The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

Autor: Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S

Publikováno v: Patient Related Outcome Measures, Vol Volume 14, Pp 369-381 (2023)

Andrew Campbell,1 Avery A Rizio,2 Kristen L McCausland,2 Serban Iorga,3 Glorian P Yen,3 Jincy Paulose,3 Soyon Lee3 1Children’s National Hospital, Washington, DC, USA; 2QualityMetric Incorporated LLC, Johnston, RI, USA; 3Novartis Pharmaceuticals Cor

Externí odkaz: https://doaj.org/article/f97dca1d5399402ca5dabdf6f49ab31c

Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group

Autor: Rizio AA, White MK, D’Souza A, Hsu K, Schmitt P, Quock TP, Signorovitch J, Lousada I, Sanchorawala V

Publikováno v: Patient Related Outcome Measures, Vol Volume 14, Pp 153-169 (2023)

Avery A Rizio,1 Michelle K White,1 Anita D’Souza,2 Kristen Hsu,3 Paula Schmitt,4 Tiffany P Quock,5 James Signorovitch,6 Isabelle Lousada,3 Vaishali Sanchorawala7 1QualityMetric Incorporated, LLC, Johnston, RI, USA; 2Froedtert & MCW Cancer Center, M

Externí odkaz: https://doaj.org/article/36420aee27184f0ba77f41fb89844f51

Content Validation of the ATTR Amyloidosis Patient Symptom Survey: Findings from Patient and Clinician Cognitive Debriefing Interviews

Autor: Rizio AA, Broderick LE, White MK, Quock TP

Publikováno v: Patient Related Outcome Measures, Vol Volume 11, Pp 149-160 (2020)

Avery A Rizio,1 Lynne E Broderick,1 Michelle K White,1 Tiffany P Quock2 1Optum Life Sciences, Patient Insights, Johnston, RI, USA; 2Prothena Biosciences Inc, South San Francisco, CA, USACorrespondence: Avery A RizioOptum Life Sciences, Patient Insigh

Externí odkaz: https://doaj.org/article/6d574aa49bb049cba8ee8612a88d595c

Health-related quality of life and symptom-specific functional impairment among patients treated with parenterally administered complement inhibitors for paroxysmal nocturnal hemoglobinuria.

Autor: Dingli D; Mayo Clinic, Rochester, MN, USA., Rizio AA; QualityMetric, An IQVIA Business, 1301 Atwood Avenue, Suite 216E, Johnston, RI, 02919, USA. arizio@qualitymetric.com., Broderick L; QualityMetric, An IQVIA Business, 1301 Atwood Avenue, Suite 216E, Johnston, RI, 02919, USA., LaGasse K; QualityMetric, An IQVIA Business, 1301 Atwood Avenue, Suite 216E, Johnston, RI, 02919, USA., Rucker S; QualityMetric, An IQVIA Business, 1301 Atwood Avenue, Suite 216E, Johnston, RI, 02919, USA., Carty MK; QualityMetric, An IQVIA Business, 1301 Atwood Avenue, Suite 216E, Johnston, RI, 02919, USA., Burton E; Jackson Heights, New York, NY, USA., Gordon S; Altantic Beach, Florida, FL, USA., Yen GP; Novartis Pharmaceuticals Corporation, East Hanover, NJ, USA., Paulose J; Novartis Pharmaceuticals Corporation, East Hanover, NJ, USA., Geevarghese A; Novartis Pharmaceuticals Corporation, East Hanover, NJ, USA., Lee S; Novartis Pharmaceuticals Corporation, East Hanover, NJ, USA.

Publikováno v: Annals of hematology [Ann Hematol] 2024 Nov 18. Date of Electronic Publication: 2024 Nov 18.

Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis.

Autor: Becker B; GlaxoSmithKline, Upper Providence, PA, USA. brandon.becker@bms.com.; Bristol Myers Squibb, Lawrenceville, NJ, USA. brandon.becker@bms.com., Raymond K; QualityMetric, Johnston, RI, USA., Hawkes C; GlaxoSmithKline, London, UK., Foster AM; QualityMetric, Johnston, RI, USA., Lovley A; QualityMetric, Johnston, RI, USA., Saucier C; QualityMetric, Johnston, RI, USA., Rizio AA; QualityMetric, Johnston, RI, USA., Bjorner JB; QualityMetric, Copenhagen, Denmark., Kosinski M; QualityMetric, Johnston, RI, USA.

Publikováno v: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2021 Jul 06; Vol. 5 (1), pp. 52. Date of Electronic Publication: 2021 Jul 06.