Zobrazeno 1 - 10 of 10 pro vyhledávání: '"Rosa Bou-Torrent"'
1
Akademický článek
Transition of patients with metabolic bone disease from paediatric to adult healthcare services: current situation and proposals for improvement
Autor: Enrique Casado, Carlos Gómez-Alonso, Guillem Pintos-Morell, Rosa Bou-Torrent, Ana Coral Barreda-Bonis, José Vicente Torregrosa, José Jesús Broseta-Monzó, Pedro Arango-Sancho, Sara Chocrón-de-Benzaquen, Yoko Olmedilla-Ishishi, Begoña Soler-López
Publikováno v: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-15 (2023)
Abstract Background There are currently no models for the transition of patients with metabolic bone diseases (MBDs) from paediatric to adult care. The aim of this project was to analyse information on the experience of physicians in the transition o
Externí odkaz: https://doaj.org/article/25428c7cb49d4af693e09da1738c21c1
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2
Akademický článek
Expert panel consensus recommendations for diagnosis and treatment of secondary osteoporosis in children
Autor: Rocío Galindo-Zavala, Rosa Bou-Torrent, Berta Magallares-López, Concepción Mir-Perelló, Natalia Palmou-Fontana, Belén Sevilla-Pérez, Marta Medrano-San Ildefonso, Mª. Isabel González-Fernández, Almudena Román-Pascual, Paula Alcañiz-Rodríguez, Juan Carlos Nieto-Gonzalez, Mireia López-Corbeto, Jenaro Graña-Gil
Publikováno v: Pediatric Rheumatology Online Journal, Vol 18, Iss 1, Pp 1-14 (2020)
Abstract Background Osteoporosis incidence in children is increasing due to the increased survival rate of patients suffering from chronic diseases and the increased use of drugs that can damage bones. Recent changes made to the definition of childho
Externí odkaz: https://doaj.org/article/a738a876ce92423a8f1b60092b4419c1
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4
Tapering Canakinumab Monotherapy in Patients with Systemic Juvenile Idiopathic Arthritis in Clinical Remission: Results from an Open‐label, Randomized Phase IIIb/IV Study
Autor: Pierre, Quartier, Ekaterina, Alexeeva, Constantin, Tamàs, Vyacheslav, Chasnyk, Nico, Wulffraat, Karin, Palmblad, Carine, Wouters, Hermine, Brunner, Katherine, Marzan, Rayfel, Schneider, Gerd, Horneff, Martini, Alberto, Jordi, Anton, Xiaoling, Wei, Alan, Slade, Ruperto, Nicolino, Ken, Abrams, Wolfgang, Emminger, Andrea, Ulbrich, Sugarka, Fodor, Lien, Desomer, Bernard, Lauwerys, Bénédicte, Brichard, Cécile, Boulanger, Gabriel, Levy, Laurence, Goffin, Phu Quoc Le, Marcia, Bandeira, Christina Feitosa Pelajo, Sheila Knupp Feitosa, Christianne, Costa, Marta Cristine Felix Rodrigues, Clovis Artur Almeida da Silva, Lucia Maria Mattei de, Katia, Kozu, Ronald, Laxer, Kristin, Houghton, Lori, Tucker, Kimberly, Morishita, Agnes, Mogenet, Richard, Mouy, Brigitte Bader Meunier, Candice, Meyzer, Michaela, Semeraro, Ouafa, Ben‐brahim, Isabelle, Kone‐paut, Caroline, Galeotti, Linda, Rossi, Perrine, Dusser, Bilade, Cherquaoui, Alexandre, Belot, Agnes, Duquesne, Freychet, Caroline, Laurent, Audrey, Marine, Desjonqueres, Ivan, Foeldvari, Antonia, Kienast, Barbara, Willig, Deborah, Barthel, Joachim, Peitz, Stefanie, Wintrich, Tilman Felix Geikowski, Anna Carina Schulz, Markus, Hufnagel, Marc, Hirdes, Rouven, Kubicki, Janbernd, Kirschner, Ales, Janda, Andre, Jacob, Cornelia, Emerich, Anna, Raab, Gonza, Ngoumou, Kirsten, Minden, Mareike, Lieber, Sae‐Lim von Stuckrad, Jasmin Kuemmerle Deschner, Sandra, Hansmann, Tom, Schleich, Ines Maria Magunia, Joachim, Riethmuller, Nicole, Anders, Hartwig, Lehmann, Jan de Laffolie, Thomas, Lutz, Juergen, Grulich‐henn, Johannes, Pfeil, Astrid, Helling‐bakki, Ralf, Trauzeddel, Daniel, Haselbusch, Henryk, Kolbeck, Elisabeth, Weissbarth‐riedel, Anja, Froehlich, Andrea, Ponyi, Diana, Garan, Ilonka, Orban, Krisztina, Sevcic, Yonatan, Butbul, Riva, Brik, Philip, Hashkes, Ori, Toker, Ruby, Haviv, Yosef, Uziel, Rubi, Haviv, Veronica, Moshe, Michal, Rothschild, Liora, Harel, Gil, Amarilyo, Rotem, Tal, Mohamad Hamad Said, Irit, Tirosh, Shiri, Spielman, Maya, Gerstein, Ravelli, Angelo, Schiappapietra, Benedetta, Varnier, GIULIA CAMILLA, Finetti, Martina, Marasini, Maurizio, Caorsi, Roberta, Rosina, Silvia, Federici, Silvia, Irene, Pontikaki, Pier Luigi Meroni, Valeri, Gerloni, Nicola, Ughi, Tania, Ubiali, Maria, Alessio, Roberto Della Casa, Sebastiaan Jozef Vastert, Joost Frans Swart, van Royen‐Kerhof, A., Ellen, Schatorje, Van Iperen‐Schutte, G., Lidia, Rutkowska‐sak, Izabela, Szczygielska, Malgorzata, Kwiatkowska, Maria, Marusak‐banacka, Piotr, Gietka, Kseniya, Isaeva, Rina, Denisova, Ludmila, Snegireva, Margarita, Dubko, Mikhail, Kostik, Natalia, Buchinskaia, Olga, Kalashnikova, Sergey, Avrusin, Vera, Masalova, Esmeralda Nunez Cuadros, Gisela, Diez, Rocio Galindo Zavala, Rosa Bou Torrent, Estibaliz, Iglesias, Joan, Calzada, Violeta, Bittermann, Alina Lucica Boteanu, Maria Luz Gamir, Inmaculada, Calvo, Berta, Lopez, Isabel, Gonzalez, Laura, Fernandez, Daniel Clemente Garulo, Juan Carlos Lopez Robledillo, Rosa, Merino, Rosa, Alcobendas, Agustin, Remesal, Sara, Murias, Magnusson, Bo, Ozgur, Kasapcopur, Kenan, Barut, Amra, Adrovic, Sezgin, Sahin, Muferet, Erguven, Refia Gozdenur Savci, Seza, Ozen, Selcan, Demir, Yelda, Bilginer, Zehra Serap Avci, Ezgi Deriz Batu, Andreas, Reiff, Anusha, Ramanatham, Diana, Brown, Bracha, Shaham, Shirley, Parks, Michal, Cidon, Gloria, Higgins, Charles, Spencer, Jenny, Rossette, Karla, Jones, Sharon Bout Tabaku, Shelli, Farley, Shoghik, Akoghlanian
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::cec0dcf8696b3828689854500b78a1d0
http://hdl.handle.net/11588/821370
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5
Expert panel consensus recommendations for diagnosis and treatment of secondary osteoporosis in children
Autor: Natalia Palmou-Fontana, Almudena Román-Pascual, Paula Alcañiz-Rodríguez, Mireia López-Corbeto, Mª. Isabel González-Fernández, Belén Sevilla-Pérez, Jenaro Graña-Gil, Juan Carlos Nieto-González, Rocío Galindo-Zavala, Concepción Mir-Perelló, Rosa Bou-Torrent, Marta Medrano San Ildefonso, Berta Magallares-López
Publikováno v: Pediatric Rheumatology Online Journal
Pediatric Rheumatology
r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
instname
Pediatric Rheumatology Online Journal, Vol 18, Iss 1, Pp 1-14 (2020)
PEDIATRIC RHEUMATOLOGY
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
Zaguán. Repositorio Digital de la Universidad de Zaragoza
r-FSJD: Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
Fundació Sant Joan de Déu
Background Osteoporosis incidence in children is increasing due to the increased survival rate of patients suffering from chronic diseases and the increased use of drugs that can damage bones. Recent changes made to the definition of childhood osteop
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::66d26e1ad53915f9f62759aa979b2581
https://hdl.handle.net/10668/15157
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6
Correction to: Proposal for a definition for response to treatment, inactive disease and damage for JIA associated uveitis based on the validation of a uveitis related JIA outcome measures from the Multinational Interdisciplinary Working Group for Uveitis in Childhood (MIWGUC)
Autor: Ivan Foeldvari, Jens Klotsche, Gabriele Simonini, Clive Edelsten, Sheila T. Angeles-Han, Regitze Bangsgaard, Joke de Boer, Gabriele Brumm, Rosa Bou Torrent, Tamas Constantin, Cinzia DeLibero, Jesus Diaz, Valeria Maria Gerloni, Margarida Guedes, Arnd Heiligenhaus, Kaisu Kotaniemi, Sanna Leinonen, Kirsten Minden, Vasco Miranda, Elisabetta Miserocchi, Susan Nielsen, Martina Niewerth, Irene Pontikaki, Carmen Garcia de Vicuna, Carla Zilhao, Steven Yeh, Jordi Anton
Publikováno v: Pediatric Rheumatology Online Journal
PEDIATRIC RHEUMATOLOGY
r-FSJD: Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
Fundació Sant Joan de Déu
Pediatric Rheumatology Online Journal, Vol 18, Iss 1, Pp 1-2 (2020)
r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
instname
Background JIA-associated uveitis (JIAU) is a serious, sight-threatening disease with significant long-term complications and risk of blindness, even with improved contemporary treatments. The MIWGUC was set up in order to propose specific JIAU activ
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ef177b864307357d5224bcb148835724
http://europepmc.org/articles/PMC7011209
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7
Proposal for a definition for response to treatment, inactive disease and damage for JIA associated uveitis based on the validation of a uveitis related JIA outcome measures from the Multinational Interdisciplinary Working Group for Uveitis in Childhood (MIWGUC)
Autor: Kaisu Kotaniemi, Sanna Leinonen, Vasco Miranda, Sheila T. Angeles-Han, Martina Niewerth, Irene Pontikaki, Rosa Bou Torrent, Cinzia DeLibero, Susan Nielsen, Carmen Garcia de Vicuna, Jordi Anton, Ivan Foeldvari, Gabriele Brumm, Gabriele Simonini, Tamás Constantin, Arnd Heiligenhaus, Margarida Guedes, Steven Yeh, Regitze Bangsgaard, Jesús Díaz, Carla Zilhão, Valeria Gerloni, Elisabetta Miserocchi, Joke H. de Boer, Clive Edelsten, Kirsten Minden, Jens Klotsche
Publikováno v: Pediatric Rheumatology
r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
instname
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Agência para a Sociedade do Conhecimento (UMIC)-FCT-Sociedade da Informação
instacron:RCAAP
PEDIATRIC RHEUMATOLOGY
r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
Pediatric Rheumatology Online Journal, Vol 17, Iss 1, Pp 1-14 (2019)
r-FSJD: Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
Fundació Sant Joan de Déu
Pediatric rheumatology online journal, 17(1). BioMed Central
Background JIA-associated uveitis (JIAU) is a serious, sight-threatening disease with significant long-term complications and risk of blindness, even with improved contemporary treatments. The MIWGUC was set up in order to propose specific JIAU activ
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6b7779865da4594d0adcf24d3dd7757e
http://hdl.handle.net/2445/195379
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8
Rare Commons: An Innovative Social Media Platform 2.0 for Collaborative Clinical Research on Pediatric Rare Diseases
Autor: Rosa Bou Torrent, Jaume Catala Mora, Jordi Antón López, Joan Prat i Bartomeu, Mercedes Serrano Gimaré, Begonya Nafria Escalera, E Iglesias
Publikováno v: Pediatrics for the 21st Century (Peds21).
The use of social media for patients and families education is already a common use in the medical field, although not so frequent in pediatric rare diseases. Rare Commons is a research project focused on the biomedical study of rare diseases affecti
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::79d0be170369c2d09afe3526f0d4f867
https://doi.org/10.1542/peds.141.1_meetingabstract.235
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