Ferrari G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Floridia G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Frank C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Frazzica RG; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Gentile AE; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Granata O; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Kodra Y; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Latrofa M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Laricchiuta P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Magrelli A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Morciano C; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Polizzi A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Razeto S; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Salvatore M; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Sanseverino A; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Savini D; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Torreri P; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Tosto F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Villani F; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Vincenti G; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy., Vittozzi L; Italian National Centre for Rare Diseases, National Institute of Health, Rome, Italy.

Publikováno v: Blood transfusion = Trasfusione del sangue [Blood Transfus] 2014 Apr; Vol. 12 Suppl 3, pp. s591-605.