Zobrazeno 1 - 10
of 20
pro vyhledávání: '"Pru Holder"'
Autor:
Jane Chudleigh, Pru Holder, Corinna Clark, Louise Moody, Jacqui Cowlard, Lorna Allen, Claire Walter, James R. Bonham, Felicity Boardman
Publikováno v:
SSM: Qualitative Research in Health, Vol 6, Iss , Pp 100455- (2024)
Externí odkaz:
https://doaj.org/article/6bc12c57e0394c7d8c03395afb67a5c0
Autor:
Corinna C. A. Clark, Pru Holder, Felicity K. Boardman, Louise Moody, Jacqui Cowlard, Lorna Allen, Claire Walter, James R. Bonham, Jane Chudleigh
Publikováno v:
International Journal of Neonatal Screening, Vol 10, Iss 2, p 31 (2024)
There is increasing interest in using extended genetic sequencing (EGS) in newborn screening (NBS) for cystic fibrosis (CF). How this is implemented will change the number of children being given an uncertain outcome of CRMS/CFSPID (cystic fibrosis t
Externí odkaz:
https://doaj.org/article/b111c1366dd746a1b0c816dfc1d461f9
Autor:
Jane Chudleigh, Pru Holder
Publikováno v:
Children, Vol 11, Iss 5, p 507 (2024)
Psychosocial consequences of false-positive results following newborn bloodspot screening have been identified as a potential risk to this highly successful public health initiative. A scoping review was undertaken in October 2023 underpinned by the
Externí odkaz:
https://doaj.org/article/2e9637b06666411d89dd6015a9d6bf4b
Autor:
Pru Holder, Corinna C. Clark, Louise Moody, Felicity K. Boardman, Jacqui Cowlard, Lorna Allen, Claire Walter, James R. Bonham, Jane Chudleigh
Publikováno v:
International Journal of Neonatal Screening, Vol 10, Iss 1, p 13 (2024)
The project aimed to gather, analyse, and compare the views of stakeholders about the proposed UK cystic fibrosis (CF) screening protocol incorporating next generation sequencing (NGS). The study design was based on principles of Q-methodology with a
Externí odkaz:
https://doaj.org/article/8a840be6573c4e9f9e4b5c2ea5431e7e
Publikováno v:
JMIR Formative Research, Vol 6, Iss 9, p e36517 (2022)
BackgroundPressure ulcers are areas of skin damage resulting from sustained pressure. Informal carers play a central role in preventing pressure ulcers among older and disabled people living at home. Studies highlight the paucity of pressure ulcer tr
Externí odkaz:
https://doaj.org/article/9ed6383e3bf340a9923b4c84778c253a
Autor:
Jane Chudleigh, Lynette Shakespeare, Pru Holder, Holly Chinnery, Gemma Hack, Tanya Gill, Rachel Gould, Kevin W Southern, Ellinor K Olander, Stephen Morris, James R Bonham, Alan Simpson, Louise Moody
Publikováno v:
Journal of Participatory Medicine, Vol 14, Iss 1, p e33485 (2022)
BackgroundEach year in England, almost 10,000 parents are informed of their child’s positive newborn bloodspot screening (NBS) results. This occurs approximately 2 to 8 weeks after birth depending on the condition. Communication of positive NBS res
Externí odkaz:
https://doaj.org/article/34c35db00fbd423693cb4e6d6cc8d229
Autor:
Jane Chudleigh, Pru Holder, Francesco Fusco, James R Bonham, Mandy Bryon, Louise Moody, Stephen Morris, Ellinor K Olander, Alan Simpson, Holly Chinnery, Fiona Ulph, Kevin W Southern
Publikováno v:
Health and Social Care Delivery Research, Vol 10, Iss 19 (2022)
Background: Newborn bloodspot screening identifies presymptomatic babies who are affected by genetic or congenital conditions. Each year, around 10,000 parents of babies born in England are given a positive newborn bloodspot screening result for one
Externí odkaz:
https://doaj.org/article/716283bc24c14b23a6285f62f2d88a0b
Autor:
Stephen Morris, Ellinor Olander, Jane Chudleigh, Mandy Bryon, Pru Holder, Kevin Southern, Louise Moody, Fiona Ulph, Alan Simpson, Francesco Fusco, James R Bonham
Publikováno v:
BMJ Open, Vol 11, Iss 8 (2021)
Externí odkaz:
https://doaj.org/article/bfd5ea967e074629a16b7346145776d4
Autor:
Stephen Morris, Ellinor Olander, Jane Chudleigh, Mandy Bryon, Holly Chinnery, Pru Holder, Rachel S Carling, Kevin Southern, Louise Moody, Fiona Ulph, Alan Simpson
Publikováno v:
BMJ Open, Vol 10, Iss 12 (2020)
Objective To explore current communication practices for positive newborn screening results from the newborn bloodspot screening (NBS) laboratory to clinicians to highlight differences, understand how the pathways are implemented in practice, identif
Externí odkaz:
https://doaj.org/article/2b1e44d0e37a489088ac93da8d3e8760
Autor:
Francesco Fusco, Jane Chudleigh, Pru Holder, James R. Bonham, Kevin W. Southern, Alan Simpson, Louise Moody, Ellinor K. Olander, Holly Chinnery, Stephen Morris
Publikováno v:
International Journal of Neonatal Screening, Vol 8, Iss 1, p 19 (2022)
Although the communication pathways of Newborn Bloodspot Screening (NBS) are a delicate task, these pathways vary across different conditions and are often not evidence-based. The ReSPoND interventions were co-designed by healthcare professionals alo
Externí odkaz:
https://doaj.org/article/63ebc75876a1498e96bf7d6bacb9e8b8