Broad consent for biobanks is best – provided it is also deep

Autor: Rasmus Bjerregaard Mikkelsen, Mickey Gjerris, Gunhild Waldemar, Peter Sandøe

Publikováno v: BMC Medical Ethics, Vol 20, Iss 1, Pp 1-12 (2019)

Abstract Background As biobank research has become increasingly widespread within biomedical research, study-specific consent to each study, a model derived from research involving traditional interventions on human subjects, has for the sake of feas

Externí odkaz: https://doaj.org/article/7ee3796696224724a09b98c7d7d0bb8f

Genetic Protection Modifications: Moving Beyond the Binary Distinction Between Therapy and Enhancement for Human Genome Editing

Autor: Henriette R. Frederiksen, Yonglun Luo, Poul Hyttel, Mickey Gjerris, Rasmus Bjerregaard Mikkelsen, Kristine K. Freude, Bjørn Holst, Peter Sandøe

Publikováno v: Mikkelsen, R B, Frederiksen, H R S, Gjerris, M, Holst, B, Hyttel, P, Luo, Y, Freude, K & Sandøe, P 2019, ' Genetic Protection Modifications : Moving Beyond the Binary Distinction Between Therapy and Enhancement for Human Genome Editing ', The CRISPR Journal, vol. 2, no. 6, pp. 362-369 . https://doi.org/10.1089/crispr.2019.0024

The current debate and policy surrounding the use of genome editing in humans typically relies on a binary distinction between therapy and human enhancement. Here, we argue that this dichotomy fails to take into account perhaps the most significant p

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::809e3283b4f1408e86e5e96e55d38fde
https://pubmed.ncbi.nlm.nih.gov/31860350