Zobrazeno 1 - 10
of 13
pro vyhledávání: '"Sandra Paci"'
Autor:
Jacqueline Palace, Kristl G Claeys, Andreas Meisel, Casey Quinn, Srikanth Muppidi, Francesco Saccà, Sonia Berrih-Aknin, Mark Larkin, Jon Beauchamp, Sandra Paci, Glenn Philips, Fatemeh Amini, Femke De Ruyck, Joyce Ramirez
Publikováno v:
BMJ Open, Vol 13, Iss 5 (2023)
Objectives This study aims to explore the impact of myasthenia gravis (MG) — in terms of treatments, side effects, comorbidities, psychological health and work or study— in the real world from a patient perspective.Design and participants This is
Externí odkaz:
https://doaj.org/article/1abfca6660ea4b04b7ca9028a4ffc0d7
Autor:
Jacqueline Palace, Kristl G Claeys, Renato Mantegazza, Andreas Meisel, Casey Quinn, Srikanth Muppidi, Hiroyuki Murai, Francesco Saccà, Sonia Berrih-Aknin, Sarah Dewilde, Mark Larkin, Jon Beauchamp, Sandra Paci, Laura Day, Glenn Philips, Silvia Chiroli, Guillaume Bassez, MF Janssen
Publikováno v:
BMJ Open, Vol 13, Iss 1 (2023)
Objectives Myasthenia gravis (MG) is a rare, chronic, autoimmune neuromuscular disease which can affect functional and mental aspects of health and health-related quality of life (HRQoL). This study aims to obtain detailed knowledge of the impact of
Externí odkaz:
https://doaj.org/article/89526dac77d5406291833a31dcc90782
Autor:
Kristl G Claeys, Renato Mantegazza, Hiroyuki Murai, Francesco Saccà, Sonia Berrih-Aknin, Nancy Law, Sarah Dewilde, Mathieu F Janssen, Emma Bagshaw, Hara Kousoulakou, Mark Larkin, Jon Beauchamp, Trevor Leighton, Sandra Paci
Publikováno v:
BMJ Open, Vol 11, Iss 7 (2021)
Introduction Myasthenia gravis (MG) is a rare, chronic, autoimmune disease, mediated by immunoglobulin G antibodies, which causes debilitating muscle weakness. As with most rare diseases, there is little patient-reported data with which to understand
Externí odkaz:
https://doaj.org/article/dbd0be896e044f488a9ab146511d3039
Autor:
Sarah Dewilde, M. F. Janssen, Nafthali H. Tollenaar, Fiammetta Vanoli, Rita Frangiamore, Glenn Phillips, Sandra Paci, Renato Mantegazza, Andreas Meisel, Frauke Stascheit
Publikováno v:
Muscle and Nerve, 65-72. John Wiley & Sons Inc.
STARTPAGE=65;ENDPAGE=72;ISSN=0148-639X;TITLE=Muscle and Nerve
STARTPAGE=65;ENDPAGE=72;ISSN=0148-639X;TITLE=Muscle and Nerve
Introduction/Aims: Myasthenia gravis (MG) is a neuromuscular disease characterized by abnormal skeletal muscle fatiguability. The MG Activities of Daily Living (MG-ADL) scale assesses eight symptoms and is often used as primary endpoint in MG clinica
Autor:
Sonia Berrih-Aknin, Jacqueline Palace, Andreas Meisel, Kristl G Claeys, Srikanth Muppidi, Francesco Saccà, Fatemeh Amini, Mark Larkin, Casey Quinn, Jon Beauchamp, Glenn Philips, Femke De Ruyck, Joyce Ramirez, Sandra Paci
ObjectivesThis study aims to explore the impact of myasthenia gravis (MG) — in terms of treatments, side effects, comorbidities, psychological health and work or study— in the real world from a patient perspective.Design and participantsThis is a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::07544258d6400de5b808d6907c07e322
https://lirias.kuleuven.be/handle/20.500.12942/722105
https://lirias.kuleuven.be/handle/20.500.12942/722105
Autor:
Sarah Dewilde, Glenn Philips, Sandra Paci, Jon Beauchamp, Silvia Chiroli, Casey Quinn, Laura Day, Mark Larkin, Jacqueline Palace, Sonia Berrih-Aknin, Kristl G Claeys, Srikanth Muppidi, Renato Mantegazza, Francesco Saccà, Andreas Meisel, Guillaume Bassez, Hiroyuki Murai, MF Janssen
Publikováno v:
BMJ Open, 13(1):e066445. BMJ Publishing Group
ObjectivesMyasthenia gravis (MG) is a rare, chronic, autoimmune neuromuscular disease which can affect functional and mental aspects of health and health-related quality of life (HRQoL). This study aims to obtain detailed knowledge of the impact of M
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cd05deabdf18f6b879b7c6ab63942671
https://lirias.kuleuven.be/handle/20.500.12942/717379
https://lirias.kuleuven.be/handle/20.500.12942/717379
Autor:
Jean-Philippe Camdessanché, Andoni Echaniz-Laguna, Mariana Ciumas, Sandra Paci, Benjamin Grenier, Guilhem Solé, Shahram Attarian
Publikováno v:
Revue Neurologique. 179:S102-S103
Autor:
Giovanni Antonini, Francesco Habetswallner, Maurizio Inghilleri, Renato Mantegazza, Carmelo Rodolico, Francesco Saccà, Manlio Sgarzi, Femke deRuyck, Sandra Paci, Glenn Phillips, Laura Crippa, Chiara Veronesi, Valentina Perrone, Luca Degli Esposti
Publikováno v:
Heliyon. 9:e16367
Autor:
Sonia Berrih-Aknin, Emma Bagshaw, Trevor Leighton, Renato Mantegazza, Hara Kousoulakou, Sandra Paci, Mark Larkin, Sarah Dewilde, Hiroyuki Murai, Nancy Law, Mathieu F. Janssen, Kristl G. Claeys, Jon Beauchamp, Francesco Saccà
Publikováno v:
BMJ Open
BMJ Open, BMJ Publishing Group, 2021, 11 (7), pp.e048198. ⟨10.1136/bmjopen-2020-048198⟩
BMJ Open, Vol 11, Iss 7 (2021)
BMJ Open, 11(7):e048198. BMJ Publishing Group
BMJ Open, BMJ Publishing Group, 2021, 11 (7), pp.e048198. ⟨10.1136/bmjopen-2020-048198⟩
BMJ Open, Vol 11, Iss 7 (2021)
BMJ Open, 11(7):e048198. BMJ Publishing Group
International audience; Download PDFPDFNeurologyProtocolPatient-reportedimpact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG) Sonia Berrih-Aknin1, Kristl G Claeys2,3, Nancy Law4, Renato Mantegazza5
Autor:
Carmelo Rodolico, Glenn Phillips, Manlio Sgarzi, Valentina Perrone, Francesco Saccà, Giovanni Antonini, Sandra Paci, Laura Crippa, Femke De Ruyck, Luca Degli Esposti, Renato Mantegazza, Maurizio Inghilleri, Francesco Habetswallner
Publikováno v:
Journal of the Neurological Sciences. 429:118340