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[Network references for rare diseases: state of the art for the paroxysmal nocturnal hemoglobinuria]
Autor:
Rossella, Alfano, Raffele, Palladino, Antonio, Risitano, Teresa, De Pascale, Maddalena, Raia, Davide, Castrianni, Marina Silvia, Scamardo, Vincenza, Cerbone, Daniela, Schiavone, Gaetano, D'Onofrio, Gaetano, Buonocore, Maria, Triassi, Luigi, Del Vecchio, Fabiana, Rubba
Publikováno v:
Epidemiologia e prevenzione. 42(5-6)
recently, healthcare network models have been proposed to improve general awareness of rare diseases for patients and specific knowledge about diagnosis, treatment, and management for healthcare services. Paroxysmal nocturnal hemoglobinuria (PNH) is
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::591b3b5277e9a13a9e8db8038dc627f3
https://pubmed.ncbi.nlm.nih.gov/30370735
https://pubmed.ncbi.nlm.nih.gov/30370735
