Zobrazeno 1 - 10
of 17
pro vyhledávání: '"Rowan Forbes Shepherd"'
Publikováno v:
Trials, Vol 24, Iss 1, Pp 1-14 (2023)
Abstract Background As cancer therapies increase in their complexity, effective communication among patients, physicians, and research staff is critical for optimal clinical trial management. Currently, we understand little about on-trial communicati
Externí odkaz:
https://doaj.org/article/a8c1de0669bd468db35984ae36eaa709
Autor:
Laura E. Forrest, Rowan Forbes Shepherd, Erin Tutty, Angela Pearce, Ian Campbell, Lisa Devereux, Alison H. Trainer, Paul A. James, Mary-Anne Young
Publikováno v:
Journal of Personalized Medicine, Vol 12, Iss 7, p 1112 (2022)
Background Research identifying and returning clinically actionable germline variants offer a new avenue of access to genetic information. The psychosocial and clinical outcomes for women who have received this ‘genome-first care’ delivering here
Externí odkaz:
https://doaj.org/article/20942c026cb441f39faa069c8d6837fc
Autor:
Allison Werner‐Lin, Rowan Forbes Shepherd, Camella J. Rising, Ashley S. Thompson, Chloe Huelsnitz, Catherine Wilsnack, Patrick Boyd, Alix G. Sleight, Sadie Hutson, Payal P. Khincha
Publikováno v:
Psycho-Oncology. 32:375-382
Adolescents and young adult (AYA) cancer survivors face unique medical and psychosocial sequalae, including chronic health conditions, late effects of treatment and fear of recurrence. The meaning of cancer survivorship may be further complicated for
Autor:
Erin Tutty, Rowan Forbes Shepherd, Cass Hoskins, Rebecca Purvis, Mary Shanahan, Alex Boussioutas, Laura E. Forrest
Publikováno v:
Journal of Psychosocial Oncology. 41:286-302
Autor:
Rowan Forbes Shepherd, Allison Werner-Lin, Louise Keogh, Martin B. Delatycki, Laura E Forrest
Publikováno v:
Australian Journal of General Practice. 50:538-544
BACKGROUND AND OBJECTIVES: Discussing population-based cancer risk and screening is common in general practice. Patients with an inherited cancer syndrome, however, may need more nuanced discussions. Li-Fraumeni syndrome (LFS) is a rare, inherited ca
Autor:
Rowan Forbes Shepherd, Louise Keogh, Laura E Forrest, Martin B. Delatycki, Allison Werner-Lin
Publikováno v:
Journal of Psychosocial Oncology. 39:54-73
This study explored the genetic testing experiences of adolescents and young adults (AYAs; aged 15-39 years) with, or at 50% risk of, an early onset cancer predisposition syndrome: Li-Fraumeni syndrome (LFS).We used interpretive description and condu
Autor:
Rowan Forbes Shepherd, Laura E. Forrest, Erin Tutty, Angela Pearce, Lisa Devereux, Paul A. James, Ian G. Campbell, Alison Trainer, Mary-Anne Young
Publikováno v:
Genetic testing and molecular biomarkers. 25(12)
Autor:
Louise Keogh, Allison Werner-Lin, Rowan Forbes Shepherd, Martin B. Delatycki, Laura E Forrest
Publikováno v:
Qualitative health research. 32(1)
The reproductive decision-making of young people (aged 15–39 years) with Li-Fraumeni syndrome (LFS), an early onset inherited cancer syndrome, has not been studied in depth. Using interpretive description methodology, we conducted semi-structured i
Autor:
Victoria Rasmussen, Laura E Forrest, Mary-Anne Young, Rowan Forbes Shepherd, Paul A. James, Erin Tutty, Bettina Meiser, Lara Petelin, Joanne McKinley
Publikováno v:
Eur J Hum Genet
Systemic healthcare issues and geographical challenges restrict women's access to BRCA1/2 testing to inform the use of tailored treatments for high-grade serous ovarian cancer. Consequently, BRCA1/2 testing in this population is low and improved test
Autor:
Allison Werner-Lin, Rowan Forbes Shepherd, Jennifer L. Young, Catherine Wilsnack, Shana L. Merrill, Mark H. Greene, Payal P. Khincha
Publikováno v:
Soc Sci Med
INTRODUCTION: Experiences of illness change the physical body and embodiments, or the ways in which the world and the self are known through the body. When illness is anticipated, such as with inherited cancer predisposition syndromes, risk becomes e