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Experience of an information aid for newly diagnosed multiple sclerosis patients: a qualitative study on the SIMS-Trial

Autor: Borreani, C, Giordano, A, Falautano, M, Lugaresi, A, Martinelli, V, Granella, F, Tortorella, C, Plasmati, I, Radaelli, M, Dalla Bella, E, Bianchi, E, Acquarone, N, Miccinesi, G, Solari, A, D' Alessandro, R, Pucci, E, Uccelli, Mm, Trojano, M, Heesen, C, Mancardi, Gl, Milanese, C, Calabrese, D, Ferrari, G, Mattarozzi, K, Confalonieri, P, Antozzi, C, Maggi, L, Mantegazza, R, Colombo, B, Esposito, F, Moiola, L, Rodegher, M, Immovilli, P, Farina, D, De Luca, G, Di Tommaso, V, Di Ioia, M, Travaglini, D, Pietrolongo, E, Zimatore, G.

The SIMS-Trial (ISRCTN81072971) proved the effectiveness, in terms of patient's knowledge and care satisfaction, of an add-on information aid (personal interview with a physician using a navigable CD and take-home booklet) in 120 newly diagnosed pati

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid_dedup__::4f05b5532e02650be7a41c7312f7513d
http://hdl.handle.net/11567/778616

Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis

Autor: Solari, A, Mattarozzi, K, Vignatelli, L, Giordano, A, Russo, P, Messmeruccelli, M, D'Alessandro, R, Pucci, E, Martinelli, V, Uccelli, Mm, Borreani, C, Trojano, M, Heesen, C, Mancardi, Gl, Milanese, C, Galimberti, S, Calabrese, D, Ferrari, G, Confalonieri, P, Mantegazza, R, Maggi, L, Colombo, B, Esposito, F, Moiola, L, Rodegher, M, Radaelli, M, Granella, F, Immovilli, P, Dalla Bella, E, Lugaresi, A, De Luca, G, Mattoscio, M, Di Ioia, M, Travaglini, D, Farina, D, Zimatore, G, Plasmati, I, Tortorella, C, Orsolamalpighi, S, Guidolin, L, Leone, M, Motti, L, Tola, Mr, Montanari, E, Guareschi, A, Pesci, I, Pattini, M, Feo, C, Torricelli, L, Santangelo, M, Stecchi, S, Scandellari, C, Balugani, R, La Mola, L, Montagna, P, Pizza, F, Avoni, P, Baldin, E, Delaj, L, Rinaldi, R, Baldi, E, Caniatti, L, Milani, P, Mussuto, V, Manzoni, M, Casmiro, M, Fiorani, L, Galeotti, M, Guerrini, C, Neri, W, Mambelli, L, Malagù, S, Naldi, P, Calzoni, S, Collimedaglia, L, Pietrolongo, E, Di Tommaso, V, Pace, M, Benedetti, M, Rossi, F, Pastoretrossello, M, Faccioli, L, Spinardi, L.

Publikováno v: Multiple sclerosis (Houndmills, Basingstoke, England). 16(10)

Background: We describe the development and clinical validation of a patient self-administered tool assessing the quality of multiple sclerosis diagnosis disclosure. Method: A multiple sclerosis expert panel generated questionnaire items from the Doc

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3549321b600ca290ec8c641eb2939c68
https://pubmed.ncbi.nlm.nih.gov/20813775

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CONVENTIONAL MRI AND NOTCH3GENE SCREENING IN SPORADIC CADASILSYMBOLSYMBOL

Autor: Liguori, M, Mazzei, R, Ungaro, C, Simone, I L., Gambardella, A, Plasmati, I, Fera, F, Aguglia, U, Lanza, P, Bono, F, Chiumarulo, L, Conforti, F L., Consoli, D, Quattrone, A

Publikováno v: Neurology (Ovid); February 2009, Vol. 72 Issue: 5 p469-471, 3p