Zobrazeno 1 - 1
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pro vyhledávání: '"Rebecca Saad"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-5 (2024)
Abstract Many people living with a rare disease (RD) face challenges accessing timely diagnosis and disease-specific specialist care. Early health-care challenges for people living with Epidermolysis Bullosa (EB), a rare genetic disease affecting 1:2
Externí odkaz:
https://doaj.org/article/d27fb436861841df971e15d28b810570