Improving the Transparency and Replicability of Consensus Methods: Respiratory Medicine as a Case Example

Autor: Rolfe MJ, Winchester CC, Chisholm A, Price DB

Publikováno v: Pragmatic and Observational Research, Vol Volume 15, Pp 201-207 (2024)

Mark J Rolfe,1 Christopher C Winchester,1,2 Alison Chisholm,1 David B Price3,4 1Oxford PharmaGenesis, Oxford, UK; 2Green Templeton College, University of Oxford, Oxford, UK; 3Observational and Pragmatic Research Institute, Singapore, Singapore; 4Cent

Externí odkaz: https://doaj.org/article/9210a8c3cabc449f9adf25e5402b154b

Early indicators of disease progression in Fabry disease that may indicate the need for disease-specific treatment initiation: findings from the opinion-based PREDICT-FD modified Delphi consensus initiative.

Autor: Hughes DA; Lysosomal Storage Disorders Unit, Royal Free Hospital, London, UK rmgvdah@ucl.ac.uk.; Department of Haematology, University College London, London, UK., Aguiar P; Inborn Errors of Metabolism Reference Center, North Lisbon Hospital Center, Lisbon, Portugal.; Medicine Department, University of Lisbon, Lisbon, Portugal., Deegan PB; Lysosomal Disorders Unit, Addenbrooke's Hospital, Cambridge, UK.; Department of Medicine, University of Cambridge, Cambridge, UK., Ezgu F; Department and Laboratory of Paediatric Metabolic Disorders, Gazi University, Ankara, Turkey., Frustaci A; Department of Cardiovascular, Respiratory, Nephrologic, Geriatric and Anesthesiologic Sciences, University of Rome La Sapienza, Rome, Italy., Lidove O; Department of Internal Medicine-Rheumatology, Croix Saint Simon Hospital, Paris, France., Linhart A; Department of Cardiovascular Medicine, First Faculty of Medicine, Charles University and General University Hospital, Prague, Czech Republic., Lubanda JC; Department of Cardiovascular Medicine, First Faculty of Medicine, Charles University and General University Hospital, Prague, Czech Republic., Moon JC; Cardiac Imaging Department, Barts Heart Centre, London, UK., Nicholls K; Department of Nephrology, Royal Melbourne Hospital, Parkville, Victoria, Australia.; Department of Medicine, The University of Melbourne - Parkville Campus, Melbourne, Victoria, Australia., Niu DM; Department of Pediatrics, Taipei Veterans General Hospital, Taipei, Taiwan.; Institute of Clinical Medicine, National Yang-Ming University, Taipei, Taiwan., Nowak A; Department of Endocrinology and Clinical Nutrition, University Hospital Zurich and University of Zurich, Zurich, Switzerland.; Department of Internal Medicine, Psychiatry University Hospital Zurich, Zurich, Switzerland., Ramaswami U; Lysosomal Storage Disorders Unit, Royal Free Hospital, London, UK., Reisin R; Department of Neurology, British Hospital of Buenos Aires, Buenos Aires, Argentina., Rozenfeld P; Instituto de Estudios Inmunológicos y Fisiopatológicos, UNLP - CONICET, La Plata, Argentina., Schiffmann R; Institute of Metabolic Disease, Baylor Research Institute, Dallas, Texas, USA., Svarstad E; Department of Clinical Medicine, University of Bergen, Bergen, Norway.; Department of Medicine, Haukeland University Hospital, Bergen, Norway., Thomas M; Department of Nephrology, Royal Perth Hospital, Perth, Western Australia, Australia., Torra R; Inherited Renal Diseases Unit, Autonomous University of Barcelona, Barcelona, Spain., Vujkovac B; Department of Internal Medicine, General Hospital Slovenj Gradec, Slovenj Gradec, Slovenia., Warnock DG; Division of Nephrology, University of Alabama at Birmingham, Birmingham, Alabama, USA., West ML; Medicine, Dalhousie University, Halifax, Nova Scotia, Canada., Johnson J; Fabry Support & Information Group, Concordia, Missouri, USA.; Fabry International Network, Beveren, Belgium., Rolfe MJ; Oxford PharmaGenesis, Oxford, UK., Feriozzi S; Division of Nephrology, Belcolle Hospital, Viterbo, Italy.

Publikováno v: BMJ open [BMJ Open] 2020 Oct 10; Vol. 10 (10), pp. e035182. Date of Electronic Publication: 2020 Oct 10.

Clinical staging of Anderson-Fabry cardiomyopathy: An operative proposal.

Autor: Del Franco A; Cardiomyopathy Unit, Careggi University Hospital, Florence, Italy., Iannaccone G; Department of Cardiovascular Medicine, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy., Meucci MC; Department of Cardiovascular Medicine, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy., Lillo R; Department of Cardiovascular Medicine, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy., Cappelli F; Cardiomyopathy Unit, Careggi University Hospital, Florence, Italy.; Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy., Zocchi C; Cardiovascular Department, San Donato Hospital, Arezzo, Italy., Pieroni M; Cardiovascular Department, San Donato Hospital, Arezzo, Italy., Graziani F; Department of Cardiovascular Medicine, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy. francesca.graziani@policlinicogemelli.it., Olivotto I; Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy.; Cardiology Unit, Meyer University Hospital, Florence, Italy.

Publikováno v: Heart failure reviews [Heart Fail Rev] 2024 Mar; Vol. 29 (2), pp. 431-444. Date of Electronic Publication: 2023 Nov 25.