Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population

Autor: Allen, Jake, Angelo, Frank, Arnold, Briana L., Bellcross, Cecelia, Bendelow, Tiffany, B, Barbara, Biesecker, Breslin, Kristin D., Booker, Kristina F., Caruncho, Mikaella, Davis, James V., Deutsch, Sonia, Devine, Beth, Dorschner, Michael O., Duenas, Devan, Eubanks, Donna J., Feigelson, Heather Spencer, Freed, Amanda S., Greaney, Clay, Gruß, Inga, Guerra, Claudia, Guo, Boya, Holup, Joan, Ingphakorn, Chalinya L., Jackson, Paige, Jarvik, Gail P., Jenkins, Charisma L., Karliner, Leah S., Kaufmann, Tia, Keast, Erin, Knerr, Sarah, Koomas, Alyssa H., Kraft, Stephanie A., Lee, Mi H., Lee, Robin, Soo-Jin Lee, Sandra, Lewis, Hannah S., Liles, Elizabeth G., Lindberg, Nangel M., Lynch, Frances, McMullen, Carmit K., Medina, Elizabeth, Mittendorf, Kathleen F., Muessig, Kristin R., Okuyama, Sonia, Peterson, C. Samuel, Paolucci, Angela R., Perez, Rosse Rodriguez, Porter, Kathryn M., Ransom, Chelese L., Reyes, Ana, Robinson, Sperry, Rolf, Bradley A., Rope, Alan F., Schield, Emily, Schneider, Jennifer L., Shipman, Kelly J., Shirts, Brian H., Shuster, Elizabeth, Syngal, Sapna, Torgrimson-Ojerio, Britta N., Ukaegbu, Chinedu, Vandermeer, Meredith L., Varga, Alexandra M., Veenstra, David L., Whitebirch, W. Chris, Lee White, Larissa, Hunter, Jessica Ezzell, Riddle, Leslie, Joseph, Galen, Amendola, Laura M., Gilmore, Marian J., Zepp, Jamilyn M., Bulkley, Joanna E., Anderson, Katherine P., Goddard, Katrina A.B., Wilfond, Benjamin S., Leo, Michael C.

Publikováno v: In Genetics in Medicine November 2023 25(11)

Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol’s evolution

Autor: Kraft, Stephanie A. ^*, McMullen, Carmit, Lindberg, Nangel M., Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M., Porter, Kathryn M., Kauffman, Tia L., Koomas, Alyssa, Ransom, Chelese L., Jackson, Paige, Goddard, Katrina A.B., Wilfond, Benjamin S., Lee, Sandra Soo-Jin

Publikováno v: In Genetics in Medicine June 2020 22(6):1094-1101

Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution

Autor: Kraft, Stephanie A, McMullen, Carmit, Lindberg, Nangel M, Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M, Porter, Kathryn M, Kauffman, Tia L, Koomas, Alyssa, Ransom, Chelese L, Jackson, Paige, Goddard, Katrina AB, Wilfond, Benjamin S, Lee, Sandra Soo-Jin

Publikováno v: Genetics in medicine : official journal of the American College of Medical Genetics, vol 22, iss 6

PurposeThis study describes challenges faced while incorporating sometimes conflicting stakeholder feedback into study design and development of patient-facing materials for a translational genomics study aiming to reduce health disparities among div

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od_______325::e4a52c1ab6106c9dbf831bd1d0ab8713
https://escholarship.org/uc/item/7nf1m2vj

Laboratory-related outcomes from integrating an accessible delivery model for hereditary cancer risk assessment and genetic testing in populations with barriers to access

Autor: Amendola, Laura M., Shuster, Elizabeth, Leo, Michael C., Dorschner, Michael O., Rolf, Bradley A., Shirts, Brian H., Gilmore, Marian J., Okuyama, Sonia, Zepp, Jamilyn M., Kauffman, Tia L., Mittendorf, Kathleen F., Bellcross, Cecilia, Jenkins, Charisma L., Joseph, Galen, Riddle, Leslie, Syngal, Sapna, Ukaegbu, Chinedu, Goddard, Katrina A.B., Wilfond, Benjamin S., Jarvik, Gail P., Allen, Jake, Amendola, Laura M., Anderson, Katherine P., Angelo, Frank, Arnold, Briana L., Bellcross, Cecelia, Bendelow, Tiffany, Biesecker, Barbara B., Breslin, Kristin D., Bulkley, Joanna E., Booker, Kristina F., Caruncho, Mikaella, Davis, James V., Deutsch, Sonia, Devine, Beth, Dorschner, Michael O., Duenas, Devan M., Eubanks, Donna J., Feigelson, Heather Spencer, Freed, Amanda S., Gilmore, Marian J., Goddard, Katrina A.B., Greaney, Clay, Gruß, Inga, Guerra, Claudia, Guo, Boya, Holup, Joan, Hunter, Jessica Ezzell, Ingphakorn, Chalinya L., Jackson, Paige, Jarvik, Gail P., Jenkins, Charisma L., Joseph, Galen, Karliner, Leah S., Kauffman, Tia L., Keast, Erin, Knerr, Sarah, Koomas, Alyssa H., Kraft, Stephanie A., Lee, Mi H., Lee, Robin, Soo-Jin Lee, Sandra, Leo, Michael C., Lewis, Hannah S., Liles, Elizabeth G., Lindberg, Nangel M., Lynch, Frances, McMullen, Carmit K., Medina, Elizabeth, Mittendorf, Kathleen F., Muessig, Kristin R., Okuyama, Sonia, Peterson, C. Samuel, Paolucci, Angela R., Perez, Rosse Rodriguez, Porter, Kathryn M., Ransom, Chelese L., Reyes, Ana, Riddle, Leslie S., Robinson, Sperry, Rolf, Bradley A., Rope, Alan F., Schield, Emily, Schneider, Jennifer L., Shipman, Kelly J., Shirts, Brian H., Shuster, Elizabeth, Syngal, Sapna, Torgrimson-Ojerio, Britta N., Ukaegbu, Chinedu, Vandermeer, Meredith L., Varga, Alexandra M., Veenstra, David L., Whitebirch, W. Chris, Lee White, Larissa, Wilfond, Benjamin S., Zepp, Jamilyn M.

Publikováno v: Genetics in Medicine; 20220101, Issue: Preprints