Bleeding before prophylaxis in severe hemophilia: paradigm shift over two decades

Autor: Annelies Nijdam, Carmen Altisent, Manuel D. Carcao, Ana R. Cid, Ségolène Claeyssens-Donadel, Karin Kurnik, Rolf Ljung, Beatrice Nolan, Pia Petrini, Helen Platokouki, Anne Rafowicz, Angela E. Thomas, Kathelijn Fischer

Publikováno v: Haematologica, Vol 100, Iss 3 (2015)

Externí odkaz: https://doaj.org/article/0fc9dbf7563d408181989c0343f7738b

Étude multicentrique, rétrospective de l’association des dermatoses bulleuses auto-immunes avec une hémophilie acquise

Autor: Alexis Barranca, Sébastien Debarbieux, Emmanuelle Tancrede-Bohin, Clémence Saillard, Bruno Sassolas, Sophie Voisin, Françoise Fortenfant, Ségolène Claeyssens-Donadel, Pascal Joly, Maëlla Severino-Freire, Cristina Bulai Livideanu, Carle Paul, Maria Polina Konstantinou

Publikováno v: Annales de Dermatologie et de Vénéréologie - FMC. 1:A227

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::c63c27f555b80ec04219a3eb256282c7
https://doi.org/10.1016/j.fander.2021.09.181

Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study

Autor: Noémie Resseguier, Natacha Rosso-Delsemme, Any Beltran Anzola, Karine Baumstarck, Vanessa Milien, Laurent Ardillon, Sophie Bayart, Claire Berger, Marie-Anne Bertrand, Christine Biron-Andreani, Annie Borel-Derlon, Sabine Castet, Pierre Chamouni, Ségolène Claeyssens Donadel, Emmanuelle De Raucourt, Dominique Desprez, Céline Falaise, Birgit Frotscher, Valérie Gay, Jenny Goudemand, Yves Gruel, Benoît Guillet, Annie Harroche, Abel Hassoun, Yoann Huguenin, Thierry Lambert, Aurélien Lebreton, Anne Lienhart, Michèle Martin, Sandrine Meunier, Fabrice Monpoux, Guillaume Mourey, Claude Negrier, Philippe Nguyen, Placide Nyombe, Caroline Oudot, Brigitte Pan-Petesch, Benoît Polack, Anne Rafowicz, Antoine Rauch, Delphine Rivaud, Pascale Schneider, Alexandra Spiegel, Cecile Stoven, Brigitte Tardy, Marc Trossaërt, Jean-Baptiste Valentin, Stéphane Vanderbecken, Fabienne Volot, Annelise Voyer-Ebrard, Bénédicte Wibaut, Tanguy Leroy, Thomas Sannie, Hervé Chambost, Pascal Auquier

Publikováno v: BMJ Open
BMJ Open, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩
BMJ Open, BMJ Publishing Group, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩

IntroductionSevere haemophilia is a rare disease characterised by spontaneous bleeding from early childhood, which may lead to various complications, especially in joints. It is nowadays possible to avoid these complications thanks to substitutive th

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::19abf58965c9f1dd82b8b193cf3b48f3
https://pubmed.ncbi.nlm.nih.gov/30049701

A national French noninterventional study to assess the long-term safety and efficacy of reformulated nonacog alfa

Autor: Thierry, Lambert, Chantal, Rothschild, Fabienne, Volot, Annie, Borel-Derlon, Marc, Trossaërt, Ségolène, Claeyssens-Donadel, Sepideh, Attal

Publikováno v: Transfusion. 57(4)

Nonacog alfa, the recombinant Factor IX (F IX) used for the treatment of hemophilia B, was approved in Europe in 1998. A reformulated version was approved for European use in 2007.This postmarketing study, as recommended by the risk management plan,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::e8288b02f0cd831f7256dfa3e1ddc897
https://pubmed.ncbi.nlm.nih.gov/28337764