Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership

Autor: Tiffany Dal Santo, Meira Golberg, Elsa-Lynn Nassar, Marie-Eve Carrier, Sophie Hu, Linda Kwakkenbos, Susan J. Bartlett, Rina S. Fox, Yvonne C. Lee, John Varga, Andrea Benedetti, Brett D. Thombs, the Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team

Publikováno v: BMC Rheumatology, Vol 8, Iss 1, Pp 1-9 (2024)

Abstract Introduction Systemic sclerosis (SSc) is a rare, complex autoimmune rheumatic disease with multiple factors that contribute to pain. People with SSc emphasize the effect pain has on their quality of life, but no studies have systematically e

Externí odkaz: https://doaj.org/article/1b221b0ba16346d487a83b57e4a19497

Symptom burden profiles in men with advanced prostate cancer undergoing androgen deprivation therapy

Autor: Blanca Noriega Esquives, Tae K. Lee, Patricia I. Moreno, Rina S. Fox, Betina Yanez, Gregory E. Miller, Ryne Estabrook, Mark J. Begale, Sarah C. Flury, Kent Perry, Shilajit D. Kundu, Frank J. Penedo

Publikováno v: J Behav Med

To identify symptom burden profiles among men with advanced prostate cancer undergoing androgen-deprivation therapy and examine their association with baseline sociodemographic and medical characteristics and psychosocial outcomes over time. Latent p

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::35dace0c43633ee77aa0380f47bbf267
https://doi.org/10.1007/s10865-022-00288-4

How do patients interpret and respond to a single-item global indicator of cancer treatment tolerability?

Autor: John Devin Peipert, Sara Shaunfield, Karen Kaiser, Patricia I. Moreno, Rina S. Fox, Sheetal Kircher, Nisha Mohindra, Edward Ip, Fengmin Zhao, Lynne Wagner, David Cella

Publikováno v: Supportive Care in Cancer. 31

There is increasing interest in patient-reported measures of cancer treatment tolerability. A global measure of bother, the FACT GP5 item ("I am bothered by side effects of treatment") is potentially useful for regulatory, research, and clinical use.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cf466e65b6db925f8b624542639b63d3
https://doi.org/10.1007/s00520-022-07484-7

Examining the Efficacy of Bright Light Therapy on Cognitive Function in Hematopoietic Stem Cell Transplant Survivors

Autor: Lisa M. Wu, Heiddis B. Valdimarsdottir, Ali Amidi, Kathryn J. Reid, Sonia Ancoli-Israel, Katrin Bovbjerg, Rina S. Fox, Lauren Walker, Amreen Matharu, Erin T. Kaseda, John P. Galvin, Kehinde Adekola, Gary Winkel, Frank Penedo, William H. Redd

Publikováno v: Journal of biological rhythms, vol 37, iss 5
Wu, L M, Valdimarsdottir, H, Amidi, A, Reid, K J, Ancoli-Israel, S, Bovbjerg, K, Fox, R S, Walker, L, Matharu, A, Kaseda, E T, Galvin, J P, Adekola, K, Winkel, G, Penedo, F & Redd, W H 2022, ' Examining the efficacy of bright light therapy on cognitive function in hematopoietic stem cell transplant survivors ', Journal of Biological Rhythms, vol. 37, no. 5, pp. 471-483 . https://doi.org/10.1177/07487304221107833
J Biol Rhythms

Patients who have undergone hematopoietic stem cell transplant (HSCT) may experience cognitive impairment that can persist after treatment. Several studies have shown that bright light therapy may improve cognition, potentially due to its effects on

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::543beee06a0ce83c06e743243860b5dd
https://escholarship.org/uc/item/12c9h491

Effects of web-based cognitive behavioral stress management and health promotion interventions on neuroendocrine and inflammatory markers in men with advanced prostate cancer: A randomized controlled trial

Autor: Patricia I. Moreno, Ryne Estabrook, Rina S. Fox, Laura B. Oswald, Mark Begale, Robert T. Chatterton, Sarah C. Flury, Gregory E. Miller, David C. Mohr, Emily A. Walsh, Shilajit Kundu, Betina Yanez, Kent T. Perry, Frank J. Penedo

Publikováno v: Brain Behav Immun

Cognitive behavioral stress management (CBSM) improves quality of life and mitigates stress biology in patients with early-stage cancer, including men with localized prostate cancer. However, treatments for advanced prostate cancer like androgen depr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8a0cfefec6d21b95c7e32e470109b754
https://doi.org/10.1016/j.bbi.2021.03.014