Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study

Autor: Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw

Publikováno v: JMIR Human Factors, Vol 11, p e48359 (2024)

BackgroundTo enable personalized treatment and shared decision-making in chronic care, relevant health information is collected. However, health information is often fragmented across hospital information systems, digital health apps, and questionnai

Externí odkaz: https://doaj.org/article/7ed4400b56f64fc9980de1011ad6ad83

SOUR PATCH KIDS(R) and Snapple(R) Brands Partner for Flavor-Packed Candy Collaboration.

Publikováno v: Food Weekly News; 7/25/2024, p176-176, 1p

Protocol of a Randomised, Single Blind, Placebo-controlled RESCAP Intervention Study to Determine the Safety of RESCAP in Diabetes: RAPID Protocol – Rationale and Design

Autor: V Popov, R Brands, N Bulanova

Publikováno v: European Cardiology Review, Vol 15, Iss , Pp e41- (2020)

Externí odkaz: https://doaj.org/article/fd4e8fdf8a0b4c4794da759ec2183a0b

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SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders

Autor: Marjon H. Cnossen, Iris van Moort, Simone H. Reitsma, Moniek P.M. de Maat, Roger E.G. Schutgens, Rolf T. Urbanus, Hester F. Lingsma, Ron A.A. Mathot, Samantha C. Gouw, Karina Meijer, Annelien L. Bredenoord, Rieke van der Graaf, Karin Fijnvandraat, Alexander B. Meijer, Emile van den Akker, Ruben Bierings, Jeroen C.J. Eikenboom, Maartje van den Biggelaar, Masja de Haas, Jan Voorberg, Frank W.G. Leebeek, Ryanne A. Arisz, Minka Zivkovic, E. Shannon van Hoorn, Laura H. Bukkems, Tine M.C.H.J. Goedhart, Lorenzo G.R. Romano, Wala Al Arashi, Michael E. Cloesmeijer, Alexander Janssen, Martijn R. Brands, Lieke Baas, Jessica del Castillo Alferez, Huan Zhang, Sebastiaan N.J. Laan, Johan Boender, Johanna G. van der Bom, Mettine H.A. Bos, Lex Burdorf, Michiel Coppens, Mariette Driessens, Kathelijne F. Fischer, Lotte Haverman, Jan A. Hazelzet, Elise J. Huisman, Natalie Jansen, Sean de Jong, Marieke Kruip, Nikki van Leeuwen, Felix van der Meer, Stephan Meijer, Hans Kristian Ploos van Amstel, Suzanne Polinder, Saskia E.M. Schols, Guus Wijfjes, Kees Kluft, Waander L. van Heerde, Geertje Goedhart, Carin Uyl, Jasmijn Timp, Anke Stekelenburg, Floor Moenen, Paula Ypma, Laurens Nieuwenhuizen, Arnoud Plat

Publikováno v: Journal of Thrombosis and Haemostasis, 20(9), 2001-2011. Wiley
Journal of Thrombosis and Haemostasis, 20(9), 2001-2011. Wiley-Blackwell
Journal of thrombosis and haemostasis, 20(9), 2001-2011. Wiley-Blackwell
Journal of Thrombosis and Haemostasis, 20(9), 2001-2011. WILEY
Journal of Thrombosis and Haemostasis, 20(9), 2001-2011. Wiley-Blackwell Publishing Ltd
SYMPHONY consortium 2022, ' SYMPHONY consortium : Orchestrating personalized treatment for patients with bleeding disorders ', Journal of Thrombosis and Haemostasis, vol. 20, no. 9, pp. 2001-2011 . https://doi.org/10.1111/jth.15778

Background: Treatment choices for individual patients with an inborn bleeding disorder are increasingly challenging due to increasing options and rising costs for society. We have initiated an integrated interdisciplinary national research program. O

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f106600596b9764406a2984249fa8169
https://hdl.handle.net/1887/3494538