Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs

Autor: Peter Knapp, Thirimon Moe-Byrne, Jacqueline Martin-Kerry, Rebecca Sheridan, Jenny Roche, Elizabeth Coleman, Peter Bower, Steven Higgins, Catherine Stones, Jonathan Graffy, Jenny Preston, Carrol Gamble, Bridget Young, Daniel Perry, Annegret Dahlmann-Noor, Mohamed Abbas, Payal Khandelwal, Siobhan Ludden, Augusto Azuara-Blanco, Emma McConnell, Nicky Mandall, Anna Lawson, Chris A. Rogers, Helena J. M. Smartt, Rachael Heys, Simon R. Stones, Danielle Horton Taylor, Sophie Ainsworth, Jenny Ainsworth

Publikováno v: BMC Medicine, Vol 21, Iss 1, Pp 1-16 (2023)

Abstract Background Randomised controlled trials are often beset by problems with poor recruitment and retention. Information to support decisions on trial participation is usually provided as printed participant information sheets (PIS), which are o

Externí odkaz: https://doaj.org/article/f3584472f3e7491e94480c63ed08679a

Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019

Autor: Eve M. D. Smith, Sammy Ainsworth, Michael W. Beresford, Veerle Buys, Wendy Costello, Yona Egert, Helen E. Foster, Lovro Lamot, Berent J. Prakken, Christiaan Scott, Simon R. Stones

Publikováno v: Pediatric Rheumatology Online Journal, Vol 18, Iss 1, Pp 1-6 (2020)

Abstract There is a lack of awareness of paediatric rheumatic diseases (PRDs), among the public, and certain groups of healthcare professionals (HCPs), including general practitioners. To help improve international awareness and understanding of PRDs

Externí odkaz: https://doaj.org/article/aec2064cc775432d9a209c608eed9d10

Analysing and reporting of observational data: a systematic review informing the EULAR points to consider when analysing and reporting comparative effectiveness research with observational data in rheumatology

Autor: Bruno Fautrel, Tanja A Stamm, Ziga Rotar, Delphine S Courvoisier, Maarten de Wit, Sytske Anne Bergstra, Simon R Stones, Joanna Kedra, Anja Strangfeld, Kimme L Hyrich, Lykke M Ørnbjerg

Publikováno v: RMD Open, Vol 7, Iss 3 (2021)

Externí odkaz: https://doaj.org/article/36f80356e45d4fbf8eeee23ca796e19b

Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials

Autor: Frances C. Sherratt, Louise Roper, Simon R. Stones, Flora McErlane, Matthew Peak, Michael W. Beresford, Helen Foster, Athimalaipet V. Ramanan, Madeleine Rooney, Eileen Baildam, Bridget Young

Publikováno v: Pediatric Rheumatology Online Journal, Vol 16, Iss 1, Pp 1-9 (2018)

Abstract Background Patient recruitment can be very challenging in paediatric studies, especially in relatively uncommon conditions, such as juvenile idiopathic arthritis (JIA). However, involving children and young people (CYP) in the design of such

Externí odkaz: https://doaj.org/article/d0fd698ee2544f9b9e3e085fece94c90

Points to consider

Autor: Alessia Alunno, Tadej Avcin, Catherine Haines, Sofia Ramiro, Francisca Sivera, Sara Badreh, Xenofon Baraliakos, Johannes W J Bijlsma, Frank Buttgereit, Kaushik Chaudhuri, Jose A P Da Silva, Jean Dudler, Ricardo J O Ferreira, Tania Gudu, Eric Hachulla, Mette Holland-Fischer, Annamaria Iagnocco, Tue Wenzel Kragstrup, György Nagy, Vasco C Romão, Simon R Stones, Marloes van Onna, Christopher J Edwards

Publikováno v: Alunno, A, Avcin, T, Haines, C, Ramiro, S, Sivera, F, Badreh, S, Baraliakos, X, Bijlsma, J W J, Buttgereit, F, Chaudhuri, K, Da Silva, J A P, Dudler, J, Ferreira, R J O, Gudu, T, Hachulla, E, Holland-Fischer, M, Iagnocco, A, Kragstrup, T W, Nagy, G, Romão, V C, Stones, S R, van Onna, M & Edwards, C J 2023, ' Points to consider : EULAR-UEMS standards for the training of European rheumatologists ', Annals of the Rheumatic Diseases . https://doi.org/10.1136/ard-2023-223941

© Author(s) (or their employer(s)) 2023. No commercial re-use. See rights and permissions. Published by BMJ.
Background: Postgraduate rheumatology training programmes are already established at a national level in most European countries. Howev

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8ac3a92d7b3c96e1d07f9d98873663ed
https://hdl.handle.net/1887/3630379