Zobrazeno 1 - 10
of 38
pro vyhledávání: '"Ryan S, Paquin"'
Outreach to new mothers through direct mail and email: recruitment in the Early Check research study
Autor:
Ryan S. Paquin, Megan A. Lewis, Blake A. Harper, Rebecca R. Moultrie, Angela Gwaltney, Lisa M. Gehtland, Holly L. Peay, Martin Duparc, Melissa Raspa, Anne C. Wheeler, Cynthia M. Powell, Nancy M. P. King, Scott M. Shone, Donald B. Bailey Jr
Publikováno v:
Clinical and Translational Science, Vol 14, Iss 3, Pp 880-889 (2021)
Abstract Meeting recruitment targets for clinical trials and health research studies is a notable challenge. Unsuccessful efforts to recruit participants from traditionally underserved populations can limit who benefits from scientific discovery, thu
Externí odkaz:
https://doaj.org/article/651c5e18776a4ab4af3e9358d374cc81
Autor:
Lisa M Gehtland, Ryan S Paquin, Sara M Andrews, Adam M Lee, Angela Gwaltney, Martin Duparc, Emily R Pfaff, Donald B Bailey Jr
Publikováno v:
JMIR Pediatrics and Parenting, Vol 5, Iss 1, p e30941 (2022)
BackgroundMany research studies fail to enroll enough research participants. Patient-facing electronic health record applications, known as patient portals, may be used to send research invitations to eligible patients. ObjectiveThe first aim was to
Externí odkaz:
https://doaj.org/article/3330e508a12342b0a307562748463c50
Autor:
Donald B. Bailey, Lisa M. Gehtland, Megan A. Lewis, Holly Peay, Melissa Raspa, Scott M. Shone, Jennifer L. Taylor, Anne C. Wheeler, Michael Cotten, Nancy M. P. King, Cynthia M. Powell, Barbara Biesecker, Christine E. Bishop, Beth Lincoln Boyea, Martin Duparc, Blake A. Harper, Alex R. Kemper, Stacey N. Lee, Rebecca Moultrie, Katherine C. Okoniewski, Ryan S. Paquin, Denise Pettit, Katherine Ackerman Porter, Scott J. Zimmerman
Publikováno v:
BMC Pediatrics, Vol 19, Iss 1, Pp 1-13 (2019)
Abstract Background Newborn screening (NBS) occupies a unique space at the intersection of translational science and public health. As the only truly population-based public health program in the United States, NBS offers the promise of making the su
Externí odkaz:
https://doaj.org/article/0625bee4ff0c424ebc1da87746aeb6c9
Autor:
Ryan S. Paquin, Ryan Fischer, Carol Mansfield, Brennan Mange, Katherine Beaverson, Annie Ganot, Amy Strong Martin, Carl Morris, Colin Rensch, Valeria Ricotti, Leo J. Russo, Alesia Sadosky, Edward C. Smith, Holly L. Peay
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Abstract Purpose Several gene therapy trials for Duchenne muscular dystrophy initiated in 2018. Trial decision making is complicated by non-curative, time-limited benefits; the progressive, fatal course; and high unmet needs. Here, caregivers and pat
Externí odkaz:
https://doaj.org/article/9a341e5765cf4d0c818fe5d13af95442
Autor:
Holly L. Peay, Ryan Fischer, Brennan Mange, Ryan S. Paquin, Edward C. Smith, Alesia Sadosky, Leo Russo, Valeria Ricotti, Colin Rensch, Carl Morris, Amy Strong Martin, Annie Ganot, Katherine Beaverson, Carol Mansfield
Publikováno v:
Molecular Genetics & Genomic Medicine, Vol 9, Iss 5, Pp n/a-n/a (2021)
Abstract Background Gene therapy offers an etiologically targeted treatment for genetic disorders. Little is known about the acceptance of mortality risk among patients with progressive, fatal conditions. We assessed patients’ and caregivers’ max
Externí odkaz:
https://doaj.org/article/52d96db984d645b4b1d2e956eedbd260
Autor:
Kathryn J. Aikin, Vanessa Boudewyns, Kevin R. Betts, Kristen C. Giombi, Ryan S. Paquin, Micaela Brewington, Raahina Malik
Publikováno v:
Health Communication. :1-14
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::fdcddbf3106534e3ce41ad40a243232e
https://doi.org/10.1080/10410236.2023.2179717
https://doi.org/10.1080/10410236.2023.2179717
Autor:
Jamie Guillory, Alyssa Jordan, Ryan S. Paquin, Jessica Pikowski, Stephanie McInnis, Amarachi Anakaraonye, Holly L. Peay, Megan A. Lewis
Publikováno v:
Frontiers in Communication, Vol 5 (2020)
Social media platforms are becoming a key resource for health research and program delivery. These platforms offer multiple avenues to engage diverse populations using organic and paid content. Outreach to and recruitment of participants into populat
Externí odkaz:
https://doaj.org/article/82fec40f18c84a848d1cf27ca692a64a
Autor:
Laura V. Milko, Christine Rini, Megan A. Lewis, Rita M. Butterfield, Feng-Chang Lin, Ryan S. Paquin, Bradford C. Powell, Myra I. Roche, Katherine J. Souris, Donald B. Bailey, Jonathan S. Berg, Cynthia M. Powell
Publikováno v:
Trials, Vol 19, Iss 1, Pp 1-14 (2018)
Abstract Background Using next-generation sequencing (NGS) in newborn screening (NBS) could expand the number of genetic conditions detected pre-symptomatically, simultaneously challenging current precedents, raising ethical concerns, and extending t
Externí odkaz:
https://doaj.org/article/c62c667f2d384e65a239b9827d189cae
Autor:
Helen W Sullivan, Amie C O’Donoghue, Vanessa Boudewyns, Ryan S Paquin, Kate Ferriola-Bruckenstein
Publikováno v:
Oncologist
Background This study examined how people interpret overall survival (OS), overall response rate (ORR), and progression-free survival (PFS) endpoints in the context of direct-to-consumer television ads. Although there is little research on this topic
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2bf2598f790d7daf8bfd6af32df21599
https://europepmc.org/articles/PMC10322139/
https://europepmc.org/articles/PMC10322139/
Autor:
Kate Ferriola-Bruckenstein, Amie C. O’Donoghue, Victoria M. Scott, Ryan S. Paquin, Vanessa Boudewyns, Kathryn J. Aikin
Publikováno v:
Oncologist
Background Little is known about how physicians interpret data displays that depict preliminary or exploratory clinical data in physician-targeted sales aids for oncology drugs. Using three factorial experiments, we examined whether disclosures of da
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6f7e8d618c3c00c9612a649a72ca9ed3
https://doi.org/10.1002/onco.13972
https://doi.org/10.1002/onco.13972