Forced vital capacity trajectories in patients with idiopathic pulmonary fibrosis: a secondary analysis of a multicentre, prospective, observational cohort

Autor: Fainberg, HP, Oldham, JM, Molyneau, PL, Allen, RJ, Kraven, LM, Fahy, WA, Porte, J, Braybrooke, R, Saini, G, Karsdal, MA, Leeming, DJ, Sand, JMB, Triguero, I, Oballa, E, Wells, AU, Renzoni, E, Wain, LV, Noth, I, Maher, TM, Stewart, ID, Jenkins, RG

Publikováno v: e872
e862

Background Idiopathic pulmonary fibrosis is a progressive fibrotic lung disease with a variable clinical trajectory. Decline in forced vital capacity (FVC) is the main indicator of progression; however, missingness prevents long-term analysis of patt

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::62c323f869c37734f613aed9b1f1798d
https://doi.org/10.1016/s2589-7500(22)00173-x

Supplementary data: The burden and impact of cough in patients with idiopathic pulmonary fibrosis: an analysis of the prospective observational PROFILE study.

Autor: Saunders, P., Wu, Z., Fahy, W. A., Stewart, I. D., Saini, G., Smith, D. J. F., Braybrooke, R., Stock, C., Renzoni, E. A., Johnson, S. R., Jenkins, R. G., Belvisi, M. G., Smith, J. A., Maher, T. M., Molyneaux, P. L.

Publikováno v: Annals of the American Thoracic Society; Sep2023, Vol. 20 Issue 9, pE1-E8, 8p

Patient-reported outcomes and patient-reported outcome measures in interstitial lung disease: where to go from here?

Autor: Kalluri, M., Luppi, F., Vancheri, A., Vancheri, C., Balestro, E., Varone, F., Mogulkoc, N., Cacopardo, G., Bargagli, E., Renzoni, E., Torrisi, S., Calvello, M., Libra, A., Pavone, M., Bonella, F., Cottin, V., Valenzuela, C., Wijsenbeek, M., Bendstrup, E., 3rd International Summit for ILD (ISILD), Erice collaborators listed below: Carlo Albera, Goksel, Altinisik, Kjetil, Ask, Elisabetta, Balestro, Elena, Bargagli, Elisabeth, Bendstrup, Marialuisa, Bocchino, Francesco, Bonella, Martina, Bonifazi, Giulia, Cacopardo, Maria, Calvello, Diego, M Castillo, Nazia, Chaudhuri, Ulrich, Costabel, Vincent, Cottin, Bruno, Crestani, Manuela, Funke-Chambour, Jack, Gauldie, Peter, M George, Johannes, C Grutters, Sergio, Harari, Richard, G Jenkins, Kerri, A Johannson, Mark, G Jones, Meena, Kalluri, Michael, P Keane, Maria, A Kokosi, Michael, Kreuter, Donato, Lacedonia, Brett, Ley, Alessandro, Libra, Fabrizio, Luppi, Toby, M Maher, George, A Margaritopoulos, Fernando, J Martinez, Jelle, Miedema, Nesrin, Mogulkoc, Maria, Molina-Molina, Philip, L Molyneaux, Julie, Morisset, Stefano, Palmucci, Mauro, Pavone, Ganesh, R Raghu, Elisabetta, A Renzoni, Luca, Richeldi, Gianluca, Sambataro, Alfredo, Sebastiani, Paolo, Spagnolo, Giulia Maria Stella, Martina, Sterclova, Irina, Strambu, Tomassetti, Sara, Sebastiano, Torrisi, Jacopo, Simonetti, Haluk, Turktas, Argyrios, Tzouvelekis, Claudia, Valenzuela, Ada, Vancheri, Carlo, Vancheri, Francesco, Varone, Patrizio, Vitulo, Athol, U Wells, Marlies, S Wijsenbeek, Wim, A Wuyts

Publikováno v: Kalluri, M, Luppi, F, Vancheri, A, Vancheri, C, Balestro, E, Varone, F, Mogulkoc, N, Cacopardo, G, Bargagli, E, Renzoni, E, Torrisi, S, Calvello, M, Libra, A, Pavone, M, Bonella, F, Cottin, V, Valenzuela, C, Wijsenbeek, M & Bendstrup, E 2021, ' Patient-reported outcomes and patient-reported outcome measures in interstitial lung disease : Where to go from here? ', European Respiratory Review, vol. 30, no. 160, 210026 . https://doi.org/10.1183/16000617.0026-2021

Patient-reported outcome measures (PROMs), tools to assess patient self-report of health status, are now increasingly used in research, care and policymaking. While there are two well-developed disease-specific PROMs for interstitial lung diseases (I

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d275fa6f4c9d288e057b19ec86ed6b07
http://hdl.handle.net/10044/1/101501

Outcome of hospitalisation for COVID-19 in patients with interstitial lung disease: an international multicentre study

Autor: Drake, TM, Docherty, AB, Harrison, EM, Quint, JK, Adamali, H, Agnew, S, Babu, S, Barber, CM, Barratt, S, Bendstrup, E, Bianchi, S, Villegas, DC, Chaudhuri, N, Chua, F, Coker, R, Chang, W, Crawshaw, A, Crowley, LE, Dosanjh, D, Fiddler, CA, Forrest, IA, George, P, Gibbons, MA, Groom, K, Haney, S, Hart, SP, Heiden, E, Henry, M, Ho, L-P, Hoyles, RK, Hutchinson, J, Hurley, K, Jones, M, Jones, S, Kokosi, M, Kreuter, M, MacKay, L, Mahendran, S, Margaritopoulos, G, Molina-Molina, M, Molyneaux, PL, O’Brien, A, O’Reilly, K, Packham, A, Parfrey, H, Poletti, V, Porter, J, Renzoni, E, Rivera-Ortega, P, Russell, A-M, Saini, G, Spencer, LG, Stella, GM, Stone, H, Sturney, S, Thickett, D, Thillai, M, Wallis, T, Ward, K, Wells, AU, West, A, Wickremasinghe, M, Woodhead, F, Hearson, G, Howard, L, Baillie, JK, Openshaw, PJM, Semple, MG, Stewart, I, ISARIC4C Investigators, Jenkins, RG

Rationale: The impact of COVID-19 on patients with Interstitial Lung Disease (ILD) has not been established. Objectives: To assess outcomes following COVID-19 in patients with ILD versus those without in a contemporaneous age, sex and comorbidity mat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______1032::b5d3802b8669bfd9d0b9de804a66e7fc
http://hdl.handle.net/10044/1/81952

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