Zobrazeno 1 - 10
of 252
pro vyhledávání: '"Rare disease awareness"'
Autor:
Xuefeng Li, Xiangyu Zhang, Shu Zhang, Zijuan Lu, Jianyong Zhang, Jincheng Zhou, Bingzhe Li, Li Ou
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
Abstract Background It is estimated that there are over 16.8 million rare disease patients in China, representing a significant challenge for the healthcare system and society. Rare disease patients often experience delayed diagnosis, misdiagnosis, o
Externí odkaz:
https://doaj.org/article/169465fb629546f981a4cc817b0be550
Autor:
S. Sanges, M.-M. Farhat, M. Assaraf, J. Galland, E. Rivière, C. Roubille, M. Lambert, C. Yelnik, H. Maillard, V. Sobanski, G. Lefèvre, D. Launay, S. Morell-Dubois, E. Hachulla
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)
Abstract Background As lack of awareness of rare diseases (RDs) among healthcare professionals results in delayed diagnoses, there is a need for a more efficient approach to RD training during academic education. We designed an experimental workshop
Externí odkaz:
https://doaj.org/article/679cdcdb519749518f8c1f6cdc5acbbc
Akademický článek
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Akademický článek
Tento výsledek nelze pro nepřihlášené uživatele zobrazit.
K zobrazení výsledku je třeba se přihlásit.
K zobrazení výsledku je třeba se přihlásit.
Autor:
Laxmikant Vashishta, Purna Bapat, Yashodhara Bhattacharya, Mohua Chakraborty Choudhury, Narendra Chirmule, Susan D’Costa, Shilpa Jindani, Manohar Rao, Smritie Sheth
Rare diseases (RDs) are diseases that occur infrequently and affect a small fraction of the population. Although these diseases individually affect small number of people, together they affect 400 million people globally at any given time. In India,
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::af5d721db97158a6d859f81ec01098a0
https://doi.org/10.1101/2023.03.31.534989
https://doi.org/10.1101/2023.03.31.534989
Autor:
Zijuan Lu, Jincheng Zhou, Bingzhe Li, Xuefeng Li, Shu Zhang, Li Ou, Xiangyu Zhang, Jianyong Zhang
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
Background It is estimated that there are over 16.8 million rare disease patients in China, representing a significant challenge for the healthcare system and society. Rare disease patients often experience delayed diagnosis, misdiagnosis, or imprope
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8d621662a5445b79e7fddf868f7ed7ba
https://doi.org/10.21203/rs.3.rs-65651/v1
https://doi.org/10.21203/rs.3.rs-65651/v1
Autor:
Xuefeng Li, Xiangyu Zhang, Zhang, Shu, Zijuan Lu, Jianyong Zhang, Jincheng Zhou, Bingzhe Li, Ou, Li
Additional file 1. List of questions.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e4c969f837ac064c1b7393b8006ce422
The study was carried out to determine the levels of awareness and knowledge of physicians about rare diseases in Turkey. The study included 390 physicians selected with the convenience sampling method. A questionnaire form, which was prepared by the
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::df79ce1bce4f9920b510b3216a3547f7
https://doi.org/10.22541/au.160386665.57984763/v1
https://doi.org/10.22541/au.160386665.57984763/v1
Autor:
M. Assaraf, J. Galland, David Launay, Eric Hachulla, Etienne Rivière, C. Yelnik, M.M. Farhat, Sandrine Morell-Dubois, Hélène Maillard, Marc Lambert, C. Roubille, Guillaume Lefèvre, Vincent Sobanski, S. Sanges
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, BioMed Central, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)
Orphanet Journal of Rare Diseases, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩
Orphanet Journal of Rare Diseases, BioMed Central, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)
Orphanet Journal of Rare Diseases, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩
Background As lack of awareness of rare diseases (RDs) among healthcare professionals results in delayed diagnoses, there is a need for a more efficient approach to RD training during academic education. We designed an experimental workshop that used
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d30c346df336a7b6b4df8c7e1220545c
https://hal.archives-ouvertes.fr/hal-02880743/document
https://hal.archives-ouvertes.fr/hal-02880743/document