Research activity and capability in the European reference network MetabERN

Autor: Heard, J. -M., Bellettato, C, Van, Lingen, Scarpa, M, Debray, F. -G., Nassogne, M. -C., Van, Coster, Meirleir, De, Eyskens, L., Morava, F., Baric, E., Kozich, I., Lund, V., Germain, A. M., Belmatoug, D., Guffon, N., Labrune, N., Gouya, P., Lonlay, De, Schiff, P., Dobbelaere, M., Chabrol, D., Das, B., Spiekerkoetter, A. M., Rutsch, U., Ploeckinger, F., Mohnike, U., Hahn, K., Kölker, A., Ullrich, S., Balogh, K., Bembi, I., Donati, B., Gasperini, M. A., Parenti, S., Salviati, G., Vici, A., C. -D., Rocco, Di, Cefalo, M., Burlina, G., Ceccarini, G., Federico, A., Van Der Ploeg, Rubio-Gozalbo, A., M. -E., Van, Spronsen, Visser, F., Bosch, G., Tangeraas, A., Sanderberg, T., Kieć-Wilk, S., Gaspar, B., A. -M. S. M., Martins, E., Silva, E. -M. F. R., De Abreu Freire Diogo Matos, L. -M., Azevedo, O., Tansek, M. -Z., Couce-Pico, M. -L., Cazorla, A. G., Azuara, L. A. -E., Del, Toro-Riera, Lajic, M., Darin, S., Deegan, N., Vijaym, P., Chronopoulou, S., Jones, E., Chakrapani, S., Hiwot, A.

Publikováno v: Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Orphanet Journal of Rare Diseases, 14:119. BioMed Central Ltd.
Heard, J-M, Bellettato, C, van Lingen, C, Scarpa, M, Debray, F-G, Nassogne, M-C C, van Coster, R, de Meirleir, L, Eyskens, F, Morava, E, Baric, I, Kozich, V, Lund, A M, Germain, D, Belmatoug, N, Guffon, N, Labrune, P, Gouya, L, de Lonlay, P, Schiff, M, Dobbelaere, D, Chabrol, B, Das, A M, Spiekerkoetter, U, Rutsch, F, Ploeckinger, U, Mohnike, K, Hahn, A, Kölker, S, Ullrich, K, Balogh, I, Bembi, B, Donati, M A, Gasperini, S, Parenti, G, Salviati, A, Vici, C-D, di Rocco, M, Cefalo, G, Burlina, A, Ceccarini, G, Federico, A, van der Ploeg, A, Rubio-Gozalbo, M-E, van Spronsen, F, Visser, G, Bosch, A, Tangeraas, T, Sanderberg, S, Kieć-Wilk, B, Gaspar, A-M S M, Martins, E, Silva, E-M F R, de Abreu Freire Diogo Matos, L-M, Azevedo, O, Tansek, M-Z, Couce-Pico, M-L, Cazorla, A G, Azuara, L A-E, del Toro-Riera, M, Lajic, S, Darin, N, Deegan, P, Vijaym, S, Chronopoulou, E, Jones, S, Chakrapani, A & Hiwot, T 2019, ' Research activity and capability in the European reference network MetabERN ', Orphanet Journal of Rare Diseases, vol. 14, no. 1, 119 . https://doi.org/10.1186/s13023-019-1091-8
Orphanet Journal of Rare Diseases
Orphanet journal of rare diseases
Orphanet Journal of Rare Diseases, 14:119. BioMed Central Ltd
ORPHANET JOURNAL OF RARE DISEASES
Orphanet Journal of Rare Diseases, 14(1):119. BioMed Central
Orphanet Journal of Rare Diseases, 14(1). BioMed Central
Orphanet journal of rare diseases, 14(1):119. BioMed Central

Background MetabERN is one of the 24 European Reference Networks created according to the European Union directive 2011/24/EU on patient’s rights in cross border healthcare. MetabERN associates 69 centres in 18 countries, which provide care for pat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fcb9bb5f88cf1f4a2664a07cea357d1d
https://doi.org/10.1186/s13023-019-1091-8