Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional studyResearch in context

Autor: Robyn K. Wojeck, Mitchell R. Knisely, Donald E. Bailey, Tamara J. Somers, Linda Kwakkenbos, Marie-Eve Carrier, Warren R. Nielson, Susan J. Bartlett, Vanessa L. Malcarne, Marie Hudson, Brooke Levis, Andrea Benedetti, Luc Mouthon, Brett D. Thombs, Susan G. Silva, Claire E. Adams, Richard S. Henry, Catherine Fortuné, Karen Gottesman, Geneviève Guillot, Laura K. Hummers, Amanda Lawrie-Jones, Maureen D. Mayes, Michelle Richard, Maureen Sauvé, Shervin Assassi, Ghassan El-Baalbaki, Kim Fligelstone, Tracy Frech, Amy Gietzen, Daphna Harel, Monique Hinchcliff, Sindhu R. Johnson, Maggie Larche, Catarina Leite, Christelle Nguyen, Karen Nielsen, Janet Pope, François Rannou, Tatiana Sofia Rodriguez-Reyna, Anne A. Schouffoer, Maria E. Suarez-Almazor, Christian Agard, Nassim Ait Abdallah, Marc André, Elana J. Bernstein, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Benjamin Chaigne, Lorinda Chung, Benjamin Crichi, Christopher Denton, Robyn Domsic, James V. Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-Bancel, Paul R. Fortin, Jessica Gordon, Brigitte Granel-Rey, Aurélien Guffroy, Genevieve Gyger, Eric Hachulla, Sabrina Hoa, Alena Ikic, Suzanne Kafaja, Nader Khalidi, Kimberly Lakin, Marc Lambert, David Launay, Yvonne C. Lee, Hélène Maillard, Nancy Maltez, Joanne Manning, Isabelle Marie, Maria Martin Lopez, Thierry Martin, Ariel Masetto, François Maurier, Arsene Mekinian, Sheila Melchor Díaz, Mandana Nikpour, Louis Olagne, Vincent Poindron, Susanna Proudman, Alexis Régent, Sébastien Rivière, David Robinson, Esther Rodríguez Almazar, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Virginia Steen, Evelyn Sutton, Carter Thorne, John Varga, Pearce Wilcox, Mara Cañedo Ayala, Vanessa Cook, Sophie Hu, Bianca Matthews, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Julia Nordlund, Sabrina Provencher

Publikováno v: EClinicalMedicine, Vol 62, Iss , Pp 102104- (2023)

Summary: Background: Systemic sclerosis is a heterogenous disease in which little is known about patterns of patient-reported symptom clusters. We aimed to identify classes of individuals with similar anxiety, depression, fatigue, sleep disturbance,

Externí odkaz: https://doaj.org/article/3c82e788a0114b59adfd3e08502ac600

Correction: Transparent masks reduce the negative impact of opaque masks on understanding emotional states but not on sharing them

Autor: Sarah D. McCrackin, Sabrina Provencher, Ethan Mendell, Jelena Ristic

Publikováno v: Cognitive Research, Vol 7, Iss 1, Pp 1-1 (2022)

Externí odkaz: https://doaj.org/article/02a8763cf4c245e1972cd8c9767d05c7

Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: The Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial

Autor: Linda, Kwakkenbos, Marie-Eve, Carrier, Joep, Welling, Brooke, Levis, Alexander W, Levis, Maureen, Sauve, Kimberly A, Turner, Lydia, Tao, Kylene, Aguila, Andrea, Carboni-Jiménez, Mara, Cañedo-Ayala, Sami, Harb, Cornelia, van den Ende, Marie, Hudson, Ward, van Breda, Christelle, Nguyen, Isabelle, Boutron, François, Rannou, Brett D, Thombs, Luc, Mouthon, Sabrina, Provencher

Publikováno v: Trials, 23
Trials, 23:994, 1-15. BioMed Central
on behalf of the SPIN Investigators 2022, ' Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis : the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial ', Trials, vol. 23, 994, pp. 1-15 . https://doi.org/10.1186/s13063-022-06923-4

Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. Functional impairment of hands is common. The Scleroderma Patient-centered Intervention Network (SPIN)-HAND trial compared effects of offering access to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::32792f7753c8918584080d48d55e3307
https://doi.org/10.1186/s13063-022-06923-4

Recognition of emotions is affected by face masks

Autor: Sabrina Provencher, Sarah D. McCrackin, Florence Mayrand, Ethan Mendell, Francesca Capozzi, Jelena Ristic

Publikováno v: Journal of Vision. 21:2153

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::14f1a0fada98746f63f4030573290e05
https://doi.org/10.1167/jov.21.9.2153