Research priorities for childhood chronic conditions: a workshop report

Autor: Lopez-Vargas, P, Tong, A, Crowe, S, Alexander, SI, Caldwell, PHY, Campbell, DE, Couper, J, Davidson, A, De, S, Fitzgerald, DA, Haddad, S, Hill, S, Howell, M, Jaffe, A, James, LJ, Ju, A, Manera, KE, McKenzie, A, Morrow, AM, Odgers, HL, Pinkerton, R, Ralph, AF, Richmond, P, Shaw, PJ, Singh-Grewal, D, Van Zwieten, A, Wake, M, Craig, JC, Bowyer, A, Valerio, C, Kambi, C, Guha, C, Walker, C, Kambi, D, Elharris, F, Pagano, G, Stumbles, J, Gile, J, Wong, K, Black, K, Bowyer, M, Harris, M, Lin, P, Jones, P, McGann, P, Pagano, P, Elhassan, R, Cole, S, Fernance, Z, Brown, A, Blake, J, Keath, J, Chandler, J, Griffin, L, Harnett, L, Fernandez, ML, Jackson, M, Haskard, M, Burke, N, Gardos, R, Brophy, S, Bowers, A, Ralph, A, van Zwieten, A, Penna, A, Wyse, B, Scanlan, C, Rogers, C, Cowell, C, Spencer, G, Hiscock, H, Odgers, H, Puusepp-Benazzouz, H, Razee, H, Boyle, J, Belcher, J, Craig, J, Ozimek-Kulik, J, Bau, K, Manera, K, James, L, Mimmo, L, Hallowell, L, Wallen, M, Bowden, M, Nassar, N, Lopez-Varga, P, Karlsson, P, Carlson, S, Hall, S, Sheppard-Law, S, Wilson, Y

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od_______363::8f39f46a72a681ab214ece2b8232aa20
https://hdl.handle.net/10453/135695

Management of eating disorders for people with higher weight: clinical practice guideline.

Autor: Ralph AF; National Eating Disorders Collaboration, Sydney, Australia. Angelique.ralph@nedc.com.au., Brennan L; School of Psychology and Public Health, La Trobe University, Wodonga, Australia., Byrne S; Department of Psychology, University of Western Australia, Perth, Australia., Caldwell B; Eating Disorders Victoria, Melbourne, Australia., Farmer J; Lived Experience Advocate, Melbourne, Australia., Hart LM; School of Psychology and Public Health, La Trobe University, Melbourne, Australia., Heruc GA; Eating Disorders and Nutrition Research Group (ENRG), School of Medicine, Western Sydney University, Sydney, Australia., Maguire S; InsideOut Institute for Eating Disorders, The Boden Collaboration for Obesity, Nutrition, Exercise and Eating Disorders, The University of Sydney, Sydney, Australia.; Sydney Local Health District, NSW Health, Sydney, Australia., Piya MK; School of Medicine, Western Sydney University, Macarthur Clinical School, Sydney, Australia.; Camden and Campbelltown Hospitals, Sydney, Australia., Quin J; Lived Experience Advocate, Melbourne, Australia., Trobe SK; National Eating Disorders Collaboration, Sydney, Australia., Wallis A; Sydney Children's Hospitals Network, The Children's Hospital Westmead, Sydney, Australia., Williams-Tchen AJ; Lived Experience Advocate, Melbourne, Australia., Hay P; Eating Disorders and Body Image (EDBI), Translational Health Research Institute, School of Medicine, Western Sydney University, Sydney, Australia.; South Western Sydney Local Health District, Sydney, Australia.

Publikováno v: Journal of eating disorders [J Eat Disord] 2022 Aug 18; Vol. 10 (1), pp. 121. Date of Electronic Publication: 2022 Aug 18.

The experiences and impact of being deemed ineligible for living kidney donation: Semi-structured interview study.

Autor: Ralph AF; School of Psychology, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia., Chadban SJ; Kidney Node, Charles Perkins Centre, The University of Sydney, Camperdown, New South Wales, Australia.; Renal Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia., Butow P; School of Psychology, The University of Sydney, Sydney, New South Wales, Australia.; Psycho-oncology Co-operative Research Group, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Medical Psychology & Evidence-based Decision-making, The University of Sydney, Sydney, New South Wales, Australia., Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia., Kanellis J; Department of Nephrology, Monash Health and Centre for Inflammatory Diseases, Department of Medicine, Monash University, Melbourne, Victoria, Australia., Wong G; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Logeman C; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Tong A; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.

Publikováno v: Nephrology (Carlton, Vic.) [Nephrology (Carlton)] 2020 Apr; Vol. 25 (4), pp. 339-350. Date of Electronic Publication: 2019 Jul 25.

Identifying Important Outcomes for Young People With CKD and Their Caregivers: A Nominal Group Technique Study.

Autor: Hanson CS; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia. Electronic address: camilla.hanson@sydney.edu.au., Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Craig JC; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia; College of Medicine and Public Health, Flinders University, Adelaide., Bernays S; Sydney School of Public Health, The University of Sydney, Sydney, Australia., Raman G; College of Medicine and Public Health, Flinders University, Adelaide., Zhang Y; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., James LJ; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Ralph AF; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Ju A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Manera KE; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Teixeira-Pinto A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Viecelli AK; Department of Nephrology, Princess Alexandra Hospital, Faculty of Medicine, University of Queensland, Brisbane, Australia., Alexander SI; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia., Blydt-Hansen TD; Department of Pediatrics, BC Children's Hospital and University of British Columbia, Vancouver, Canada., Dionne J; Department of Pediatrics, BC Children's Hospital and University of British Columbia, Vancouver, Canada., McTaggart S; Child and Adolescent Renal Service, Lady Cilento Children's Hospital and University of Queensland, Brisbane, Australia., Michael M; Pediatrics-Renal, Texas Children's Hospital/Baylor College of Medicine, Houston, TX., Walker A; Department of Nephrology, Royal Children's Hospital Melbourne, University of Melbourne and Murdoch Children's Research Institute, Victoria Australia; Department of Pediatrics, University of Melbourne and Murdoch Children's Research Institute, Victoria Australia., Carter S; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia; Department of Nephrology, Royal Children's Hospital Melbourne, University of Melbourne and Murdoch Children's Research Institute, Victoria Australia; Department of Pediatrics, University of Melbourne and Murdoch Children's Research Institute, Victoria Australia., Wenderfer SE; Pediatrics-Renal, Texas Children's Hospital/Baylor College of Medicine, Houston, TX., Winkelmayer WC; Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, TX., Bockenhauer D; UCL Centre for Nephrology and Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Dart A; Department of Pediatrics and Child Health, The Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, Canada., Eddy AA; Department of Pediatrics, BC Children's Hospital and University of British Columbia, Vancouver, Canada., Furth SL; Departments of Pediatrics and Epidemiology, Perelman School of Medicine, Division of Nephrology, The Children's Hospital of Philadelphia, Philadelphia, PA., Gipson DS; Department of Pediatrics, School of Medicine, University of Michigan, Ann Arbor, MI., Goldstein SL; Division of Nephrology and Hypertension, Cincinnati Children's Hospital Medical Center, Cincinnati, OH., Groothoff J; Department of Pediatric Nephrology, Emma Children's Hospital AMC Academic Medical Center, Amsterdam, the Netherlands., Samuel S; Department of Pediatrics, Section of Nephrology, University of Calgary, Calgary, Canada., Sinha A; Division of Nephrology, Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, India., Webb NJA; Department of Pediatric Nephrology and NIHR/Wellcome Trust Clinical Research Facility, University of Manchester, Manchester Academic Health Science Centre, Royal Manchester Children's Hospital, Manchester, United Kingdom., Yap HK; Department of Pediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore., Zappitelli M; Department of Pediatrics, Division of Nephrology, Toronto Hospital for Sick Children, University of Toronto, Toronto, Canada., Currier H; Pediatrics-Renal, Texas Children's Hospital/Baylor College of Medicine, Houston, TX., Tong A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.

Publikováno v: American journal of kidney diseases : the official journal of the National Kidney Foundation [Am J Kidney Dis] 2019 Jul; Vol. 74 (1), pp. 82-94. Date of Electronic Publication: 2019 Mar 15.

Research priorities for childhood chronic conditions: a workshop report.

Autor: Lopez-Vargas P; Kids Research Institute, The Children's Hospital, Westmead, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia., Tong A; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Crowe S; Crowe Associates Ltd, Oxon, UK., Alexander SI; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Department of Nephrology, The Children's Hospital, Westmead, New South Wales, Australia., Caldwell PHY; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Department of Nephrology, The Children's Hospital, Westmead, New South Wales, Australia.; Discipline of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia., Campbell DE; Discipline of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.; Department of Allergy and Immunology, The Children's Hospital, Westmead, New South Wales, Australia., Couper J; Women's and Children's Hospital Adelaide, North Adelaide, South Australia, Australia.; Robinson Research Institute, The University of Adelaide, Adelaide, South Australia, Australia., Davidson A; Department of Anaesthesiology, Royal Children's Hospital, Melbourne, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.; Murdoch Children's Research Institute, Melbourne, Victoria, Australia., De S; Department of Nephrology, The Children's Hospital, Westmead, New South Wales, Australia., Fitzgerald DA; Department of Respiratory Medicine, The Children's Hospital, Westmead, New South Wales, Australia., Haddad S; Patient and Carer Representative, Sydney, Australia., Hill S; Centre for Health Communication and Participation, La Trobe University, Melbourne, Victoria, Australia., Howell M; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Jaffe A; Department of Respiratory Medicine, Sydney Children's Hospital, Randwick, New South Wales, Australia.; School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia., James LJ; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Ju A; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Manera KE; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., McKenzie A; Western Australian Health Translation Network, The University of Western Australia, Perth, Western Australia, Australia., Morrow AM; Discipline of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.; Kids Rehab, The Children's Hospital, Westmead, New South Wales, Australia., Odgers HL; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Pinkerton R; Hummingbird House - Children's Hospice, Brisbane, Queensland, Australia., Ralph AF; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; School of Psychology, The University of Sydney, Sydney, New South Wales, Australia., Richmond P; Division of Paediatrics, School of Medicine, The University of Western Australia, Perth, Western Australia, Australia.; Department of General Paediatrics and Immunology, Princess Margaret Hospital for Children, Subiaco, Western Australia, Australia., Shaw PJ; Cancer Centre for Children, The Children's Hospital, Westmead, New South Wales, Australia., Singh-Grewal D; Department of Rheumatology, The Children's Hospital, Westmead, New South Wales, Australia., van Zwieten A; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia., Wake M; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.; Murdoch Children's Research Institute, Melbourne, Victoria, Australia.; Department of Paediatrics & The Liggins Institute, The University of Auckland, Auckland, New Zealand., Craig JC; Centre for Kidney Research, The Children's Hospital, Westmead, New South Wales, Australia.; College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.

Publikováno v: Archives of disease in childhood [Arch Dis Child] 2019 Mar; Vol. 104 (3), pp. 237-245. Date of Electronic Publication: 2018 Oct 02.