How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register.

Autor: Kerina H Jones, David V Ford, Philip A Jones, Ann John, Rodden M Middleton, Hazel Lockhart-Jones, Jeffrey Peng, Lisa A Osborne, J Gareth Noble

Publikováno v: PLoS ONE, Vol 8, Iss 6, p e65640 (2013)

The EQ-5D is a widely-used, standardised, quality of life measure producing health profiles, indices and states. The aims of this study were to assess the role of various factors in how people with Multiple Sclerosis rate their quality of life, based

Externí odkaz: https://doaj.org/article/da103ccfbaa548ab8ff73d628ab93285

A large-scale study of anxiety and depression in people with Multiple Sclerosis: a survey via the web portal of the UK MS Register.

Autor: Kerina H Jones, David V Ford, Philip A Jones, Ann John, Rodden M Middleton, Hazel Lockhart-Jones, Lisa A Osborne, J Gareth Noble

Publikováno v: PLoS ONE, Vol 7, Iss 7, p e41910 (2012)

Studies have found that people with Multiple Sclerosis experience relatively high rates of anxiety and depression. Although methodologically robust, many of these studies had access to only modest sample sizes (N4000) to: describe the depression and

Externí odkaz: https://doaj.org/article/10908d7e8fcd49489010f87fab258193

SARS-CoV-2 vaccination in patients with multiple sclerosis in Germany and the United Kingdom: Gender-specific results from a longitudinal observational study

Autor: Niklas Frahm, Firas Fneish, David Ellenberger, Judith Haas, Micha Loebermann, Tina Parciak, Melanie Peters, Dieter Pöhlau, Jeff Rodgers, Anna-Lena Röper, Sarah Schilling, Alexander Stahmann, Herbert Temmes, Uwe K. Zettl, Rodden M. Middleton

Background Vaccines offer people with multiple sclerosis (PwMS) an effective protection against severe COVID-19 disease courses. However, representative real-world data on the tolerability of SARS-CoV-2 vaccines in PwMS are limited. We aimed at analy

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4e201399582501d764a5efa4f4114408
https://cronfa.swan.ac.uk/Record/cronfa61480/Download/61480__25537__20b8a19244f949519d68fadcb6099a74.pdf

1298Associations of DMT therapies with COVID-19 severity in multiple sclerosis

Autor: Lotte Geyes, Nikola Lazovski, Ingrid van der Mei, Ricardo Alonso, Anna Glaser, Tomas Kalincik, Tina Parciak, Rumen Ivanov, Richard Nicholas, Arnfin Bergmann, Gilles Edan, Ashkan Pirmani, Hollie Schmidt, Amber Salter, Robert J. Fox, Steve Simpson-Yap, Johana Bauer, Jan Hillert, Liesbet Peeters, Giancarlo Comi, Amin Ardeshirdavani, Helmut Butzkueven, Alexander Fidao, Anibal Chertcoff, Alice Estavo Dias, Robert N. McBurney, Melinda Magyari, Lars Forsberg, Ana Zabalza, Georgina Arrambide, Alexander Stahmann, Rodden M. Middleton, Nupur Nag, Doralina Guimarães Brum, Nick Rijke, Guilherme Sciascia do Olival, Tim Spelman, Juan Ignacio Rojas, Edward De Brouwer, Clare Walton, Anneke van der Walt, Clément Gautrais, Maria Fernandes Mendes, Stefan Braune

Publikováno v: International Journal of Epidemiology. 50

Background People with multiple sclerosis (MS) are a vulnerable group for severe COVID-19, particularly those taking immunosuppressive disease-modifying therapies (DMTs). We examined the characteristics of COVID-19 severity in an international sample

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::ec6c0ecd24b8515b27b91736b9e19442
https://doi.org/10.1093/ije/dyab168.604

Multiple sclerosis registries in Europe - An updated mapping survey

Autor: Maura Pugliatti, Kerstin Hellwig, Jaume Sastre-Garriga, Jens Kuhle, Jan Hillert, Peter Flachenecker, Giampaolo Brichetto, Otto Rienhoff, Konstantinos Notas, P. Seeldrayers, K. Lycke, Susana Otero-Romero, Anna Glaser, Merja Soilu-Hänninen, Kjell-Morten Myhr, A.C. de Giacomoni, Tjalf Ziemssen, Tatjana Pekmezovic, Paola Zaratin, Helmut Butzkueven, Maria Trojano, Mario Alberto Battaglia, Kerstin Eichstädt, Romain Casey, Melinda Magyari, Pietro Iaffaldano, Alexander Stahmann, Sandra Vukusic, Waldemar Brola, Christoph Thalheim, Jelena Drulovic, T. Meissner, E. Ioannidou, Rodden M. Middleton, T. Malbaša, Leszek Stawiarz, Dana Horakova, Anastasios Orologas

Publikováno v: Glaser, A, Stahmann, A, Meissner, T, Flachenecker, P, Horáková, D, Zaratin, P, Brichetto, G, Pugliatti, M, Rienhoff, O, Vukusic, S, de Giacomoni, A C, Battaglia, M A, Brola, W, Butzkueven, H, Casey, R, Drulovic, J, Eichstädt, K, Hellwig, K, Iaffaldano, P, Ioannidou, E, Kuhle, J, Lycke, K, Magyari, M, Malbaša, T, Middleton, R, Myhr, K M, Notas, K, Orologas, A, Otero-Romero, S, Pekmezovic, T, Sastre-Garriga, J, Seeldrayers, P, Soilu-Hänninen, M, Stawiarz, L, Trojano, M, Ziemssen, T, Hillert, J & Thalheim, C 2019, ' Multiple sclerosis registries in Europe – An updated mapping survey ', Multiple Sclerosis and Related Disorders, vol. 27, pp. 171-178 . https://doi.org/10.1016/j.msard.2018.09.032

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3962a19a7a007d46f0d132b9608e7c16
https://doi.org/10.1016/j.msard.2018.09.032