Zobrazeno 1 - 10
of 70
pro vyhledávání: '"Samantha C Gouw"'
Autor:
Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw
Publikováno v:
JMIR Human Factors, Vol 11, p e48359 (2024)
BackgroundTo enable personalized treatment and shared decision-making in chronic care, relevant health information is collected. However, health information is often fragmented across hospital information systems, digital health apps, and questionnai
Externí odkaz:
https://doaj.org/article/7ed4400b56f64fc9980de1011ad6ad83
Autor:
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert M Cronin, Karin Fijnvandraat, Sherif M Badawy
Publikováno v:
Journal of Medical Internet Research, Vol 24, Iss 12, p e43086 (2022)
BackgroundeHealth tools such as patient portals and personal health records, also known as patient-centered digital health records, can engage and empower individuals with chronic health conditions. Patients who are highly engaged in their care have
Externí odkaz:
https://doaj.org/article/e689dad5cf41487ea3d7b47503203eb7
Autor:
Diana van Stijn, Nikki J. Schoenmaker, R. Nils Planken, Dave R. Koolbergen, Samantha C. Gouw, Taco W. Kuijpers, Nico A. Blom, Irene M. Kuipers
Publikováno v:
BMC Pediatrics, Vol 22, Iss 1, Pp 1-6 (2022)
Abstract Background Kawasaki disease (KD) is a pediatric vasculitis. Mainly the coronary arteries become affected due to acute inflammation and formation of coronary artery aneurysms (CAAs) can occur. The larger the CAA, the higher the risk for clini
Externí odkaz:
https://doaj.org/article/a03c3bc3d3b74d63bff223540adda43c
Autor:
Cas J. Isfordink, Samantha C. Gouw, Erna C. vanBalen, Shermarke Hassan, Erik A. M. Beckers, Johanna G. van derBom, Michiel Coppens, Jeroen Eikenboom, Kathelijn Fischer, Louise Hooimeijer, Frank W. G. Leebeek, Frits R. Rosendaal, Saskia E. M. Schols, Cees Smit, Lize F. D. vanVulpen, Eveline P. Mauser‐Bunschoten
Publikováno v:
Research and Practice in Thrombosis and Haemostasis, Vol 5, Iss 8, Pp n/a-n/a (2021)
Abstract Introduction Persons with hemophilia and hepatitis C virus (HCV) infection have a lower health‐related quality of life (HRQoL) than those never HCV infected. However, it is unknown whether HRQoL after HCV eradication is comparable to indiv
Externí odkaz:
https://doaj.org/article/ab0b8a7c6e744fb3b209acf2c9b4bb45
Autor:
Isolde A. R. Kuijlaars, Lorynn Teela, Lize F. D. vanVulpen, Merel A. Timmer, Michiel Coppens, Samantha C. Gouw, Marjolein Peters, Marieke J. H. A. Kruip, Marjon H. Cnossen, Jelmer J. Muis, Evelien S. vanHoorn, Lotte Haverman, Kathelijn Fischer
Publikováno v:
Research and Practice in Thrombosis and Haemostasis, Vol 5, Iss 8, Pp n/a-n/a (2021)
Abstract Background Legacy hemophilia‐specific questionnaires are considered too long, show floor‐/ceiling effects, and/or include irrelevant questions. Patient Reported Outcomes Measurement Information System (PROMIS) item banks, including Compu
Externí odkaz:
https://doaj.org/article/c90664bacc49452b85823900120c0ff5
Autor:
Fabienne R. Kloosterman, Anne-Fleur Zwagemaker, Anne C. Bay-Jensen, Marjon H. Cnossen, Marieke J.H.A. Kruip, Frank W.G. Leebeek, Robert Hemke, Mario Maas, Karin Fijnvandraat, Samantha C. Gouw, Michiel Coppens
Publikováno v:
Journal of Thrombosis and Haemostasis. Wiley-Blackwell
Kloosterman, F R, Zwagemaker, A-F, Bay-Jensen, A C, Cnossen, M H, Kruip, M J H A, Leebeek, F W G, Hemke, R, Maas, M, Fijnvandraat, K, Gouw, S C & Coppens, M 2023, ' Poor correlation between biomarkers and MRI-detected joint damage in a cross-sectional study of persons with nonsevere hemophilia A (DYNAMO study) ', Journal of Thrombosis and Haemostasis, vol. 21, no. 7, pp. 1813-1823 . https://doi.org/10.1016/j.jtha.2023.03.030
Kloosterman, F R, Zwagemaker, A-F, Bay-Jensen, A C, Cnossen, M H, Kruip, M J H A, Leebeek, F W G, Hemke, R, Maas, M, Fijnvandraat, K, Gouw, S C & Coppens, M 2023, ' Poor correlation between biomarkers and MRI-detected joint damage in a cross-sectional study of persons with nonsevere hemophilia A (DYNAMO study) ', Journal of Thrombosis and Haemostasis, vol. 21, no. 7, pp. 1813-1823 . https://doi.org/10.1016/j.jtha.2023.03.030
Background: Persons with nonsevere hemophilia A (NSHA) experience less frequent joint bleeding than persons with severe hemophilia A, but may still develop joint damage. Biomarkers of cartilage and synovial remodeling can reflect ongoing pathologic p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::61d3edf9e8ed551a510d1b7290cf7d01
https://doi.org/10.1016/j.jtha.2023.03.030
https://doi.org/10.1016/j.jtha.2023.03.030
Autor:
Isolde A. R. Kuijlaars, Janjaap van der Net, Lize F. D. van Vulpen, Mariette H. E. Driessens, Saskia E. M. Schols, Melanie Tan, Samantha C. Gouw, Kathelijn Fischer
Publikováno v:
Haemophilia, 28(6), 1007-1015. Wiley-Blackwell
Haemophilia, 28, 6, pp. 1007-1015
Haemophilia, 28, 1007-1015
Haemophilia, 28, 6, pp. 1007-1015
Haemophilia, 28, 1007-1015
Contains fulltext : 287871.pdf (Publisher’s version ) (Open Access) INTRODUCTION: The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitations in various daily activities. To reduce patient burden, shorter versions of t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ee99f2f1c68719d33dfc5e31e87e5c8e
https://hdl.handle.net/2066/287871
https://hdl.handle.net/2066/287871
Autor:
C. Heleen van Ommen, Samantha C. Gouw, Marc A. Benninga, Sjoerd C. J. Nagelkerke, Merit M. Tabbers, Melissa H.A. Schoenmaker
Publikováno v:
JPEN. Journal of parenteral and enteral nutrition. SAGE Publications Inc.
Journal of Parenteral and Enteral Nutrition, 46(5), 1036-1044. John Wiley & Sons Inc.
Journal of Parenteral and Enteral Nutrition, 46(5), 1036-1044. John Wiley & Sons Inc.
Background: Children with intestinal failure (IF) are at risk of loss of vascular access because of catheter-related venous thrombosis. Whether primary prophylactic anticoagulation is effective and safe in preventing catheter-related thrombosis is la
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f987efe968d12ae68e9624d6a6eaadce
https://doi.org/10.1002/jpen.2298
https://doi.org/10.1002/jpen.2298
Autor:
Inez M Vanholder, Ginette M Ecury‐Goossen, Jop Admiraal, Leendert Porcelijn, Rosalina ML van Spaendonk, Samantha C Gouw
Publikováno v:
Journal of paediatrics and child health, 58(12), 2319-2321. Wiley-Blackwell
Journal of Paediatrics and Child Health, 58(12), 2319-2321. Wiley-Blackwell
Journal of Paediatrics and Child Health, 58(12), 2319-2321. WILEY
Vanholder, I M, Ecury-Goossen, G M, Admiraal, J, Porcelijn, L, van Spaendonk, R M L & Gouw, S C 2022, ' Congenital amegakaryocytic thrombocytopenia presenting with a new thrombopoietin receptor (MPL) pathogenic variant : An instructive neonatal case ', Journal of Paediatrics and Child Health, vol. 58, no. 12, pp. 2319-2321 . https://doi.org/10.1111/jpc.16168
Journal of paediatrics and child health
Journal of Paediatrics and Child Health, 58(12), 2319-2321. Wiley-Blackwell
Journal of Paediatrics and Child Health, 58(12), 2319-2321. WILEY
Vanholder, I M, Ecury-Goossen, G M, Admiraal, J, Porcelijn, L, van Spaendonk, R M L & Gouw, S C 2022, ' Congenital amegakaryocytic thrombocytopenia presenting with a new thrombopoietin receptor (MPL) pathogenic variant : An instructive neonatal case ', Journal of Paediatrics and Child Health, vol. 58, no. 12, pp. 2319-2321 . https://doi.org/10.1111/jpc.16168
Journal of paediatrics and child health
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4c82c356aa631c3a667dacb5f491d444
https://hdl.handle.net/1887/3566398
https://hdl.handle.net/1887/3566398
Autor:
Anne‐Fleur Zwagemaker, Fabienne R. Kloosterman, Michiel Coppens, Samantha C. Gouw, Sara Boyce, Catherine N. Bagot, Erik A.M. Beckers, Paul Brons, Giancarlo Castaman, Jeroen Eikenboom, Shannon Jackson, Marieke J.H.A. Kruip, Frank W.G. Leebeek, Karina Meijer, Laurens Nieuwenhuizen, Ingrid Pabinger, Karin Fijnvandraat
Publikováno v:
Research and Practice in Thrombosis and Haemostasis, 6(6). WILEY
Research and practice in thrombosis and haemostasis, 6(6):e12777. Wiley-Blackwell Publishing Ltd
the DYNAMO Study Group 2022, ' Desmopressin for bleeding in non-severe hemophilia A : Suboptimal use in a real-world setting ', Research and practice in thrombosis and haemostasis, vol. 6, no. 6, e12777 . https://doi.org/10.1002/rth2.12777
Research and Practice in Thrombosis and Haemostasis, 6
Research and Practice in Thrombosis and Haemostasis, 6(6):e12777. Wiley-Blackwell Publishing Ltd
Research and practice in thrombosis and haemostasis, 6(6):e12777. Wiley
Research and practice in thrombosis and haemostasis, 6(6):12777. Wiley
Research and Practice in Thrombosis and Haemostasis, 6, 6
Research and practice in thrombosis and haemostasis, 6(6):e12777. Wiley-Blackwell Publishing Ltd
the DYNAMO Study Group 2022, ' Desmopressin for bleeding in non-severe hemophilia A : Suboptimal use in a real-world setting ', Research and practice in thrombosis and haemostasis, vol. 6, no. 6, e12777 . https://doi.org/10.1002/rth2.12777
Research and Practice in Thrombosis and Haemostasis, 6
Research and Practice in Thrombosis and Haemostasis, 6(6):e12777. Wiley-Blackwell Publishing Ltd
Research and practice in thrombosis and haemostasis, 6(6):e12777. Wiley
Research and practice in thrombosis and haemostasis, 6(6):12777. Wiley
Research and Practice in Thrombosis and Haemostasis, 6, 6
Background: Desmopressin is an important treatment option in nonsevere hemophilia A because it has several benefits compared with factor (F) concentrates, including no inhibitor risk and much lower costs. Despite these advantages, data are limited on
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f0e3b1cf5fa7b85b9b48afd792ebec2
https://doi.org/10.1002/rth2.12777
https://doi.org/10.1002/rth2.12777