A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing.

Autor: Neumann ML; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA; Department of Communication Studies, University of Nebraska- Lincoln, Lincoln, NE, USA. Electronic address: marie.neumann@unmc.edu., Allen JY; Department of Psychology, Birmingham-Southern College, Birmingham, AL, USA., Kakani S; Alabama Rare, Huntsville, AL, USA., Ladner A; Department of Epidemiology, RTI Health Solutions, Research Triangle Park, NC, USA., Rauen MH; The Global Gastroschisis Foundation, Raleigh, NC, USA., Weaver MS; Department of Pediatrics, Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, NE, USA; National Center for Ethics in Healthcare, Washington DC, USA., Mercer DF; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA.

Publikováno v: Journal of pediatric surgery [J Pediatr Surg] 2022 Sep; Vol. 57 (9), pp. 149-157. Date of Electronic Publication: 2021 Oct 01.