Issues in Open Data: Indigenous data sovereignty

Autor: Rainie, SC, Kukutai, T, Walter, M, Figueroa-Rodriguez, OL, Walker, J, Axelsson, P

Chapter 21in the book The State of Open Data: Histories and Horizons.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8f02b7b059504197c583b56b742b888d

Genomic Research Through an Indigenous Lens: Understanding the Expectations.

Autor: Garrison NA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington 98101, USA.; Department of Pediatrics, University of Washington, Seattle, Washington 98101, USA; email: nanibaa@uw.edu., Hudson M; Faculty of Māori and Indigenous Studies, University of Waikato, Hamilton 3240, New Zealand; email: maui.hudson@waikato.ac.nz., Ballantyne LL; Department of Medical Genetics, University of British Columbia, Vancouver, British Columbia V6H 3N1, Canada; email: leah.ballantyne@ubc.ca., Garba I; James E. Rogers College of Law, University of Arizona, Tucson, Arizona 85721, USA.; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona 85719, USA; email: garbai@email.arizona.edu, andrewmartinez@email.arizona.edu, scrainie@email.arizona.edu., Martinez A; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona 85719, USA; email: garbai@email.arizona.edu, andrewmartinez@email.arizona.edu, scrainie@email.arizona.edu., Taualii M; Center for Health Research, Kaiser Permanente, Honolulu, Hawaii 96817, USA; email: maile.m.taualii@kp.org., Arbour L; Department of Medical Genetics, University of British Columbia, Vancouver, British Columbia V6H 3N1, Canada; email: leah.ballantyne@ubc.ca.; Division of Medical Sciences, University of Victoria, Victoria, British Columbia V8W 2Y2, Canada; email: larbour@uvic.ca., Caron NR; Department of Surgery and Northern Medical Program, University of British Columbia, Prince George, British Columbia V2N 4Z9, Canada.; Centre for Excellence in Indigenous Health, University of British Columbia, Vancouver, British Columbia V6T 1Z3, Canada.; Canada's Michael Smith Genome Sciences Centre, BC Cancer Agency, Vancouver, British Columbia V5Z 1L3, Canada; email: nadine.caron@ubc.ca., Rainie SC; Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona 85719, USA; email: garbai@email.arizona.edu, andrewmartinez@email.arizona.edu, scrainie@email.arizona.edu.; Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, Arizona 85724, USA.

Publikováno v: Annual review of genomics and human genetics [Annu Rev Genomics Hum Genet] 2019 Aug 31; Vol. 20, pp. 495-517. Date of Electronic Publication: 2019 Mar 20.